Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Pain & Painful "lumps"?

agorm76

By agorm76
in Related Issues & Disorders

Recommended Posts

agorm76 Newbie
agorm76
Posted

Hi! I was diagnosed with Celiac from biopsy in July & have been gluten-free since (except I just recently found out my make-up/ shampoo, etc. was not gluten-free...so now working that out of my system). I have severe stomach pains, but besides celiac nothing has shown on CT scans, ultrasounds, etc. I have gallbladder attacks and 4 painful masses in my stomach (2 upper rib cage area, 2 lower pelvic area) that shoot pain after eating--not as much anymore. The drs have looked and looked for the masses, but can't find them--they can feel them though...are they just super-sensitive spots? I was glutened the other day and felt extremely sick to my stomach and the pains started--it really put me out for a couple of days. Is this all part of Celiac? Does anyone else have masses? Will they go away with the pain? How do you know if you need surgery to repair your gallbladder--my biopsy came back looking pretty bad--the GI doctor said my stomach was extremely inflamed & lined in mucous--anyone else? He wasn't the best dr.--he basically told me I had Celiac and it is impossible to live with, but try to go on a gluten-free diet and see you later...Thanks for any help y'all may have!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MaryJones2 Enthusiast
MaryJones2
Posted

Before going gluten-free I felt like I had a golf ball in my stomach and a softball behind my naval. My doctors could never find a mass but they really felt like masses to me. They went away after a few months gluten-free and only come back now when I've been severely glutened.

agorm76 Newbie
agorm76
Posted
  • Author
Before going gluten-free I felt like I had a golf ball in my stomach and a softball behind my naval. My doctors could never find a mass but they really felt like masses to me. They went away after a few months gluten-free and only come back now when I've been severely glutened.

Thank you so much--that helps--I don't feel as crazy now

jerseyangel Proficient
jerseyangel
Posted

Trapped gas can feel like that--I used to have that happen too and it's quite painful.

gfmolly Contributor
gfmolly
Posted
Hi! I was diagnosed with Celiac from biopsy in July & have been gluten-free since (except I just recently found out my make-up/ shampoo, etc. was not gluten-free...so now working that out of my system). I have severe stomach pains, but besides celiac nothing has shown on CT scans, ultrasounds, etc. I have gallbladder attacks and 4 painful masses in my stomach (2 upper rib cage area, 2 lower pelvic area) that shoot pain after eating--not as much anymore. The drs have looked and looked for the masses, but can't find them--they can feel them though...are they just super-sensitive spots? I was glutened the other day and felt extremely sick to my stomach and the pains started--it really put me out for a couple of days. Is this all part of Celiac? Does anyone else have masses? Will they go away with the pain? How do you know if you need surgery to repair your gallbladder--my biopsy came back looking pretty bad--the GI doctor said my stomach was extremely inflamed & lined in mucous--anyone else? He wasn't the best dr.--he basically told me I had Celiac and it is impossible to live with, but try to go on a gluten-free diet and see you later...Thanks for any help y'all may have!

The other possibility is inflammation in the valve area between the stomach and the intestines. Mine get very irritated when I get D from gluten.

April in KC Apprentice
April in KC
Posted

I suffer from "C" (opposite of "D") unless glutened, and I tend to get a lump around where the ileocecal valve is that separates the small intestine from the large one...lower right quadrant...I assume this is pretty normal and just something I feel because I'm pretty thin. Eventually it moves. In my experience, it is VERY painful to add an accidental glutening on top of "C". The resulting pressure from Celiac-related gas can be excruciating.

I also get back pain under my right ribs - my gallbladder tests are fine. I actually wear a pain patch when it's bad. I have a thread about it and willl post an update if I ever get a handle on what's causing it.

If you suffer from C, consider taking Miralax or fiber daily for a while to see if it helps with the amount of pain.

Also, if you get glutened, remember that dairy may temporarily be painful to consume since your villi are damaged (lactose is digested at the tips of the villi). We have a 'rule' around our gluten-free house that if you get glutened, you stay away from dairy for several days afterwards.

Have you considered whether you're still getting glutened from food?

Are these masses something that is always there, or something that comes and goes? Do they move, or are they in the same exact places?

agorm76 Newbie
agorm76
Posted
  • Author

Thanks for all of your help! It probably is inflammation--my stomach was extremely inflamed in the biopsy. The lumps stay in the same place--and I probably do only feel them because I am so thin from gluten--but they only act up when glutened. I actually feel like it is almost impossible to be gluten-free! Am I doing something wrong--it's at least once a week that I have an attack and I'm miserable. I hate it because now instead of mostly "D" and a little "V", it has switched to almost immediate "V"--so I know for sure if I've eaten some. I'm very tired of throwing up. Any suggestions? I really appreciate everyone's comments.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MaryJones2 Enthusiast
MaryJones2
Posted

I'd recommend keeping a food diary and also keep notes about how you feel each day. Then you'll hopefully be able to nail down what is causing your problem. Revisit everything in your house and make sure it's all gluten-free. Avoid unprocessed foods and make as much from scratch using fresh foods as you can until you start feeling better.

  • 2 weeks later...
caek-is-a-lie Explorer
caek-is-a-lie
Posted

Wow I've recently had a painful lump between my sternum and my navel, too. Like in the small intestine just below my stomach. No one can figure out what it is. I went in to the dr. for something unrelated, and she found this stomach lump during the exam. They did an ultrasound but didn't see anything like a hernia or a mass. But it's there and you can feel it if you push on it and it really hurts when people push on it. It also hurts sometimes when my digestive tract is sore from eating gluten, or sometimes just when I'm eating or drinking. I sure hope it goes away with more gluten avoidance! (which I also currently feel like it's impossible to do, but I think it's just taking awhile for my body to get rid of it...I'm still new at this.)

AliB Enthusiast
AliB
Posted

Have they checked for Helicobacter? If there is a lot mucous in the stomach it may be masking it.

Check out the Specific Carbohydrate Diet - it is designed to encourage healing by removing the carbohydrates that trigger rogue bacteria and parasites. Rogue bacterial and parasitic activity is often to blame for gut problems. Many of us suffer with things like Candida which has occurred due to gut dysbiosis.

Many things can put our gut flora out of balance - drugs, stress, etc., but the worst culprit is antibiotics that kill the good guys as well as the bad leaving the gut unprotected and open to infestation by pathogens. This is only just being realised and more research is starting to be done.

The benefit of probiotics is also now being realised. Not the sweet sugary drinks that pass for probios - they are counter-productive as sugar feeds the baddies.

We have a Specific Carb (SCD) thread on the 'Other Food Intolerances and Leaky Gut Syndrome' section on this forum if you want to know more and you can get more info from the 'Breaking the Vicious Cycle' and 'Pecanbread' websites. Many of us are really benefitting from the diet.

I hope this helps.

Ali.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,231
    • Most Online (within 30 mins)
      7,748
    Jen T
    Newest Member
    Jen T
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Dr. Reddy’s Sandoz sumatriptan gluten-free?

      By knitty kitty · Posted

      I suggest you eliminate dairy from your son's diet next.  Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments.   Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I cannot consume dairy products.  Some people find they can tolerate A2 dairy without a reaction. Corn is another frequently hard to tolerate food because the protein zein in corn also resembles the protein structure of gluten.   Do research in Dr. Derrick Lonsdale and TTFD thiamine.  Taking TTFD really can make a dramatic difference, speaking from personal experience. https://hormonesmatter.com/energy-deficiency-asd/ Keep us posted on your progress!
    • Scott Adams
      Bowel issues

      By Scott Adams · Posted

      It sounds like you're doing everything right with your gluten-free diet, yet still experiencing significant discomfort, which must be frustrating. Since your stool sample came back normal but symptoms persist, pushing for further investigation—like a colonoscopy or biopsy—is a reasonable next step. You might also want to discuss the possibility of additional conditions, such as IBS, microscopic colitis, or other inflammatory issues, with your doctor. Tracking your symptoms, diet, and triggers in detail could help identify patterns. Don’t hesitate to advocate for yourself—if your current doctor isn’t addressing your concerns, seeking a second opinion or a referral to a gastroenterologist could be beneficial. You’re right to seek answers, and I hope you find relief soon. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • marbeg
      Bowel issues

      By marbeg · Posted

      Hi all, I was diagnosed with coeliac in August 2020. This was via a blood test, as it was during COVID, so I’ve never had a biopsy or colonoscopy or anything like that.    I have been following a gluten-free diet since and would expect to feel much better, however, I am still experiencing issues with my bowels. Very strict, so I know there’s no cross contamination etc.    It usually seems to be after I have had a bowel movement, my bowels feel on fire, cramping, sore and very uncomfortable. I know it isn’t normal, and isn’t right and I have saw a doctor before, I provided a stool sample and apparently everything was fine- but I know it isn’t.    I am just wondering if anyone else experiences this? What would you advise I do in regards to seeing a doctor, I was thinking of asking for a colonoscopy or biopsy, I just want to know what is going on and why I’m still experiencing this. Any advice is welcome and appreciated.. thank you. 
    • elizabethhousworth
      Dr. Reddy’s Sandoz sumatriptan gluten-free?

      By elizabethhousworth · Posted

      Thanks. My son has been on B2 for two to three years now. I found literature about B1 earlier and put him on a B1 supplement, but not thiamine tetrahydrofurfuryl disulfide specifically. He also gets D and Magnesium. He goes to his doctor in June and I am going to ask for bloodwork to look for any deficiencies. What I suspect is that he is having a gluten-like reaction to the proteins in other grains. It is well known that a small percentage of celiac patients react to the protein in oats. Oats are in gluten-free Oreos, so we removed them. He got a little better. The science with oats is pretty solid. My son's nutritionist knows about it and it is easily found in PubMed. I suspect my son is reacting to something else. The next thing that I only just removed was corn, at least things with corn protein. I need to give that a couple of months. If that doesn't work, I will try to replace his cheese with goat-milk cheese, although that will be hard.    My son was migraine free for over a year on a strict gluten-free diet before this past fall. I can test his foods for gluten and I have given in to diet rigidity. He eats my homemade refried beans and rice for lunch every day, so his rigid diet contains pretty healthy components. Given his antibody levels (tTG-IgA very low) and that I tested everything under the son that he ingests when his migraines returned and nothing tested positive for gluten, I think he really is gluten-free. So my personal working hypothesis is that he is having a reaction to a similar protein, one in another grain. However, the neurologist sees migraines come and go in lots of normal people, so it might just be that he is now having multiple (3-10) migraines monthly and it is hormonal or weather-related or something that is entirely distinct from an antibody reaction. I just would like them to go away again, as would he.    Thanks again! Elizabeth
    • knitty kitty
      Duodenum biopsy result confusion

      By knitty kitty · Posted

      Welcome to the forum, @jamiet06, Yes, it does point in that direction.  Your report says "Correlation with clinical findings and results of serological studies is recommended"  is saying you should undergo a gluten challenge and be tested for antibodies associated with Celiac Disease.   These antibodies are produced in celiac disease in response to gluten, but you have to eat generous amounts of gluten for the antibodies to show up in the bloodstream. A gluten challenge means you eat 10 grams or more of gluten  (4 to 6 slices of gluten containing bread or equivalent or more) per day for a minimum of two weeks.  
×
×
  • Create New...