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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Casein In Breast Milk
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6 posts in this topic

I have been breast feeding my daughter for 3 months and have had an unusually high number of clogged milk ducts. I'm drinking Herbalife "Nutritional Shake Mix" and "Ensure" three times daily, both of which list Casein or "Milk Protein Concentrate" as a main ingredient. My question is can this intake of large quantities of Casein make my own breast milk coagulate and clot more easily and therefore lead to this high number of clogged milk ducts? This is an important question for me because I want to continue to breast feed but the clogged ducts, engorgement and resultant Mastitis makes it very painful and difficult. My other question is how much if any Casein might my baby be receiving through my breast milk? Her father has a Gluten and Casein allergy and she has shown some allergic reactions to Cow's milk the couple of times she was unfortunately given formula. Any other ideas on diet and clogged milk ducts are welcomed!

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I haven't heard of that. Check out kellymom.com for good breastfeeding advice. When I had clogged ducts it was usually because I wasn't nursing enough or drinking enough water. Good luck with the breastfeeding! My (3rd and last) baby is almost weaned and I have to say I'm actually going to miss nursing!

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I am so sorry about the mastitis and the clogged ducts! OUCH! Those can be painful. I don

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Another thing that can cause mastitis is a too tight fitting bra. Just a thought.

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There is some research showign diet related to repeated plugged ducts, particularly high fats and low iron. Lecithin supplements have shown to be helpful in reducing the ducts in these cases. I know several moms that this made a huge difference for. other common causes are tight bras, baby carrier straps, and changes in your nursing pattern which leave milk in the ducts to thicken. Trying to nurse more frequently and use a a pacifier less, if you use one, can sometimes help. I had horrible repeated plugs with my first baby, the lecithin did help, but I also got pretty good at treating them and stopping them from turning into mastitis which is miserable.

A treatment that works for lots of moms is heat, as hot as you can stand, on the plug. AFter heating it, massage, ro hand express from behind the plug all the way down to the nipple, essentially trying to express the plug. sometimes the milk can look yellowish or thickend and stringy, which is safe for the baby if a little yucky. For heat I liked to use a rice sock--a cup of rice in a sock, knot the top, and microwave it until hot. I had a big one, and a little one made from less rice in a toddler sock which I could tuck into my bra. Also trying to position the baby so his nose in facing the plug increases the suction over that duct. That's in my books, can't say I was always able to try it. required some nursing gymnastics at times.

I hope your issue resolves, I think with my son they got much better aroudn 4-5 months, and I'm really glad I didn't give up, though some nights with mastitis were miserable.

Good Luck,

Patty

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I nursed my daughter for a little over a year and typically my causes for blocked ducks (the 3 times I had them) were from nursing in the same position all the time. Once I switched it up for feedings I didn't have a problem anymore. I was told the more positions you use and making sure you have nursed completely (the baby has drained you) the less likely you are to have clogs.

Are you nursing in different positions:

Side laying

Sitting in a chair feet/legs across from you

Sitting in a chair feet/legs along your side .

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      I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy.  The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation.  There are a lot of different possible ways gluten can effect the brain some may not be related to the gut.  It could still be an immune system problem.  Normally "non-Celiac gluten sensitivity" refers to just a food intolerance.  Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.        
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      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
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