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phakephur Apprentice

I think it's likely that if this pill becomes available, most doctors (at least in the United States) will summarily prescribe the drug for their newly diagnosed celiac patients without discussing the gluten free diet as a viable option. After all, isn't it the birthright of every American to shove anything indiscriminately down his piehole and take a pill to counteract the symptoms that arise from eating toxic food? The prospect of going gluten free for life is overwhelming initially, so I think the option of taking a pill before meals will be seductive for a lot of people who are newly diagnosed.

I feel fortunate to have adjusted to a gluten-free diet before this pill hits the market. I'm skeptical that the drug regimen described in this article will actually promote health in the patient. But 2 years ago if that had been presented to me as an option for symptom suppression I probably would have jumped at it.

Also, I completely resent the fact that celiacs, even those who are feeling well by managing their health through diet, are almost invariably refered to in these news articles as "sufferers".

Sarah


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celiac3270 Collaborator

I agree with Sarah 100%...and that's why I'm afraid of this pill in a sense--the gluten-free diet might become...near obsolete......

KaitiUSA Enthusiast

Yeah I agree with Sarah and celiac3270 there....I think it will just cause more problems and what they do best here is cover the symptoms(and cause more problems with side effects) not take away the root problem...

MySuicidalTurtle Enthusiast

The pill is only for gastrointestinal pain. I am so senesitve to gluten now that it gives me rashes, itchy eyes, and all that jazz. There are also people who suffer headaches and breathing reactions. The pill can only "fix" the stomach problems so what about the rest?

debmidge Rising Star

Agree w/Sarah & celiac3270. Food manufacturers would then get lazy and not want to label the food properly as there's a "pill." What about people who could not afford this Pill & don't have prescription plan/insurance? What if the prescription plan/insurance won't pay for it? For example: Lactaid is OTC and not available as prescription; therefore, it's out of pocket expense. Nice that they make something to help ameloriate the symptoms (and re-action) but not realistic in terms of availability then.

ianm Apprentice

A pill to reduce the problems caused by getting accidently nailed by gluten would be great. A pill just so I can eat crap is just plain stupid. I much prefer the lifestyle I am forced to live because of this disease. This disease took away so much from me but the lifestyle I am now forced to live has given me so much more. Doctors are so clueless about health and nutrition as it is that another pill is just going to make matters worse. We don't need this kind of"cure." This is just another way for drug and agribusiness companies to take more of our money to buy things we don't need in the first place.

Ianm

Guest BellyTimber

There is a disturbing trend to the publicity that is being aimed against the gluten-free lifestyle even by support orgnisations that ought to know better, I was complemented by the hospital dietitian for the variety in my diet (which I maintain if I can).

The gluten-free diet is not restrictive because we can discover foods that are relatively fibre, mineral and protein rich that hardly anyone else eats because they "get away" with the usual diet which is the truly restrictive one.

We support a more varied economy and ecology which it is all the rage for authorities to pay lip service to.

There are already gut remedies, any additional developments would probably be good. It would probably have a more marked effect on small children but they will still have to be periodically monitored for what effect gluten is having on them - as so many groups of people need really.


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    • Aretaeus Cappadocia
      Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website for a drop location in your area. Each drop location has a local volunteer(?) coordinator who coordinates with the local customers. I go to a drop 4-5 miles from my home that delivers every 2 weeks. We seem to range from 8-18 customers at a given delivery. The downside of the drop is that you have to be there when they say. They give you a few days notice of the precise time, though, and they are punctual. Their pricing relative to other vendors for various products ranges from best price to overpriced, so you have to shop and compare. Quality is mostly good but once in a while you get a dud - however they've been very responsive to giving me a credit on the few occasions when I've complained. In my opinion, they are not as transparent about gluten as they could be. Some products are labeled "gluten free" and so far I trust that. Many products are labeled "Azure Market products are re-packaged by Azure for your convenience in a facility that meets Food Safety Modernization Act (FSMA) standards, including an approved allergen control program." I've corresponded with them over this and they all but say this means gluten free. I've come to trust this, with a little nervousness, but I wish they would be more explicit. They also sell a lot of gluten-containing products. Frankly, I think they are overlooking a business opportunity to become a trusted source for the gluten-free community by not being more clear about gluten. Among Azure products I've purchased are "Walnuts, Baker's Pieces, Raw", "Cashews, Raw, Large White Pieces, Organic" and "Missouri Northern Pecan Grower Pecans Fancy Native, Raw, Halves". The walnuts and cashews were very good and the pecans were fabulous. For almonds, I've been buying Blue Diamond unsalted when they go on sale (mostly from Safeway). The salted ones are probably fine too but the flavored ones I avoid now that I am gluten-free. I also buy products including nuts from CostCo (cashews, shelled pistachios). Their nuts usually contain a "made in a facility that processes wheat" statement, which is scary. I've contacted customer service about various Kirkland products and they will usually give you a response <<for a specific lot>> whether it really was made in a wheat facility (sometimes yes sometimes no). For the "Kirkland Signature Fancy Whole Cashews, Unsalted, 40 oz" and "Kirkland Signature Shelled Pistachios, Roasted & Salted, 1.5 lbs", I got a "safe" answer and I ate them. I got an "unsafe" answer once for "Kirkland Signature Fancy Whole Cashews with Sea Salt, 2.5 lbs" and "Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs" and I don't look at these anymore. Again, these answers were given for specific lots only. They will accept an unopened return for cash if you find out you don't want it. Costco also sells "Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs" that are labeled gluten free. My celiac kid eats them all the time. I pretty much only eat food that I prepare myself from scratch. My celiac symptoms are not that overt, so I can't say for certain I could identify a glutening. However, my antibody levels dropped 25 fold (into normal range) since my dx earlier this year. Hope this helps.
    • Jmartes71
      Doterra literally has saved my life hands down.Nateral supplements that really are pure grade and does work organically with ones body. I had to stop all my nateral supplements to be a good puppet for medical so I can get the financial help that my body won't allow me to do more days than not these days, every day with menopause.....Not feeling well.Had to switch " medical team" because I was told I wasn't celiac though I am gluten-free since 1994! I am also positive HLA-DQ2. I think doctors down play it because on quest lab work it states " However 39% of the U.S  general population carry these HLA-DQ variants, as a consequence, the presence of HLA-DQ2 or  DQ8 or both variants is not perse diagnostic of celiac disease". Hintz the down playing of celiac disease......This needs to change because doctors seem to down playe it because when I showed the past 2nd and 3rd  doctors that I waisted my time on this year showed my that line and absolutely down played it.4th pcp this year.I live in Patterson California and would love for a few of us to go to mayors office and make this disease heard
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    • Russ H
      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain more gluten than the generally accepted as safe daily limit of 10 mg. I have seen gluten-free beers testing at between "undetectable" and 5-10 ppm. I have also seen a report of a positive home test on Daura Damm, which is sold as gluten-free beer - the manufacturer did not respond to the tester's query.
    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
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