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Anxiety
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7 posts in this topic

Hi,

For the last twelve years I have had lots of stomach pains, diarrhea, accidents etc. I am feeling a lot better now that I am gluten free. But I still get anxious when I travel, or when I know the bathroom is a long distance away. My husband travels a lot with school kids, and I would just love to go with him, but the fear of having an accident keeps me from going anywhere. I will travel with him, but am afraid to travel with other people, having an accident is just so embarrassing. Do we ever get "regular" again?

BAM

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<_< its an irrational fear that you may not ever get rid of--i know i panic when i dont know where the bathroom is or i am where there isnt one and i have been gluten-free for over 3 1/2 years--it's because we have been through so much before going gluten-free and we still dont trust our bodies---its a trust that doesnt come back easily---i do have very good days where i can go without knowing where each bathroom is along the way----maybe with time you will feel safer---it's hard, i know--i live it too--we do get regular, but sometimes that irrational fear will make us panic and then we have to go--its a vicious cycle for us---try talking to yourself and reminding you that you will be fine----i have to do the driving, i can ride with my boyfriend, but only him, no one else--i know i havent helped you, but i have reminded you there are others of us out here that feel the same way----i do have good days--more good then not :lol: deb
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I am still suffering from that anxiety. I went to therapy and started anti-anxiety medication after my dignosis. It really helps a lot!

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I still have anxiety as well. It's alot better then before but it's still there. Once you try things a few times with success you will trust your body more. I went to therapy and they told me it was a fear of what might happen since so many times I have went to do things and started not feeling well and I was just expecting something like that to happen.

I started on medications but I eventually was able to get off of those pills thankfully:)

Good luck:)

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Yes ... anxiety is a real tough one to get rid of. I have been gluten free for about 17 years, and still have some of those problems. I think maybe because every time you start to get comfortable you run into a contamination. I think what helped me the most is a few, very close friends getting me out of the house for short periods of time, to start with and then extending the time. They even helped me find the bathrooms :D I am probably more confident than a lot of Celiacs now, but that comes with time and the fact that I'm very careful what I eat for two or three days before an important outing. Well ... I'm always careful, but before an outing I never try anything new and go back to the very basics. Hope this helps some :)

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Oops ... I forgot. If it's an un-planned event, and I start getting nervous about it and of course, we all know what happens when we get nervous and tie up those stomach muscles, then I take my old friend "Imodium". It's got me through more than one occasion :lol:

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It is so nice to hear that I am not the only one suffering from this! Before diagnosis, I had a career counselor psychologist (?) say it sounded like i had agoraphobia. At first I thought she was nuts. Then i realized i was nuts, lol.

I found a book at the library that was very helpful with anxiety called "Fearless Living: (something more...)" by Judith Marquart (sp?). It's also available from Amazon. Come to think of it, I think I may check it out again....I'm in need of a refresher :)

btw, does anyone have any advice on how to help dh's deal with this sort of thing? Mine is very understanding, but still....feels limited in going places sometimes, though tell him to go solo or whatever, if i just don't feel well. I may post this over in the "friends of" section...

Thanks,

Merika

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    • by the way, I do find the lab who does the gluten sensitive test Gluten Allergy IgE Test This test is used to determine if a person has an allergic reaction to gluten, a protein found in wheat, barley, and rye.  Roughly 1 in 30 adults and 1 in 40 children suffer from a Gluten Allergy.  An IgE test looks for antibodies which develop in a person who has a particular allergy.  Gluten Allergy can display symptoms similar to other conditions such as Celiac Disease.  Unlike an allergy, Celiac Disease can do permanent harm to the body if left untreated.  Allergy testing when a person is experiencing symptoms can help identify or rule out an allergy as the cause.

      Gluten Allergy is typically less severe than other Gluten related conditions like Celiac Disease.  People with Gluten Allergy will often experience abdominal discomfort, bloating, gas, constipation, or diarrhea when they eat products containing gluten.  These symptoms usually stop when a person cuts gluten out of their diet.

      A Gluten Allergy IgE test can be ordered to help determine if someone allergic to gluten.  This test can also be ordered when a person is testing for Celiac Disease and has had negative results on Celiac specific antibody tests.  An allergy test can also be ordered prior to Celiac testing to rule out Gluten Allergy as a likely cause for a person’s symptoms.
    • so does it mean a person who carry dq2 or dq8 gene will have high chance to develp celiac disease if they continue to eat gluten or some other stuff trigger it??      
    • I just wanted to share my experience. I started with the endoscopy because I was having symptoms of a hernia + I had a colonoscopy at the same time to test for Chron's. While getting the scope the doctor noticed damage of the small intestine and did biopsies and they came back positive for Celiac disease. We followed up with the necessary blood work to confirm and those all came back like yours, negative, however my genetic testing was positive. So although rare, it is possible to test negative on the blood work and still have damage and be a positive. I don't know why my blood work was off, but I am glad I had the scope first because I would have never known the damage I was doing if I relied solely on the blood work. 
    • You're welcome. Good that you're having the gene test as well. If you DO have the gene(s) then you realize one can present with celiac at any point in life -- any age -- so you would need to be tested like you were, every 2 years in the absence of symptoms. If one develops symptoms then they need to be tested right away instead of waiting for the 2 yr. mark. It's not common, but is possible to test negative on the blood and still have villi damage on endoscopic biopsy. So depending on the results of the gene test....... you might see if your doc will do a endoscopy for you OR you might be what they refer to as something like a pre-celiac where you're not testing positive yet but most likely will soon.
    • Just don't give up.  Good luck and best wishes to you.  Let me know how it's going for you.  Been there, done this.  It ain't fun.
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