Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated


corinne

Recommended Posts

corinne Apprentice

I have collagenous colitis (not celiac) which can also be treated with a gluten free diet in addition to eliminating any other food intolerances. I finally got the D and vomiting under control by eliminating gluten, all grains including corn and rice, potatos, dairy, soy, nuts, beans, cruciferous veggies, onions+garlic, sulphites, caffeine, spices and acidic foods. Very strict diet, but I figured it's just for a short time until the gut heals. I have been symptom free for 3 months so I thought it was safe to start adding foods back in. I started eating potatoes in December and everything was fine initially. Then in Feb. things gradually got worse and worse until constant D about 2 weeks ago. I was taking a lot of Imodium in order to be able to work. I quit eating potatos a week ago and things are fine again, no symptoms. ARRGGHH! It's great feeling good and being symptom free, but I might scream if I have to eat carrots, squash and bananas for my carbs permanently. Maybe it takes years not months for the gut to heal and I need to be more patient. I hope so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

It took a year for me to be able to handle distilled vinegar, annatto, and some other ingredients. Give yourself some more time and consider trying other easy on the tummy foods.

L.

Abug Rookie
...by eliminating gluten, all grains including corn and rice, potatos, dairy, soy, nuts, beans, cruciferous veggies, onions+garlic, sulphites, caffeine, spices and acidic foods....

I agree with mommida in giving it more time. At this point, I'd be willing to do anything. Since you've found a diet that makes you feel good, you're ahead of me! As I was reading your strict diet restrictions, it sounded very much like my restrictions, except I must also exclude meat, fish, and eggs. I'm also trying to cut back on processed foods, even eliminate them if I can (within reason, I mean, I don't wanna be an idiot and end up dieing of malnutrition). I was wondering if you could tell me what it was you do eat, with a reasonably limited amount of effort. Who knows! Maybe I even have your condition, but am not yet willing to revisit the doctor to find out because I've already spent more than my share of time and money with doctors over the years, and I don't wanna go through that again. I'm perfectly willing to eliminate anything and everything from my diet, as long as there's something else I can eat instead so I don't have to spend so much time and effort wondering what in the world I can eat. If I can just get started, maybe I can create new dishes and meal plans from there, and I can help find other ways to get the nutriment we need. I haven't eliminated caffeine, potatoes, rice, corn, soy, beans, or some acidic foods, and I don't know what cruciferous veggies are (nor does my spelling dictionary), nor sulphites (in terms of food), but like I said, I'd be willing if it would just make me feel better :) I'd love to be able to help out, but I need a starting point.

corinne Apprentice

I really heavily on eggs, fish and meat for calories (fruits and veggies don't have much) so the diet won't help much for you. Perhaps though, you can replace eggs, fish, meat with nuts. However, nuts can be hard to digest.

Breakfast: boiled eggs + canned fruit (peaches, pears, mangos or berries) or if I have more time I make pancakes from 2 eggs + 2 bananas in the blender.

Lunch: can of tuna or sardines and lots of cooked carrots.

Snacks: avocado or more canned fruit or bananas

Dinner: meat + squash

I'd prefer to not eat so much meat, but I wouldn't have enough calories to live on if I didn't. I react strongly to beans (including soy), nuts (even nut butters) and dairy so there isn't much choice for proteins.

Cruciferous veggies are cabbage, cauliflower, turnips broccoli etc. These are high fiber and hard to digest.

Eliminating caffeine might be a good start. Soy and beans can cause problems too, but this wouldn't leave you much to eat.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd replied to Rejoicephd's topic in Coping with Celiac Disease
      8

      Draft gluten-free ciders… can they be trusted ?

    2. - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results

    4. - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      64

      How Come Gluten Didnt Bother Me In Italy

    5. - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Inconclusive results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,710
    • Most Online (within 30 mins)
      7,748

    new journey
    Newest Member
    new journey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.