Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free For Over 3 Months, Feeling Great!

Guest NitaB

By Guest NitaB
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

Guest NitaB
Guest NitaB
Posted

Hi everyone! Been away from this board for awhile. I retired and this summer has been busy with famliy, reunions, birthdays, barbecues, and our county fair with the granddaughter showing her horse! (blue ribbons!!!)

I'm happy to report that after being gluten free for over 3 months, I am feeling great! I have gained a few pounds I didn't need, by discovering I can eat ice cream and chocolate! Oh well, I hope to take it off again! :rolleyes:

You all said it would get easier to do this diet, and I want to say how right you were! I was so angry, at first, that I would never have another pizza, cheeseburger, Krispy Kreme, or birthday cake ever again. But, I got over that! Amazingly to me, I now don't miss those things! The diet just becomes a part of your life! Thank you to all who helped me get going on the right track!

I do have a question. Does anyone know if I get cross contamination, will the villi not heal, or not as fast? I seem not to be bothered by small amounts of contamination. I'm not too careful about this, when eating out. I don't eat anything, that I know of, with gluten in it. But, I don't have any symptoms, now that I've cut the obvious out. Once in awhile, I still get a sore on my elbow, like the ones I feel were DH, that I had for awhile last winter. I'm not sick ever, though, thankfully! But, I'm hoping I will still heal, with these possible contaminations, even if a bit more slowly. I don't go for another Upper GI until Feb. or after.

I have also since been diagnosed with Osteoporsis. Darn, I think I'm too young for this!!! And I itched severely when trying to take the med for it. So, I'm hoping that as the villi heal, I will be able to absorb all that calcium I'm taking! I have taken it for years, but not absorbing it, obviously. I did learn one thing frpm the Dietician, was to take my vitamins throughout the day, so as to help with absorption.

Thanks again everyone, for the great advice and support! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

Yes cross contamination is a HUGE issue, you will not heal because you are still getting sources of gluten. You think having osteoperosis at your age is young, I have it and I am 14 and was diagnosed at the age 0f 12.

Dwight Senne Rookie
Dwight Senne
Posted

Contamination sensitivity as far as symptoms goes, varies from one Celiac to the next. I know of no comprehensive studies to indicate the effects of villi when consuming small amounts of gluten.

The general consensus seems to be that other than microscopic amounts, even a little gluten is harmful to the villi. Even though you do not get any symptoms, it is probably in your own long term best interests to be as careful and diligent as you can.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is this celiac?

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    2. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    3. trents
      - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    4. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well. Thanks again (newbie here 😀)
    5. Hmart
      - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is this celiac?

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 1...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,346
    • Most Online (within 30 mins)
      7,748
    rolland mcclay
    Newest Member
    rolland mcclay
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Fiber Supplement

      By trents · Posted

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Is this celiac?

      By Hmart · Posted

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.