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Fever After Eating Gluten


kors

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kors Rookie

I am on day 6 of a gluten challenge - it is horrible, and I don't think I will continue. After being gluten free/dairy free for 3 weeks (and feeling great) - my doc wanted more blood work. The weird thing that I have noticed is that I have been running a low grade fever after eating gluten (99 - 100). Has this happened to anyone? I don't "feel" sick - have no sinus issues, cough, UTI, etc., just some tummy issues. My doc has no idea (typical), but a gal at the gluten free store said that since Celiac is an auto-immune disorder, a fever could be my bodies way of attacking the gluten? Just wondering if I am the only one who has had this problem. I don't feel like going on needless antibiotics if I don't feel sick.

I so appreciate this forum - so glad to know that I am not alone!


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GlutenFreeManna Rising Star

Yep. Unexplained fevers/chills were one of my symptoms. At one point it was so bad I thought I was going through early menopause (I'm 30). I hope you can get your testing done without causing too much damage to your body with this trial. Just curious--What is your reason for needing the additional testing? I can't bare the thought of going through that pain again just to have positive result in a file somewhere.

taweavmo3 Enthusiast

My daughter does...she's running one right now, after a glutening on Sunday. I brought her in to the doctor today, since it's day 4 of fever. Nothing could be found, so I'm assuming it's her immune system gone awry. Hope your challenge goes okay and you get to feeling better soon!

Mari Enthusiast

Hi Kors,

Enterolab offers more sensitive fecal tests for celiac disease. You can write them and describe what you've been doing and ask if their tests would be OK.

Celiacs are often infected with Lyme disease. I had that problem for years with a low grade fever - 100 or less. There is a good test for this and my blood test went from negative to positive when I went gluten-free. Drs offer a course of antibiotics which has many side effects so I decided to use hemeopathic drops available from a local ND and now I'm free of Lyme's.

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      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
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