Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pms Symptoms


radgirl

Recommended Posts

radgirl Enthusiast

I wasn't really sure where to put this, so I thought here would be a good place. For those of you while still consuming gluten, did you notice your PMS symptoms to be far worse than they are now? I'd love to hear some insight to see how gluten affected our monthly cycles and if finally getting off gluten helped.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CCM Rookie

I don't know if this is the right place for this thread either (there might be more in the pregnancy section?), but I will say that my monthly cycle is doing so much better since I went off gluten at the beginning of the year. I had a blood test done in July, but had to wait until after Thanksgiving for the endoscopy. No one told me how much wheat I had to keep eating until then. Soooo....I ate a ton, purposely making all the dishes I knew I wouldn't be able to eat again. I had already decided that I was going gluten-free after the biopsy based on how badly I felt. I just did not understand that my PMS problems were directly related to gluten at the time.

So for two weeks of every month between the summer and the end of the year, I think that I really became another person...that is how bad the PMS was, I guess they call it PMDD. Mood swings, irritability (an understatement), terrible sleep (lack of), severe depression and suicidal thoughts, I hemoraged a week's flow all in a day and half (sorry for the graphics, but I really could not leave the house). I spent the other two weeks of the month dreading the next two weeks about to come back. I also had a miscarriage four years ago that I relate to all of this now. Did I mention zero sex drive yet?

gluten-free since January: immediate relief from PMS, mood swings, imsomnia, depression, low libido (OK, I also cut back on caffeine and took more vitamins). Menstrual flow is slower to recover, but much lighter and now spread over four days. I am hoping that I might still be able to get pregnant in the next year or so....

Lukalovescats Rookie

So glad you all posted something. I've had horrible cramps for years, they thought endo, but never found any cause. Would take 3-4 darvocet a day for them. Over the past few years the periods got much heavier as well. My gyno put me on Prozac last summer for the PMS/PMDD. I've been on 4 different pills including NuvaRing and now Lybrel to end the periods. I'm at the point where I'd like them to just do a hystrectomy, but have been thinking about stopping the pill altogether and seeing if anything had changed since I went on the diet. I think you all helped me make the decision. I was thinking of trying accupuncture if the cramps are still bad.

SpikeMoore Apprentice

Hi

I believe the site is endo-resolved.com...there is a diet section there and it says to avoid wheat and dairy. I was a cheese lover also, but now find much less pain when I eliminate or reduce it (I don't have a sensitivity, but the milk fat converts to inflammatory prostaglandins in your body and they cause the pain).

I had high hopes that going gluten free would resolve the cycle problems of increasing pain, heavy flow and infertility, but alas no, I need to be on the pill to control the symptoms. But at least that works--minimal pain and tolerable flow. I tried to go off of the pill with continued strict avoidance of cheese and gluten, but within two cycles, the heavy periods had returned.

  • 4 years later...
writer73 Newbie

I've been gluten free since Sept 2012 and I did so suspecting my skin rashes, which were horrid, might be related to wheat/gluten. My skin is much better. I had terrible PMS also - and this has pretty much resolved. My PMS would start a week prior to my period - irritability, bloating, and indescribable "pressure" kind of all over that wouldn't go away until I had my period. I had to take an antidepressant to take the edge off with my irritability. Now, I might feel a little irritable a day before I get my period - but nothing major & no other symptoms. My periods are lighter and don't last as long also. I don't need the antidepressant either. I am so relieved to have found the answer to all of my problems! My energy level has improved also.

nvsmom Community Regular

I have a bit less bloating and cramps. My greatest improvement was in the headaches; I used to get a migraine for a week. Since going gluten-free I have had a two day headache for pms once. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Kelly Hannon
    Newest Member
    Kelly Hannon
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.