Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Cant Sleep


joemoe003

Recommended Posts

melzie Newbie

Hi my name is Melanie and after 16 months of being sick I finally got a diagnosis of celiac disease..I have I believe been Gluten free now since dec 04 yet I am still feeling just as poor as I did before..I now am unablt to sleep..I am up usually till about 3 am and then I am up early with my six year old..I have been told about Gluten withdrawls, but how true is that. I have a panic disorder and my Dr, who is suppose to be the specialist is unaware of medication I can take? I read here you can havd Ativan? She also gave me ambien, now is that gluten-free or not?

I am at a loss and would just love to calm my nerves and sleep so any help would be great..

Melanie

Gluten Free since Dec 04

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

hi melanie---i do know that paxil is gluten-free--i was taking it when i went gluten-free--that was 3 1/2 yrs ago--at the time i couldnt get the panic under control--i was taking 40 mg and they usually start you out at 5 mg---give it time--some of us do take longer to feel better--you have only been gluten-free now for close to 7 weeks, you may beone who needs longer-----i also found that i had to severely limit my soy intake--soy was keeping me awake at night and i was also suffering joint pain again--the soy issue with me started last summer, but you may want to try limiting it now and see what happens---no soy flour, no MSG, be very careful about tuna, when packed in water, it is usually vegetable broth made with soy and it makes me sick--hydrolized is usually soy--beleive me, its hard to stay away from soy too, but you may feel better---now, soy lecthin doesnt bother me :P i can still have that occasional candy bar i think i need :lol: --i just know that soy makes me sleepless and the joint pain gets unbearable-------also--are you making sure you arent getting any gluten--are you checking ingreds in your shampoo, bath soaps, and lotions--make-up too--you can get glutened from these products--in your eyes in the shower or mouth, on your hands and touching your food----so much to remember huh----keep at it--feel better--deb

Link to comment
Share on other sites
cdford Contributor

I did not know that soy was part of the problem with sleeping. I react to it as well. Don't think I have gotten into anything lately, yet here I am at almost 3a.m. reading a message board. It is encouraging, though, to see how many others find themselves up at these rediculous hours. I saw back a few posts that someone was having trouble with cal-mag tablets. Me too. The doctor has me on mag sulfate injections. They seem to help. They are not an easy shot, but adding lidocaine to the injection and using an insulin needle limits the discomfort. It does help with the sleep, so I think I will go take one now. I had not even thought of it tonight.

Link to comment
Share on other sites
judy05 Apprentice

After one and a half years of being gluten and dairy free I am

still unable to get a good night's sleep. After reading your postings

I am going to try to not eat soy for several days. Do you think

one week would be enough time? I only slept good one night

this week. I do have my elderly mother on my mind because

she is not good, caught the flu in the nursing home even though

she had a flu shot.

I'm amazed at how many foods contain soy, husband is shocked.

Does anyone know of any publications that can link soy with

sleeplessness?

Thanks for this discussion. I don't know what I would do without

this board...

Link to comment
Share on other sites
darlindeb25 Collaborator
:) well all---i have finally come to a conclusion-------i moved to long island on christmas day ;) yes, christmas day--i decided it was time for me to get on with my life and i loaded the car and went--i have been here now for 1 month--my man is here, so that helps so very much, i found this really nice apartment in a house with a very good family in a nice neighborhood, after 4 days here i found a wonderful fulltime job, making more an hour starting then i did after 4 yrs on a job in michigan and no--the wages arent higher here, i just had an angel watching over me when i applied for this job---in mich i worked at a gas/convience store and was under so much stress--working alone is not my type of job, especially at a gas station--i live so close to the ocean---i am so relaxed here--i grew up in michigan, i have 5 children and 6 grand children and yes i miss them, but i can honestly say, mich was killing me------i am gluten-free, corn and soy limited--now, my headaches have stopped after coming here and finally--i am sleeping nights---stress everyone, even with our food intolerances under control most of the time--the stress of everday life is as bad as the intolerances--i love it here, i love my job and i love my man--my angels are watching over me and all is good in my world--not that i dont miss my family, i do, so very much--but this was the change i needed to get better and i thank god i was gutsy enough to move on with my life--sometimes it is so much more then the intolerances or i guess we need to add stress as an intolerance--the hardest one to overcome :lol::lol::lol: that's me :lol::lol::lol: deb
Link to comment
Share on other sites
judy05 Apprentice

Hi Deb,

I sort of did the same thing as you. I moved back to my

hometown in Pa after living in Delaware for 30 years.

My kids and my friends are there but I was getting so

sick from the humid summers and living so close to

chicken farms on one end of the state and chemical

plants on the other. I wanted to come back to the

mountains to get healthy again, I suppose that was

selfish of me but my kids can come and visit, just like

I did when my parents were here. I'm glad I did because

I have been here for my mother, she is 94 and not well

so I'm glad I can be there for her.

Congradulations on your move, I hope all goes well for you.

If I ever did decide to move back I would want to be close

to the water, the salty air is very healing and rejuvenating.

Link to comment
Share on other sites
darlindeb25 Collaborator
;) thank you judy----geez--i grew up on a chicken farm and michigan is very humid--i was asked once how i thought i could live on an island if i couldnt take the humid weather in michigan--but its different here and you are right--the ocean air is very healing and watching the ocean is so soothing--its so majestic and carefree--i walk away feeling comforted--i know i made the right decision and if it was a selfish decision, then it was high time i made a selfish decision for me--i raised my kids pretty much alone and my life was them and finally i have time for me---i never felt good in michigan and i had headaches everyday of my life--the headaches have quit here, i am sleeping nights again, i havent done that in years--i miss my kids and grandkids and the rest of my family and friends, but you are right--they can visit :lol: and what a place to visit--i am truly happy here, happier then i have ever been--it's all good----------deb
Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,091
    • Most Online (within 30 mins)
      7,748

    Grammar B
    Newest Member
    Grammar B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...