Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Negative Biopsy
0

8 posts in this topic

Hi, I had a positive blood test IGA 44.8 and IGG 184.5, but my biopsy came back today as negative. During the procedure I had told the doctor I felt better since I hadn't been eating wheat, etc. and he said "You don't know that diet, there is no way you haven't eaten any wheat, it is in so many things...."

Anyway, he called today and said it came back negative and that I can eat wheat :unsure: I feel so much better since I haven't been eating wheat. My symptoms were severe stomach pain (on a scale of 1-10, the pain was a 10+), and now I only get little twinges of pain now and then.

Any advice on whether or not I should try wheat again? Of course my head says no, but my heart says "some pasta sure would be good right about now"!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hello & welcome, Cstrong!

Would it give you comfort to know that you're not alone in your plight? Through a lot of reading, I have come to the conclusion that positive blood tests in themselves are reason enough to at least attempt a total gluten-elimination diet. Your body is producing antibodies against gliadin it's not only your intestines that can show damage. I needed a lot of convincing, believe me... but, I've read so much about how not having full-blown celiac now, doesn't mean you won't develop it later.

You'll receive a lot of support here... also, it's a benefit to read back through previous posts when you have a chance.

Good luck!

Gretchen

0

Share this post


Link to post
Share on other sites

Well if you like 10+ stomach pain, then, sure, go ahead and eat wheat.

Your blood tests alone put the chances of you haivng celiac disease at more than 95 percent. Add in the improvement in symptoms and you're near 100 percent.

richard

0

Share this post


Link to post
Share on other sites

Hi Cstrong,

This is an uphill battle all the way isn't it? If you feel better off wheat then don't give up. I think you should find another doctor who will listen. I called Dr. Peter Green's office and he agreed to look at my son's slides from his 7/26 biopsy along with his bloodwork. He is IgA deficient and 115 IgG. He has been suffering for 4 years. It is so sad that doctors are not very aware of celiac disease. I have told all the doctors I have taken him to all his symptoms along with his family history and still I was the one to bring up celiac. I do not look at doctors the same anymore.

Good luck and don't give up!

Lisa

0

Share this post


Link to post
Share on other sites

Grrr. I really hate it when doctors treat patients like they're stupid. There's no excuse. I say stick with what makes you feel better. You want another test? Have a wheat based sandwich. See how you feel. There's a test if you're not sure already!

0

Share this post


Link to post
Share on other sites




It's funny how doctors are so different. My blood tests were positive and I asked if he was going to do a biopsy. He said only if my symptoms did not go away. He also had told me the true test is how I felt on a gluten free diet as Celiac does not always show up in blood tests or biopsies. And he's an Internist, not even a GI doctor!

So, in my opinion, if your blood tests were positive and your pain went away, why go back to wheat? If it's pasta you want, try some Notta Pasta or Quinoa Pasta they're yummy! And you won't get a tummy ache!!!

Terri

0

Share this post


Link to post
Share on other sites

If your Anitbodies (IgA's) are elevated, even though your biopsy is negative you should go on a gluten free diet as stringently as if you had full blown celiac disease. One cause may be that you are in the beginning stages of celiac disease and may not have sinificant damage yet. The other is that your body is obviously not assimilating wheat and you may simply have a wheat allergy not a gluten, you should have that checked.

Magdalena, ON, canada

0

Share this post


Link to post
Share on other sites

Terri---

We need more Internists like yours in my area. I'm impressed that I've heard of one knowing what celiac disease is. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,502
  • Topics

  • Posts

    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined