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Fever After Eating Gluten


kors

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kors Rookie

I am on day 6 of a gluten challenge - it is horrible, and I don't think I will continue. After being gluten free/dairy free for 3 weeks (and feeling great) - my doc wanted more blood work. The weird thing that I have noticed is that I have been running a low grade fever after eating gluten (99 - 100). Has this happened to anyone? I don't "feel" sick - have no sinus issues, cough, UTI, etc., just some tummy issues. My doc has no idea (typical), but a gal at the gluten free store said that since Celiac is an auto-immune disorder, a fever could be my bodies way of attacking the gluten? Just wondering if I am the only one who has had this problem. I don't feel like going on needless antibiotics if I don't feel sick.

I so appreciate this forum - so glad to know that I am not alone!


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GlutenFreeManna Rising Star

Yep. Unexplained fevers/chills were one of my symptoms. At one point it was so bad I thought I was going through early menopause (I'm 30). I hope you can get your testing done without causing too much damage to your body with this trial. Just curious--What is your reason for needing the additional testing? I can't bare the thought of going through that pain again just to have positive result in a file somewhere.

taweavmo3 Enthusiast

My daughter does...she's running one right now, after a glutening on Sunday. I brought her in to the doctor today, since it's day 4 of fever. Nothing could be found, so I'm assuming it's her immune system gone awry. Hope your challenge goes okay and you get to feeling better soon!

Mari Contributor

Hi Kors,

Enterolab offers more sensitive fecal tests for celiac disease. You can write them and describe what you've been doing and ask if their tests would be OK.

Celiacs are often infected with Lyme disease. I had that problem for years with a low grade fever - 100 or less. There is a good test for this and my blood test went from negative to positive when I went gluten-free. Drs offer a course of antibiotics which has many side effects so I decided to use hemeopathic drops available from a local ND and now I'm free of Lyme's.

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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