Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Missing Certain Foods


glen4cindy

Recommended Posts

glen4cindy Apprentice

Hello again. I am a newbie that has been gone for awhile. Just been really busy.

I have a question that I was curious about. I have found that being gluten free has made dining our rather difficult. Most places that I go, they are very concerned, and bring out a chef, or a person in charge who will check ingredient lists for me. One thing that comes up is this. Has anyone contacted restaurants and asked them to develop gluten free alternative items? When my wife cooks for me at home, she makes alot of the same things that she used to make, but, now uses Almond Flour, White/Brown Rice Flour, etc.

Is it possible that some of the nicer restaurants would be willing to provide gluten free alternatives to order? I really like the Southwest Shrimp and the Firecracker Chicken Wraps for instance from Longhorn Steakhouse, but, they are not gluten-free and I cannot consume them.

Just wondering if anyone tried contacting them. Many places are now offering Atkins items. Would be really nice to see gluten-free items.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest PastorDave

Pastor Dave's wife here,

In the United States there are not many restaraunts that specificaly cater to people on a gluten-free diet, but it is not so throughout the world. In Italy many of the restaraunts will even serve gluten-free pasta! It is just so underdiagnosed in the Western hemisphere that the restaraunts have not had the chance to see how much of the population would benefit from gluten-free meals. Once the diagnosis keeps up with the incidence of celiac disease, then the number affected will be a very strong motivation for change in restaraunts and in food manufacturing.

celiac3270 Collaborator

Tiny86 meant to say this, but used the report button, rather than the add topic button to "post" it. Therefore, it came in the form of a report to the moderators, but it was meant to go here:

------------------------------------------------

I have eaten at redlobster 2 times, and they have been great. So far all I have been able to get is the Lobster & Shrimp Ceasar salad. I am also a nebie learning, boy is this hard.

------------------------------------------------

Sharon C. Explorer

I actually thought about contacting some manufacturers to see if they were interested in closing down their equipment, washing it down, producing a certain amount of the same product but gluten free and releasing it to the public, then going back to their regular stuff and supporting a gluten free line of mainstream stuff. Maybe have a schedule to produce some gluten-free stuff here and there. It may not be worth it for them to invest in a gluten-free line, so maybe just producing it once every few months would be able to show them that the products would sell and they would not lose money.

FreyaUSA Contributor

When you buy a product that says it's been manufactured on equipment also used in the manufacturing of < >, they have done essentially that. Companies like Kraft will list all known allergens in their ingredient label, but still warn you that the chance of cross contamination is there (even if very minimal. Cleaning processes for food grade manufacturing are pretty strict and many companies are even stricter.) This is where people have to decide if it's worth the risk or not in eating that product.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,196
    • Most Online (within 30 mins)
      7,748

    Jen Fleming
    Newest Member
    Jen Fleming
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.