Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take For Detox Symptoms To Go Away,


CGally81

Recommended Posts

CGally81 Enthusiast

I'm really hoping my detox symptoms, which have gotten pretty nasty in the past week or so (but are also somewhat dying down, thankfully), go away soon. Along with the super hunger, but that actually is noticably (slowly) decreasing too.

Anyway, before I went gluten-free, or figured out what was up with tons of internet searches and self-diagnosis, I had the GI symptoms for like ~5 months. I know for a fact it happened this year, because I remember feeling great during Christmas vacation 2008, so I definitely got the symptoms this year. Just don't remember when, but I'd say I was having GI symptoms for less than 6 months.

Well, since I only had overt symptoms for 6 months at most, I'm hoping my detox period should be short. I'm 28 years old, so if I'd actually been having more covert symptoms for years (i.e. gut damage, which is possible, as I developed fructose malabsorption last year and had to give up apples) and not realized it, then I'm probably in for a longer detox than I'd think before I get back to feeling normal again.

So, how about the rest of you guys? How long did you have your symptoms before you went gluten-free? And how long did it take after going gluten-free to feel normal again?

It would be interesting to see the relationship between the two values.

EDIT: Oops! Wrong board! This belongs on the post-diagnosis board, I think. Could an admin move this there? I'm sorry.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

My earliest clue might have been lactose intolerance in high school which took me a few years to figure out. I started having the brain fog, fatigue, insomnia and a much harder time concentrating about 5th grade. I don't know if that's related or no.

I didn't have any trouble with my stomach until my daughter was about 2 YO, I was about 32. After that, things went downhill. I self diagnosed at age 49 so that's long time if it's all related.

GottaSki Mentor

Since being diagnosed just over 5 months ago, I have discovered that I had celiac symptoms most of my life. I'm 44.

Except for a few teen years where I was eating next to nothing I've always been slightly bloated and had periodic unexplained stomach trouble/flu like symptoms which included achy joints etc. When I'd go to the doctor I'd complain of general fatigue, soreness and occasional upset stomach. Episodes got worse, but livable. I continued to tell the docs that I eat a very balanced diet and get A LOT of exercise, yet I have had unexplained weight gain for years...docs could never find anything except anemia - and made it clear they thought it was all in my head.

The past 8 years symptoms increased until in 2008 I was extremely bloated and sick all the time, especially in the warmer months. I kept on my doctor because it was obvious something was going on -- there was a hit on low Vitamin D and finally after 50 blood tests she ran my tTG -- only slightly positive but positive. I was given referral to GI and told to ask for someone that "wants a Celiac Sprue case". Turns out we have one of the best Celiac facilities right here at UCSD, unfortunately it took 26 years of UCSD primary docs to get me pointed in the right direction. My biopsy confirmed moderate to severe damage from Celiac Disease.

I've been gluten-free for 5 months and my digestive system has improved...I hardly bloat anymore. I was really hungry for about the first two months. Unfortunately my fatigue, joint pain and heat intolerance have become much worse. Still looking into other possibilities for some of my symptoms, but remain hopeful that gluten-free time will bring more healing and I'll be able to claim a solid timeline for how long it took to heal.

Each time I read of someone being diagnosed much younger than I it makes me very happy and grateful that some doctors seem to be getting better training to look for Celiac -- although there is a long way to go on that front.

Improved health to you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,565
    • Most Online (within 30 mins)
      7,748

    Gma Marsh
    Newest Member
    Gma Marsh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.