5 replies to this topic

[aldociao]

So, it seems to me the diet doesn't always help!

LuvtoLaff,

It does sound not logical. Are you sure your gluten-free diet was a good one? If it was, you should not have gotten the symptoms you mentioned even if you are not gluten intolerant. A gluten-free diet, a good one, should bring health regardless of one's sickness. There are those on this Board who might be able to tell you if you did have a good diet. (I'm still in the process of finding out myself.) Why not post what you ate on a typical day, or days, so that it can be evaluated by others here who have thrived on the gluten-free diet for years?

You mentioned that your only symptoms prior to being diagnosed were chronic diarrhea and weight loss. My only symptoms (I'm self-diagnosed, awaiting results from Interolab) were weight loss and a difficult to define feeling of being neither well nor sick, a kind of fatigue that wasn't severe enough to cause serious problems but kept me for doing many of the things I wanted to do. Though there were signs, very minor signs, of feeling better for the first two months being gluten-free, only now, as I'm approaching the third month, has there been a very noticeable change for the better--more energy. The weight, 2lbs in the last week, is the first weight gain in so long a time that I can't remember the last time I wasn't losing, or remaining the same. I guess the intestine is healing, but it took almost 3 months for any really noticeable results.

I'm not suggesting that you should stay on the diet you were on--there has to be something wrong with it. But it certainly couldn't be because it's gluten-free. What I'm suggesting is that you give it another try after getting feedback on what might be wrong from those here who have the experience to help you in your food choices. If you do have celiac disease and you don't take the necessary steps now to deal with it, it can only get worse as time goes by, especially since, like me, you are mostly symptom free, without the helpful, though annoying, reactions that will tell you that you are doing what you shouldn't be doing. Not if you want health. --Aldo

[Laura]

Did your diet get worse in some other way? It can be hard to maintain a healthy diet when you have to eliminate so many things. Is there some nutrient that you got mostly through foods containing gluten or through something you ate with a food containing gluten that you didn't get on a gluten-free diet?

You don't say if you were diagnosed celiac with blood tests and/or biopsy, so if not maybe you were misdiagnosed. But I still don't see why, given a healthy gluten-free diet, you'd get the symptoms you describe. So you might want to go back and ask your doctor some questions, because neither of the sets of symptoms you describe sounds like anything I'd want to live with.