Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Paranoia..

num1habsfan

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

I notice a lot of you suffer from terrible nightmares too, does anyone else have horrible paranoia especially during the night, and based from the nightmares you've had??

I know I seem to have to be even more paranoid about basements I have no idea why. Nothing has ever HAPPENED to me in one, but just from the dreams I've had I keep thinking something is going to come out from around the corner..The same goes with closets. I keep thinking that something is going to come out of the closet by itself. Or that I turn around in bed and some ghostly thing will be standing there..

And I'm also VERY very jumpy..at anything.

And since I've been gluten-free this has seemed to gotten worse..

If anyone else is like this, or has a solution BESIDES medication, please say so..

~ lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest BellyTimber
Guest BellyTimber
Posted

1) We wouldn't admit it if we had, or would we ...

2) What you describe doesn't sound like paranoia, it sounds like sensitivity to dimensions. What some might define as the rational is (partly) a matter of convention.

3) A word I rather like (I'm not admitting why) is hypervigilant. I'm not sure what you describe is quite that, or not. Anyway I think nearly all "paranoia" is merely hypervigilance. One can get like that through any tough experience and I think one can and should feel relaxed about being that way. Not only the complications our bodies were having to go through gave us wariness mixed with sadness, but the interrelating with people we had to deal with about our illness too. One isn't "being stupid", the human mind is naturally a fountain of symbols that form out of whatever is going on.

4) On the odd occasion one finds oneself thinking something one simultaneously views as not quite making sense, one remedy that might be of use is exhaustively and extensively and repeatedly outlining to oneself the reasons for the opposite view, e.g the police cars are there about the traffic, an emergency call, routine patrols, etc etc. I am not saying how I arrived at this opinion!

5) As to basements, you could perhaps debate with yourself, does the world really work like in the "suspense" films - even the spiritual world? I hope a lively sense of critique and an ever-enquiring mind and thirst for information will help you through this. That's a viewpoint I've "somehow" arrived at. You've already shown how brave you are!

Michael

self-imagined proprietor of 10c psychology kiosk, Snoopy style?

Guest Viola
Guest Viola
Posted

I like your way of thinking Michael :) I also have periods of being very aware of any sound or movement. I'm not sure what brings them on, but I will have to look at them differently from now on :P

ianm Apprentice
ianm
Posted

You sound a lot like me prior to going gluten-free. After going gluten-free the nighmares, etc. went away but it took several months for that to happen.

Ianm

Carriefaith Enthusiast
Carriefaith
Posted
I notice a lot of you suffer from terrible nightmares too, does anyone else have horrible paranoia especially during the night, and based from the nightmares you've had??

Yes

If anyone else is like this, or has a solution BESIDES medication, please say so..

I try not to watch scary tv shows or movies about ghosts or the spiritual world. They freak me right out. The funny thing is I can watch zombie movies like Dawn/Shawn of the Dead or other horror movies like Army of Darkness and find them funny but if I saw a movie like The Ring or any one of those type of horror movies then I'd be freaked right out! I could hardley sleep the night after I saw the Blair Witch Project! :ph34r:

lovegrov Collaborator
lovegrov
Posted

You might be able to deal with this without medication, but I can't imagine you won't need counseling -- and I don't mean this as a criticism. This is some pretty serious stuff and I would think needs serious help. And this is from someone who's having anxiety attacks.

richard

joe2008 Newbie
joe2008
Posted

I'm paranoid too, but I do live in south central la, so perhaps thats not a bad thing

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Merika Contributor
Merika
Posted

From reading I've done (mostly online), the psychological symptoms of celiac are very real yet not known much about (do they stay or go post-gluten-free, etc). I suffer from agoraphobia (oddly, diagnosed by a career counselor who was initially trained as a psychologist), which showed up as anxiety soon after physical symptoms of celiac began (like within weeks). It got worse over the years before diagnosis, progressing to agoraphobia. It comes and goes in intensity. I don't have any idea if I'll have it a long time more or not.

I did, however, find a wonderful book at the library that was helpful, and have done additional reading in books and online. I'd suggest you start there.

Judging from the responses here, you are not alone :)

Merika

(big wave from Hollywood to Joe)

Guest BellyTimber
Guest BellyTimber
Posted

Lisa

Another thought struck me, I've alluded to it on 2nd March under Nightmares in the sleep pages.

If I rephrase perhaps shan't get telling off for "spamming" :lol:

I notice your post is more about nightmares than anything.

In the old days we always used to laugh about the way we tended to get weird dreams after eating cheese or pork. I think a gut-brain connection is something to be relaxed about.

Was recently going through a phase of rather vivid, impression-making dreams.

Have actually addressed my dream-making faculty & asked it not to scare me as that defeats the object of playing out the issues in a way I can learn from.

My dreams are often cheesy, corny or witty in their symbolism.

Once in a while I write the episodes down after waking, and a meaning if one occurs to me, and date it. (I'm told dream meanings are fairly individual though there may be a few universal symbols.)

Anyway the point I was getting to was they can be rather vivid staying with me for hours or days and overlaying all experience with an eerie or melancholy or otherwise unusual kind of feel.

Plenty of dreams don't seem to mean anything especially if feeling a little off colour.

Hoping that helps,

Michael

Guest BellyTimber
Guest BellyTimber
Posted

Lisa

See my posting under Sleep about using search and reading old threads.

The one started 16 March 2004 about A.S.P. just to take the only one I've been through from that period, will help you a lot I am sure.

Happy dreams

M.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
    2. Scott Adams
      - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especia...
    3. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can t...
    4. Scott Adams
      - Scott Adams commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
      1

      About Celiac Remission

      This idea comes up often, but it’s important to separate theory from what’s actually supported by evidence. In celiac disease, the immune system does not “forget” gluten in a permanent or reliable way, even after long periods of avoidance, and the celiac genes do not turn off. While antibody levels (like tTG IgA) can normalize on a strict gluten-free diet an...
    5. Scott Adams
      - Scott Adams replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      need help understanding testing result for Naked Nutrition Creatine please

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,190
    • Most Online (within 30 mins)
      7,748
    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Scott Adams
      need help understanding testing result for Naked Nutrition Creatine please

      By Scott Adams · Posted

      Gluten testing is normally reported in ppm (parts per million), which is equivalent to mg/kg, not micrograms by itself. A result of <0.025 mcg only becomes meaningful if you know the sample size tested (for example, mcg per gram or per kg). If that value represents <0.025 mcg per gram, that would equal <25 ppm, which is above the gluten-free threshold; if it’s <0.025 mcg per kilogram, it would be extremely low and well within GF limits. Without the denominator, the result is incomplete. It’s reasonable to follow up with the company and ask them to confirm the result in ppm using a validated method (like ELISA R5)—that’s the standard used to assess gluten safety.
    • Scott Adams
      Medications

      By Scott Adams · Posted

      Medication sensitivity is very real for many people with celiac and other autoimmune conditions, and it’s frustrating when that’s brushed off. Even when a medication is technically gluten-free, fillers, dose changes, or how your nervous system reacts—especially with things like gabapentin—can cause paradoxical effects like feeling wired but exhausted. The fact that it helped bloating suggests it may be affecting gut–nerve signaling, which makes sense in the context of SIBO, but that doesn’t mean the side effects should be ignored. You’re carrying a heavy load right now with ongoing skin, eye, and neurological uncertainty, and living in that kind of limbo is exhausting on its own. It’s understandable to feel overwhelmed and discouraged when systems and providers don’t meet you where you are—your experience is valid, and continuing to advocate for yourself, even when it’s hard, really does matter. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.