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Can Celiac Cause Severe Neurological Problems?
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Hi, not to discount the very important and serious neurological problems i have briefly seen on this board caused by celia, but im wondering if celiac can cause severe depression and anxiety.

I have celiac and no problems apart from fatigue and a bit of 'brain fog' but my brother has had severe depression and anxiety problems since he was a small child and has been in and out of hospital for them for years. I was just wondering if celiac can cause that type of extreme neurological problems? he has not been tested as yet (he isnt the most compliant of people!).

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In my opinion YES it can!! I have develeped several phobias, and avoidance personality disorder and even some paranoid personality disorder because of my Celiac. I can't say that for sure, but now that I look back it all makes sence. One of the major symptoms of Celiac is IRRITABILITY (to the point of mood changes and behavioral changes) that tells me that most of my phobias are a result of fears from having an attack!! I also have a sleep disorder and am now wondering if I aquired that as a result of my Celiac Disease. If I go gluten free and feel better could I possibly end up with no sleep disorder? Interesting question don't you think ;-)!!

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Yes, especially the type of gluten intolerance that doesn't cause the villi to flatten (and doctors often won't take you serious if you don't have obvious gut damage) will cause neurological damage instead. It has been proven many times over that celiac disease can cause depression, anxiety, mood changes, autism, ADHD, learning disabilities and even schizophrenia (just to name a few of the many problems gluten can cause).

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YES, YES, & YES... I was telling a doctor friend recently that I do not think that there is a person that is celiac or gluten sensitive that is not depressed on some level, before going on the gluten-free diet which has helped me a lot... depression is one of the main symptoms along with a lot of other stuff, and a lot of people have no symptoms or only one or two.

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Check out The Gluten File link in my signature. There's a lot there on neurological disorders, depression and anxiety and gluten sensitivity.

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severe depression for years and severe anxiety disorder were just a couple of my symptoms. I kept being sent to psychiatrists who in turn said I didn't need to be there... (counseling didn't do the trick, meds didn't do the trick) the only thing that helped was getting gluten out of my diet and the lifelong battle with depression and anxiety lifted... (I still get it in small doses especially if accidentally glutened but for the most part I'm now depression free)... oh and seizure free too.

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Definately. I had panic attacks dating back about 20 years. I haven't had one since going gluten-free, but I still have anxiety which is much worse and is coupled with paranoia and moodiness when glutened.

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    • So I've been glutened....
      Hi JMG, Since it's easy, and always fun, I'd blame your sister. That's what I do.  But seriously, if it's an ongoing problem, rather than an isolated incident stick with your first guess.  Then test it.   So get rid of the oat bread or the sister (her food) or anything that is a consistent part of your diet and you suspect could be the problem.  Of course processed foods are the most likely issue always. It's easy enough to drop back to a very few foods for a few days and see if things improve.  Eating with celiac isn't about having the most exciting diet, it's about eating a medically safe diet.  So it can be boring sometimes.  That's ok, being in pain is exciting but not so fun.   Boring is fine. You might ask your sister what brands of flour she used, and other ingredients.  Then check on those products for possible gluten issues.  If they turn out to be possible problems, make a note of it so you can avoid them in the future. My own sister has been gluten-free for years but she has made me sick several times with her "creations".  It really is best to trust your own cooking and nobody else's for at least 6 months as you are getting used to the diet and healing.  Then slowly branch out and add things in maybe 1 new item in a week.  Slow and controlled diet changes are the way to go.  Boring but safe.  Happy but slow.    
    • So I've been glutened....
      Jmg I am sorry to hear you are unwell. You have been so kind and helpful to me on the boards here. You deserve the time to rant too.   Everyone's suggestion of probiotic is helpful. I have taken them since the 1990's in spurts as needed but was told by my DC after this March glutening I should take it daily "for life". My local store ran out, (I buy the type that must be refrigerated so the manufacturer does not ship direct to customer.) I was ok first day without it but by day 3 I knew I had to locate some for the probiotic/ enzyme blend was necessary for me. I have still not healed well enough yet to be without. As others said it could be cc from sis or the food  industry. Within the food industry even with parameters in place errors can be made- hopefully not too often.  Often rare though especially if not designated facility.  It is hard to know some days what it was. I do hope you get better soon. Yes I do think it can affect the brain/mood. Happens to me a large amount can be immediately,  but a smaller amount by day 2 after glutening. I want to ban gluten everywhere in my environments, unrealistic I know,  but have only been able to do that at home.  Be kind and patient with yourself at this time as you would tell me. ((((((Hug)))))
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      Yeah I did all the bone broths and sauerkraut after my challenge. Although I wasn't very good at making sauerkraut... Its summer here now so I've eased up on the bone boiling, plus my local butcher is struggling to obtain them. As you say healing to the point where microscopic cross contamination doesn't get you would be a big win.  I was ok with coffee until last few days. I drank decaff black and would have several cups a day without issue. I'll be gutted if I can't handle it any more. I hadn't realised you could get gluten-free miso soup. Will have to look for that    
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      Coffee is a no-no for me!  I actually gave up coffee since my diagnosis back on 2/2016.  I was diagnosed by a biopsy in the stomach...no villi.   Coffee is a stimulant to the GI system and it really irritates your GI when you are having a flare up.  I was tested by stools and was informed I barely had good bacteria in my gut which is typically for people with celiac. I went on a high dose of probiotic (just started) twice a day, multivitamin, lots of fermented vegetables like sauerkraut, kimchi, miso soup and tons of bone broth.  I am going to a local farm today to pick up organic bones to make my broth.  I am so desperate to heal my gut, not to introduce gluten but to be able to tolerate an exposure without being knocked out by it....Eat very light, I stick to vegetable juice, resistance starch food such as banana, apples, potatoes boiled until my diarrhea subsides.  I am currently in a flare up stage; did something and I have been glutened I am on day 7 and my symptoms peak after a few days, around day 4-5 and it last a few days of Diarrhea, nausea, sensation of feeling full, back pain in the rib cage on left side and hip/lower back pain on left side.  Its horrible!  I feel weak right now due to the diarrhea and since I am not hungry it makes it worse.  Hope this gets better.
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