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Negative Fecal Fat But Underweight

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Posted 29 May 2007 - 07:19 PM

My 12 year old son has the following results from Enterolab -

Antigliadin IgA of 128 units (normal is <10
Antitissue Transglutaminase of 70 (normal is <10
Fecal Fat score of <300 (normal is <300)

They recommend that he go on a gluten free diet which I agree. But I am confused. He is very underweight (5%) but it shows no malabsorb issues. Is that conflicting? I would think that he isn't absorbing nutrients if he is under weight and has those high value results. Any thoughts???
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Posted 30 May 2007 - 02:17 AM

When did he start losing weight? Maybe he has some of his intestines working properly, therefore absorbing the fat. Maybe severe damage hasn't occured yet. I would start the gluten-free diet because his numbers are high.

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Endoscopy May 23,2007 - positive

Entrolab Dec 2006:
Fecal Antigliadin IgA 209 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 35 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 371 Units (Normal Range <300 Units)

Fecal anti-casein (cow’s milk) IgA antibody 42 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0201

HLA-DQB1 Molecular analysis, Allele 2 0302

Serologic equivalent: HLA-DQ 2,3 (Subtype 2,8)

Daughter Allison - positive blood and biopsy December 2005
Son Benjamin - negative blood, has DQ2 gene
Husband Shane - negative blood



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Posted 30 May 2007 - 02:25 AM

For all the 27 years my husband went mis-diagnosed his fecal fat count was in normal range however, his weight plummeted from about 180 to 127 over the course of 2.5 years from first symptoms. Those specific blood tests were not invented or his doctors did not utilize them for the first 15 years or so of his illness. It got to the point where even new GI's viewed him as being "mentally ill" and "obsessed" over foods that gave him stomach trouble. Because using their testing methods THEY couldn't find anything wrong with him.

He lost all his body fat and became so malnourished that his body -- for lack of a better word -- ate his muscles - in the same way it would happen to an anexoric.
The doctors brushed this off and he is at point today where the muscles are not re-building; BUT as for a 12 year old he's still growing and as long as you get to the bottom of his problems (i.e., if he is celiac then go gluten-free) it shouldn't turn out this way.
My husband was 27 when he got first symptoms of celiac disease.
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Husband has Celiac Disease and
Husband misdiagnosed for 27 yrs -
The misdiagnosis was: IBS or colitis
Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,
most prestigious medical groups in northern NJ which constantly advertises themselves as
being the "best." This GI told him it was "all in his head."
Serious Depressive state ensued
Finally Diagnosed with celiac disease in 2003
Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.
Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle
Developed neuropathy in 2005
Now has lymphadema 2006
It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

#4 confused


    Just cause i cant have gluten doesnt mean im dying

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Posted 30 May 2007 - 05:24 AM

My step-son was negative on fecal fat also, but his numbers were kinda high on everything else. He is also underweight, but now when he does stick to the plan he is starting to grow and gain weight. He is 13, going on 14.

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gluten, casein and soy free
on low carb/low sugar diet



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Posted 30 May 2007 - 06:40 AM

when you have D all the time you tend to not absorb nutrients and calories very well, im the same thing lost 10lbs in a month but my fecal fat score was normal. also if your sysem is working over time you can be burning more calories, i bet he gains weight when he goes on the diet. i did, good luck
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mom of 4 great kids - 2 diagnosed with autism and 2 typical kids (thank goodness)
all this started after my hysterectomy in March of 2006
G.F. since Feb 2007
Soy free since April 2007
Blood work was negatvie (after 2 weeks of being on the gluten-free diet)

entrolab results:
Antigliadin 9 (normal <10)
HLA-DQB1 Allele 1 - 0302
HLA-DQB2 Allele 2 - 0502
HLA-DQ 3,1 (subtype 8,5)
carrying one celiac gene and one gluten intolerant gene
nurse at entrolab figures i caught this early and dont eat gluten anymore

life is like a box of chocolates;sometimes you get stuck with the yukky coconut fillet one

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