Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

You Want To Read This!


Guest DawterAod

Recommended Posts

phakephur Apprentice

I think it's likely that if this pill becomes available, most doctors (at least in the United States) will summarily prescribe the drug for their newly diagnosed celiac patients without discussing the gluten free diet as a viable option. After all, isn't it the birthright of every American to shove anything indiscriminately down his piehole and take a pill to counteract the symptoms that arise from eating toxic food? The prospect of going gluten free for life is overwhelming initially, so I think the option of taking a pill before meals will be seductive for a lot of people who are newly diagnosed.

I feel fortunate to have adjusted to a gluten-free diet before this pill hits the market. I'm skeptical that the drug regimen described in this article will actually promote health in the patient. But 2 years ago if that had been presented to me as an option for symptom suppression I probably would have jumped at it.

Also, I completely resent the fact that celiacs, even those who are feeling well by managing their health through diet, are almost invariably refered to in these news articles as "sufferers".

Sarah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

I agree with Sarah 100%...and that's why I'm afraid of this pill in a sense--the gluten-free diet might become...near obsolete......

KaitiUSA Enthusiast

Yeah I agree with Sarah and celiac3270 there....I think it will just cause more problems and what they do best here is cover the symptoms(and cause more problems with side effects) not take away the root problem...

MySuicidalTurtle Enthusiast

The pill is only for gastrointestinal pain. I am so senesitve to gluten now that it gives me rashes, itchy eyes, and all that jazz. There are also people who suffer headaches and breathing reactions. The pill can only "fix" the stomach problems so what about the rest?

debmidge Rising Star

Agree w/Sarah & celiac3270. Food manufacturers would then get lazy and not want to label the food properly as there's a "pill." What about people who could not afford this Pill & don't have prescription plan/insurance? What if the prescription plan/insurance won't pay for it? For example: Lactaid is OTC and not available as prescription; therefore, it's out of pocket expense. Nice that they make something to help ameloriate the symptoms (and re-action) but not realistic in terms of availability then.

ianm Apprentice

A pill to reduce the problems caused by getting accidently nailed by gluten would be great. A pill just so I can eat crap is just plain stupid. I much prefer the lifestyle I am forced to live because of this disease. This disease took away so much from me but the lifestyle I am now forced to live has given me so much more. Doctors are so clueless about health and nutrition as it is that another pill is just going to make matters worse. We don't need this kind of"cure." This is just another way for drug and agribusiness companies to take more of our money to buy things we don't need in the first place.

Ianm

Guest BellyTimber

There is a disturbing trend to the publicity that is being aimed against the gluten-free lifestyle even by support orgnisations that ought to know better, I was complemented by the hospital dietitian for the variety in my diet (which I maintain if I can).

The gluten-free diet is not restrictive because we can discover foods that are relatively fibre, mineral and protein rich that hardly anyone else eats because they "get away" with the usual diet which is the truly restrictive one.

We support a more varied economy and ecology which it is all the rage for authorities to pay lip service to.

There are already gut remedies, any additional developments would probably be good. It would probably have a more marked effect on small children but they will still have to be periodically monitored for what effect gluten is having on them - as so many groups of people need really.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rikki Tikki Explorer

The only real reservation

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,956
    • Most Online (within 30 mins)
      7,748

    Srowton
    Newest Member
    Srowton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.