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Cd Doc In Kc, Mo

clanning

By clanning
in Doctors

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clanning Rookie
clanning
Posted

I'm new to this forum. I have a GI doctor that I've fired several times. MY celiac disease is so out of control. My biopsy's were terrible (complete/total Villa atrophy), my lab's were all critical IGG (?#) IGA >150, Iron levels, sever anemia, WBC 3, low every thing.

I 2 wks ago I had to have my gallbladder remove due to severe chronic cholycystitis. Not helling well from it. Can not absorb the CO2 from the surgery. Dr's all say it's from my celiac disease being out of control.

I've since tried staying gluten-free but it's very hard. Getting recipe's now etc..

My GI doc tells me that I'm not going to be around in 3 yrs. if I do not straighten up. Does anyone know if that is true?

It has taken over my intestines. I'm ALWAYS constipated taking laxitives like candy (prescripted & OTC). I take several meds Nexium, Zelnorm, Lactulose, Mirlax and I'm still severly constipated.

I have weak spells & have recently passed out at work. (Thank God I work at a hospital) Migrains and a lot of the time the crabbiest person on earth.

I would like to find a DR. would listens to me!! Yes, I know I have to stay on the diet first.

I've read that a lot of people on this take other things, why is that and how does it help?

Charlotte

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      Thanks, jmartes, for answering the question. You believe you still have active Celiac Disease. Right? You wrote that you are WHEAT free. Are you also BARLEY free and RYE free?I am asking this because to have an active reaction you must be putting gluten into your body, There are a few other foods that may cause some autoantibody production. Ask KnittyKitty...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
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      NOOOOOO NO NOOOO I was 23 years old.i have Not eaten wheat sense diagnosed in 1994.Been reading labels ever sense and in 2007 found more food issues. Menopause has changed my body completely and asking for help has turned into a medical NIGHTMARE. Wondering why my skin and eyes are having issues. Is all on me learning because blood work fine.Yet again for...
    3. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
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      Dumped

      Hi jmartes, In 1994, when you were in your 30s you were diagnosed with Celiac Disease at Kaiser. You went on a gluten free diet and still avoid eating wheat, barley and Rye. It seems that you recovered and you no longer have active Celiac Disease at age 54. If you started eating the gluten grains again you might again get back the symptoms and problems...
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    • Mari
      Dumped

      By Mari · Posted

      Thanks, jmartes, for answering the question. You believe you still have active Celiac Disease. Right? You wrote that you are WHEAT free. Are you also BARLEY free and RYE free?I am asking this because to have an active reaction you must be putting gluten  into your body, There are a few other foods that may cause some autoantibody production. Ask KnittyKitty about this. In 2007 you had more food issues. Many Celiacs have this development and I think it is because while they hadthe active celiac disease and damage to their small intestine food allergies were caused because of the damage  while you had the active disease and not identified until years later. It is necessary to eliminate those foods from your diet. Scott Adams wrote that some people can start eating those foods after their intestine has healed. I have not been able to add any foods I react to back to my diet.      
    • Jmartes71
      Dumped

      By Jmartes71 · Posted

      NOOOOOO NO NOOOO I was 23 years old.i have Not eaten wheat sense diagnosed in 1994.Been reading labels ever sense and in 2007 found more food issues. Menopause has changed my body completely and asking for help has turned into a medical NIGHTMARE. Wondering why my skin and eyes are having issues. Is all on me learning because blood work fine.Yet again for some reason not acknowledging my digestive issues ive given copies of.As stated in pervious post I was given breath test which I was positive with that dr and prior to him a few months, still wanted me to do.
    • Mari
      Dumped

      By Mari · Posted

      Hi jmartes, In 1994, when you were in your 30s you were diagnosed with Celiac Disease at Kaiser. You went on a gluten free diet and still avoid eating wheat, barley and Rye. It seems that you recovered and you no longer have active Celiac Disease at age 54. If you started eating the gluten grains again you might again get back the symptoms and problems you had when you were in your 30s. The only cure for Celiac Disease is being strictly gluten free.  Your medical providers are correct in telling  you that you do not have active Celiac Disease. Do you understand that? You may have some other developing health problems and I can write  more if you  answer the question.                         the only cure for celiac disease is being  gluten gree.
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      Study: 8% of Gluten-Free Products Test Over 20ppm, and 15% of "Gluten-Free" Products Certified by GFCO Contain Gluten at Over 10ppm

      By Aretaeus Cappadocia · Posted

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