Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oddest Reaction To Gluten?

Eric-C

By Eric-C
in Coping with Celiac Disease

Recommended Posts

Eric-C Enthusiast
Eric-C
Posted

Thought this might be interesting...

Who here has the strangest reaction to gluten?

I think I rank up there and its an odd one.

I didn't really put it together until I had my last gluten incident but...and trust me, this is strange...

When I've had gluten, been glutened and the few weeks following recovery...

I look at the clock, two times a day, when its exactlty 9:11.

I don't care if I'm in the car, at the house, hell a few times I've even checked the guide for whats coming up on TV, and its 9:11.

I have no reason to look at the clock, but I'll always look at one, computer, laptop, you name it, at 9:11.

Religiously...2 times per day, ever day.

I can be in the middle deep thought and I'll stop, look at the clock, and its 9:11.

No gluten, no checking the time...and its never 9:11.

If I look at a clock 10 times a day, 2 of those times, without fail, it will be 9:11.

Anyone else have an oddity like that? BTW, I'm not joking around at all, dead serious. It freaked me out for a while :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sugarsue Enthusiast
sugarsue
Posted
I can be in the middle deep thought and I'll stop, look at the clock, and its 9:11.

No gluten, no checking the time...and its never 9:11.

Wow, totally weird. I don't know what to make of it, but it is an interesting thing to track. And why 9:11 (also bringing up references to September 11th).

maile Newbie
maile
Posted

is it possible that 9.11 is the time at which you consumed gluten???

whistle Rookie
whistle
Posted
Wow, totally weird. I don't know what to make of it, but it is an interesting thing to track. And why 9:11 (also bringing up references to September 11th).

Or maybe a reference to emergency - 911

I've had weird things like that happen to me, but I just started the diet so haven't been glutened yet. I'll see what happens.

.....life can be so strange....

:rolleyes::blink::rolleyes:

Eric-C Enthusiast
Eric-C
Posted
  • Author

I don't know why its only 9:11...no reference to anything else in my life, September 11th or otherwise.

Even when I was almost completely better, I'd still look up at the clock at 9:11.

The only reason I posted this was I was glutened about a month ago, and for two weeks after I went through the whole 9:11 thing...it had been so long I forgot about it.

whistle Rookie
whistle
Posted
I don't know why its only 9:11...no reference to anything else in my life, September 11th or otherwise.

Maybe the number itself has no significance, other than it's a number that makes you notice it. Maybe the whole point is that you take notice.

When I notice stuff like that, it gives me faith that there's more going on here than meets the eye. And that helps me get through difficult times.

:)

LadyCyclist87 Apprentice
LadyCyclist87
Posted

Haha...awesome :P:D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MrsG Newbie
MrsG
Posted
:o Eric_C - please check your private messages (e-mail) Thanks, MrsG
MrsG Newbie
MrsG
Posted

:o

Thought this might be interesting...

Who here has the strangest reaction to gluten?

I think I rank up there and its an odd one.

I didn't really put it together until I had my last gluten incident but...and trust me, this is strange...

When I've had gluten, been glutened and the few weeks following recovery...

I look at the clock, two times a day, when its exactlty 9:11.

I don't care if I'm in the car, at the house, hell a few times I've even checked the guide for whats coming up on TV, and its 9:11.

I have no reason to look at the clock, but I'll always look at one, computer, laptop, you name it, at 9:11.

Religiously...2 times per day, ever day.

I can be in the middle deep thought and I'll stop, look at the clock, and its 9:11.

No gluten, no checking the time...and its never 9:11.

If I look at a clock 10 times a day, 2 of those times, without fail, it will be 9:11.

Anyone else have an oddity like that? BTW, I'm not joking around at all, dead serious. It freaked me out for a while :)

MrsG Newbie
MrsG
Posted

:o

Eric_C,

I too, have this reaction! When I read your post, I was in shock! I saw this time only on the clock and I saw it 2 times a day BEFORE my official diagnosis. When I saw this time on the clock - I would get sick. I saw it for about 7 months before I even told my husband that something is just not right. I stopped seeing it for a few weeks now and then, however, It has been a year and I am now starting to see it again, not to mention I have new symptoms. I cannot relate this time with anything either. It only recently hit me that my official dx date was on Sept, 11 - this is the day that they gave me the news. I got worse and the Dr. that gave me this info was a GI that did not help me at all. At first, I was ok then- I became worse (I vomit when glutened). My husband searched for Dr. Gary Gray at Stanford Medical who gave me second testing and guess what? Anti-bodies where so high that he could not understand if I have been on this diet as they call it - I should be better. Now, I am still very carefull (own microwave, fridge - you name it) Yet its like starting all over again.

I do not know what to say to this. Only that I completley understand the strange behavior and I am so fustrated, as I do not look at the clock on purpose - I feel maybe it is a warning like "Emergency something bad is going to happen to you". Please, keep me posted on your findings as I will do the same. May the Lord help us, MrsG

bjn555 Newbie
bjn555
Posted

OMG! Before I eliminated gluten, I looked at the clock every hour at 11 minutes past, 3:11, then 4:11, etc. from the first hour I was awake until going to bed. I told my pastor, thinking God was trying to tell me something, only to be met with a confused look and no explanation. LOL I had totally forgotten that until now! Wow, there has to be a connection somewhere!

teemaree Apprentice
teemaree
Posted

Here is something not quite the same as the clock watching, But I also have noticed a dramatic change.

Before going Gluten free, my mind was always in fog and had headaches and at times thought I was going crazy. But I was astonished that I could predict things. I did seem to have a sixth sense, very strong intuition or what ever you might want to call it?

And I would get these premonitions, normaly when my mind was blank while doing the washing up, or sitting quietly. It was like a little voice that would say...

things such as ....

Watch out , in the next couple of days you will have a flat tyre, beware...

or a certain person has died...

or a family member is quite ill, you need to call them...

Or your son will have problems with an accident with his knee..

Or you are going to win a certain competition

Or you need to act fast to defuse a problem that is about to occur,

It would amaze my son and husband and friends, at how perceptive I always was. And they all just knew that if I said something was going to happen, they really knew it would come true!...

Although it was only major things I would tell them about, because I would get rather concerned and I always knew I couldn't change the outcome by saying it out loud, and I would also frett about that!

But constantly there were lots of minor things that I never mentioned out loud, that would happen.

But since going Gluten free, I don't seem to get these messages any more?

I was so use to having them all the time, that it really did become part of my life.

But now that my mind is fresher ("fresher", thats the word I use, and my thinking is clearer, and no longer have headaches)... and I no longer have the clouded brain and heavy doom and gloom enveloping my thinking. I am not getting these premonitions any more?

Maybe the clock checking was like a premonition for you? You just got the message in your brain to look at the clock at that time each day...

maybe or maybe not the time had significance, but it was a driven premonition to look at the clock .

I now wonder if the foggy brain and other chemicals released in the body when glutened, actually made us more perceptive on a different level?

I have read that some were more creative in an art sense than they are with going gluten free.

Honestly though, I would rather have the clear brain that comes with going gluten-free , than the horrid feelings my brain would endure before going gluten-free.

But there really does seem to be a relation here, Does anyone else here relate to any of this?

  • 1 month later...
njdevsfan09 Newbie
njdevsfan09
Posted

I am the same way. I see 3:11 at least once a day. Not necessarily on the clock either. Itll be out of nowhere. Ill be driving, look at a house and the house number is 311. driving by a drug store and there was a sign saying soday 3/$11. Everyday I see 311. Its very strange

  • 1 month later...
princesskill Rookie
princesskill
Posted

i always look at the clock at 10:08, i really dont think it has anything to do with gluten though. i know a lot of people that look at the clock at the same time every day and they arent celiac.

Jamie Contributor
Jamie
Posted

Yeah... I'll always look at the clock when it's 11:11... because I always want to make a wish... it used to freak me out... that every day I would catch 11:11.. twice a day...but it's really something called confirmation bias. It means that you are so concentrated on that time... that you are not paying attention to all of the other times you look at the times... but you pay attention to that one time.

I could look at the clock 20 times a day... and if I happen to see 11:11 twice... it's really not that big of a deal.. I just make it out to be because thats the special time I'm really paying attention to.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Haugeabs
      - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil. Gluten free but not certified gluten free. Soy free, GMO free.
    2. trents
      - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even...
    3. Wheatwacked
      - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      That is the goal, after all.
    4. Wheatwacked
      - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine. Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years. Doctor recently said to not stop. My 25(OH)D is around 2...
    5. Known1
      - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing your thoughts. I respectfully disagree. You cherry picked a small section from the page. I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748
    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Haugeabs
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Haugeabs · Posted

      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By trents · Posted

      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Wheatwacked · Posted

      That is the goal, after all.  
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Known1 · Posted

      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.