Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Gosh, I Miss My Soy-milk!


Dejaunee

Recommended Posts

Dejaunee Newbie

Scott, about two plus years back I spoke with you by phone.

I tested positive for celiac disease back in 97. I was hit with it in 94. But you know well how, back then, diagnosis of the disease was rare. In my case it came only after much research and effort on my part and then only after requesting I be tested for it. Given my symptoms were in line with celiac disease.

Reason for this correspondence is: for the past several years I have been able to enjoy but one of the many Soy milks on the market.

Given that the protein is the offending culprit often in celiac disease patients, somehow this one brand had it just right. And as I said, for years I relished the drink and the nutritive value in it.

Ruefully, last year they decided to add organic cane sugar to it. Dang! For me, sugar is out. The enzymes needed to digest it lost from the damage done to the villi before proper diagnosis of celiac disease and the implementing of the subsequent "offender-free" diet.

As I am sure you know, in sever cases eliminating only gluten is not enough. Lactose, sucrose, fructose, etc., all can be problematic to the Celiac patient.

Though I know my case is a sever one, I know I am not alone there. Hence my contacting you today.

I believe there must be others out there who also were limited to this one agreeable product that is now being made with sugar, and as such, no longer agreeable.

I have contacted the company and pressed the need that they return the original recipe for folks with sever celiac, not able to have sugars or concentrated forms of the soy or rice protein.

Seems if they received sufficient calls they would perhaps be inclined to provide this formerly cherished, not to mention nutritious, beverage for those of us with sever Celiac.

The product info is: WESTSOY PLUS; SOYMILK-vanilla or regular

made by: HAIN CELESTIAL GROUP, INC. #1-800-SOY-MILK

Your help is greatly appreciated.

Debi M. Brand

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Silk makes an unsweetened soy milk that is gluten free.

Link to comment
Share on other sites
Lily Rookie

Eden Foods makes a Rice/Soy blend that is free of sugar. Soy dream agrees with me, but so far those are the only 2.

Lily

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,223
    • Most Online (within 30 mins)
      7,748

    Bookwormh57
    Newest Member
    Bookwormh57
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Smith-Ronald
      Enlarged lymph nodes in neck and groin with celiac are not uncommon. They can take time to reduce even after going gluten-free. Monitoring is key.
    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
×
×
  • Create New...