Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This Board. Have ?'s Endoscopy Friday


taranallan

Recommended Posts

taranallan Newbie

Hi Everyone :-)

I am new to this board & on the very frustrated. Basically this is my history. Have always battled severe iron deficiency anemia (we think it is because of severe endometriosis, but now I wonder). Fatigue. GERD. Joint pain. Fibromyalgia. IBS (with constipation) Chronic allergies. Some food allergies but we haven't figured out what I am allergic to yet(I sneeze many times after every meal, if that makes sense). Had a hysterectomy back in January of this year. Diagnosed with an ileus on the 18th of January. It resolved, but nause & vomiting did not. Hospitalized for nausea & vomiting from the 18th - 31st of January. Lost 20 pounds during hospital stay. Only gained back about 3 pounds. Still having problems with the nausea & vomiting. Only thing I can keep down are bland foods such as crackers, macoroni & cheese, Slim-Fast, Boosts, toast, etc (even though I do sneeze after eating these foods indicating that I am allergic to something in them). Saw G.I. Dr last week. Immediately ordered an Endoscopy & flex sig for this Friday. What does all this sound like to you? Hubby & I have questioned ourselves in the past about the possibility of it being Celiac disease. Also for those of you who have had an endoscopy, can you please shed some light on it? Dr is going to do it under twilight sedation. Any information would be greatly appreciated.

Thanks,

Tara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi Tara, welcome.

I am sorry you have had all those health problems. It sounds like you have been through a lot.

I have had an endoscopy, it's not bad at all. Yes they put you in a twilight, my doc used "versed" via IV. As soon as he gave me the meds I do not remember anything. Some docs spray your throat I guess to numb it and keep you from gagging but my doc said the taste of the spray was a lot worse than gagging so he did not use it and I did not feel a thing. I woke up and was fine, a little sleepy but felt good.

I hope you get some answers soon, you will be in my thoughts and prayers :)

Dwight Senne Rookie

My endoscopy was also done under twilight sedation. No problems. Don't remember a thing! Very grogy when I woke up and for several hours after, but otherwise, felt fine. I would consent to having another one done tommorrow without hesitation.

While there are no hard and fast symptoms for every Celiac, I would have to question your case - I would be surprised if you are diagnosed with Celiac. Have you had the Celiac panel (blood tests) done? That would be a good first step prior to the endoscopy.

Although, for me, it was backwards. My doctor did not begin suspecting Celiac until he was performing the endoscopy and seen the tell tale inflamation. Fortunately, his suspicions were strong enough that he took biopsies right away. Before he even got the biopsy results, he asked me to get the Celiac panel done. I failed both and have been gluten free ever since!

Have you discussed the possiblity of Celiac with your Dr.? You should prior to the endoscopy. At least plant the seed in his/her brain so that when they are doing the procedure, the thought will be with them. You can also request biopsies to be taken during the procedure. However, if your doctor does not feel they are justified, your insurance may not cover that part of it.

Best wishes!

Dewey

Marion, IA

judy04 Rookie

Hi Tara,

I'm sorry that you are so ill, I know how you must be feeling.

I have an allergy to wheat. For 3 years I had red, sore, itchy

eyes. My allergist insisted it was "environmentally" caused

by trees, grass, and mold. I had allergy shots, antibiotics,

but nothing helped. In March of 03 I began having GI

problems, nausea, diarrhea, bloating all occuring after eating.

I had gb scans,colonoscopy, and endoscopy. My GI doc

came up w/diagnosis of GERD, IBS, and I had one tiny polyp

in my colon. He gave me fiber pills (they help both constipation

and diarrhea) and a small dose of an antidepressent then

told me to eat a high fiber diet. I improved a little but in Oct 03

I went back and told him I was still sick and having right-sided pain

so hr suggested a Celiac Panel be done, it came back neg for

celiac disease but slight positive for wheat. He told me to avoid wheat,

rye, barley, and distilled vinegar, never told me anything

about gluten or this diet. Fortunately I have been An RN all

of my life so I began to do research, found this site and

learned a lot.

As far as the Endoscopy, the only part I didn't like was

the solution they sprayed in my throat, it had a strong

banana taste. I didn't go completely out, I had Versed,

which he said would wipe out my memory of the procedure,

it didn't but it wasn't unpleasant, the nurses were very

kind and I got colored pictures of my problem areas.

I had to stay in recovery for 30 min., then got up,

went home and slept all day.

I never sneezed around wheat but both my mother and

Grandmother would sneeze about 15 times in a row.

They both had GI problems but not allergies as I have known them.

I hope this helps, I wish you the best of luck in your search for answers..

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    2. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,412
    • Most Online (within 30 mins)
      7,748

    Susan Marble
    Newest Member
    Susan Marble
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.