Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take For Detox Symptoms To Go Away,


CGally81

Recommended Posts

CGally81 Enthusiast

I'm really hoping my detox symptoms, which have gotten pretty nasty in the past week or so (but are also somewhat dying down, thankfully), go away soon. Along with the super hunger, but that actually is noticably (slowly) decreasing too.

Anyway, before I went gluten-free, or figured out what was up with tons of internet searches and self-diagnosis, I had the GI symptoms for like ~5 months. I know for a fact it happened this year, because I remember feeling great during Christmas vacation 2008, so I definitely got the symptoms this year. Just don't remember when, but I'd say I was having GI symptoms for less than 6 months.

Well, since I only had overt symptoms for 6 months at most, I'm hoping my detox period should be short. I'm 28 years old, so if I'd actually been having more covert symptoms for years (i.e. gut damage, which is possible, as I developed fructose malabsorption last year and had to give up apples) and not realized it, then I'm probably in for a longer detox than I'd think before I get back to feeling normal again.

So, how about the rest of you guys? How long did you have your symptoms before you went gluten-free? And how long did it take after going gluten-free to feel normal again?

It would be interesting to see the relationship between the two values.

EDIT: Oops! Wrong board! This belongs on the post-diagnosis board, I think. Could an admin move this there? I'm sorry.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

My earliest clue might have been lactose intolerance in high school which took me a few years to figure out. I started having the brain fog, fatigue, insomnia and a much harder time concentrating about 5th grade. I don't know if that's related or no.

I didn't have any trouble with my stomach until my daughter was about 2 YO, I was about 32. After that, things went downhill. I self diagnosed at age 49 so that's long time if it's all related.

GottaSki Mentor

Since being diagnosed just over 5 months ago, I have discovered that I had celiac symptoms most of my life. I'm 44.

Except for a few teen years where I was eating next to nothing I've always been slightly bloated and had periodic unexplained stomach trouble/flu like symptoms which included achy joints etc. When I'd go to the doctor I'd complain of general fatigue, soreness and occasional upset stomach. Episodes got worse, but livable. I continued to tell the docs that I eat a very balanced diet and get A LOT of exercise, yet I have had unexplained weight gain for years...docs could never find anything except anemia - and made it clear they thought it was all in my head.

The past 8 years symptoms increased until in 2008 I was extremely bloated and sick all the time, especially in the warmer months. I kept on my doctor because it was obvious something was going on -- there was a hit on low Vitamin D and finally after 50 blood tests she ran my tTG -- only slightly positive but positive. I was given referral to GI and told to ask for someone that "wants a Celiac Sprue case". Turns out we have one of the best Celiac facilities right here at UCSD, unfortunately it took 26 years of UCSD primary docs to get me pointed in the right direction. My biopsy confirmed moderate to severe damage from Celiac Disease.

I've been gluten-free for 5 months and my digestive system has improved...I hardly bloat anymore. I was really hungry for about the first two months. Unfortunately my fatigue, joint pain and heat intolerance have become much worse. Still looking into other possibilities for some of my symptoms, but remain hopeful that gluten-free time will bring more healing and I'll be able to claim a solid timeline for how long it took to heal.

Each time I read of someone being diagnosed much younger than I it makes me very happy and grateful that some doctors seem to be getting better training to look for Celiac -- although there is a long way to go on that front.

Improved health to you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,372
    • Most Online (within 30 mins)
      7,748

    cianb4121
    Newest Member
    cianb4121
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.