Blood Tests And Gluten Challenge
Posted 15 September 2004 - 12:01 PM
So I did a gluten challenge for three weeks. Tested again. Everything negative but Endomesial antibody went up to just enter the positive range, exactly 1:5.
I'm thinking now I should be on gluten a longer time and test again, because the longer I am on a ciet containing gluten, the more digestive distress I am having.
1. Can anyone explain what the higher endomesial antibody test results might indicate? Should I pursue more testing after a longer gluten challenge?
2. What is an ARA test? Should I have had it or did I already under one of the other names?
3. The nurse read my report to me over the phone, at my request, and mentioned a term that included the words tissue transference (not sure I got it right, but the number she gave me on that was 13, whatever that may mean.
I will meet with my dr. and get these things clear, but frankly I don't think she knows that much about celiac disease or the tests.
I'd like to go armed with the right questions to ask!
Thanks for sharing iwhatever nformation you can. Elsie
p.s. I've suffered digestive problems all my life, sometimes called colitis and more recently irritable bowel or "food sensitivities." After being treated for non-hodgkins lymphoma two yrs. ago and learning the higher risk for that among Celiac patients I feel I need to get serious about a definite diagnosis to preserve my present health.
Posted 17 September 2004 - 05:14 PM
Posted 17 September 2004 - 07:23 PM
I think the test (#3 on your list) is called Tissue transglutamase
Here is a link to a laboratory test information guide for this test:
If this was the test you had and you had a reading of 13 than I think it means you MAY have tested positive for celiac (I'm not a doctor!). It says on the website that a normal reading is less than 10 U/ml. But it also says "Tissue Transglutamase may give persistent mildly elevated results in the absence of disease". Definitely worth looking into! Of coarse check this info with your doctor.
Tissue transglutamase is the blood test that I had and I was told that this blood test is vey specific for celiac disease.
Diagnosed with Celiac Disease in March 2004
Postitive tTg Blood Test, December 2003
Positive Biopsy, March 3, 2004
Posted 17 September 2004 - 09:44 PM
ARA is Anti-Reticulin Antibody. It is as far as I can tell an outdated bloodtest that very few doctors or labs rely on anymore for Celiac testing. It is still included in some celiac panels though. On mine it said I was negative for the screening test for it, so the actual test was never performed.
The fact that your IgA endomysial antibody went up when you went back on gluten is an indication that gluten may be causing your symptoms, but if you want a definative diagnosis you would have to go back on gluten for anywhere from 3-6 months or more to get more accurate test results. Otherwise you could just continue on the gluten free diet and see if it helps. I went back on gluten for two months and it was not long enough to show my doctor the damage she wanted to see to give the diagnosis of Celiac. I opted for Enterolab testing to get my answers. I am very happy with their testing methods and it is certainly an option. You can check them out at http://www.enterolab.com
Mariann, gluten intolerant and mother of 3 gluten intolerant children
Posted 18 September 2004 - 07:03 AM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
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