Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This Board. Have ?'s Endoscopy Friday


taranallan

Recommended Posts

taranallan Newbie

Hi Everyone :-)

I am new to this board & on the very frustrated. Basically this is my history. Have always battled severe iron deficiency anemia (we think it is because of severe endometriosis, but now I wonder). Fatigue. GERD. Joint pain. Fibromyalgia. IBS (with constipation) Chronic allergies. Some food allergies but we haven't figured out what I am allergic to yet(I sneeze many times after every meal, if that makes sense). Had a hysterectomy back in January of this year. Diagnosed with an ileus on the 18th of January. It resolved, but nause & vomiting did not. Hospitalized for nausea & vomiting from the 18th - 31st of January. Lost 20 pounds during hospital stay. Only gained back about 3 pounds. Still having problems with the nausea & vomiting. Only thing I can keep down are bland foods such as crackers, macoroni & cheese, Slim-Fast, Boosts, toast, etc (even though I do sneeze after eating these foods indicating that I am allergic to something in them). Saw G.I. Dr last week. Immediately ordered an Endoscopy & flex sig for this Friday. What does all this sound like to you? Hubby & I have questioned ourselves in the past about the possibility of it being Celiac disease. Also for those of you who have had an endoscopy, can you please shed some light on it? Dr is going to do it under twilight sedation. Any information would be greatly appreciated.

Thanks,

Tara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi Tara, welcome.

I am sorry you have had all those health problems. It sounds like you have been through a lot.

I have had an endoscopy, it's not bad at all. Yes they put you in a twilight, my doc used "versed" via IV. As soon as he gave me the meds I do not remember anything. Some docs spray your throat I guess to numb it and keep you from gagging but my doc said the taste of the spray was a lot worse than gagging so he did not use it and I did not feel a thing. I woke up and was fine, a little sleepy but felt good.

I hope you get some answers soon, you will be in my thoughts and prayers :)

Dwight Senne Rookie

My endoscopy was also done under twilight sedation. No problems. Don't remember a thing! Very grogy when I woke up and for several hours after, but otherwise, felt fine. I would consent to having another one done tommorrow without hesitation.

While there are no hard and fast symptoms for every Celiac, I would have to question your case - I would be surprised if you are diagnosed with Celiac. Have you had the Celiac panel (blood tests) done? That would be a good first step prior to the endoscopy.

Although, for me, it was backwards. My doctor did not begin suspecting Celiac until he was performing the endoscopy and seen the tell tale inflamation. Fortunately, his suspicions were strong enough that he took biopsies right away. Before he even got the biopsy results, he asked me to get the Celiac panel done. I failed both and have been gluten free ever since!

Have you discussed the possiblity of Celiac with your Dr.? You should prior to the endoscopy. At least plant the seed in his/her brain so that when they are doing the procedure, the thought will be with them. You can also request biopsies to be taken during the procedure. However, if your doctor does not feel they are justified, your insurance may not cover that part of it.

Best wishes!

Dewey

Marion, IA

judy04 Rookie

Hi Tara,

I'm sorry that you are so ill, I know how you must be feeling.

I have an allergy to wheat. For 3 years I had red, sore, itchy

eyes. My allergist insisted it was "environmentally" caused

by trees, grass, and mold. I had allergy shots, antibiotics,

but nothing helped. In March of 03 I began having GI

problems, nausea, diarrhea, bloating all occuring after eating.

I had gb scans,colonoscopy, and endoscopy. My GI doc

came up w/diagnosis of GERD, IBS, and I had one tiny polyp

in my colon. He gave me fiber pills (they help both constipation

and diarrhea) and a small dose of an antidepressent then

told me to eat a high fiber diet. I improved a little but in Oct 03

I went back and told him I was still sick and having right-sided pain

so hr suggested a Celiac Panel be done, it came back neg for

celiac disease but slight positive for wheat. He told me to avoid wheat,

rye, barley, and distilled vinegar, never told me anything

about gluten or this diet. Fortunately I have been An RN all

of my life so I began to do research, found this site and

learned a lot.

As far as the Endoscopy, the only part I didn't like was

the solution they sprayed in my throat, it had a strong

banana taste. I didn't go completely out, I had Versed,

which he said would wipe out my memory of the procedure,

it didn't but it wasn't unpleasant, the nurses were very

kind and I got colored pictures of my problem areas.

I had to stay in recovery for 30 min., then got up,

went home and slept all day.

I never sneezed around wheat but both my mother and

Grandmother would sneeze about 15 times in a row.

They both had GI problems but not allergies as I have known them.

I hope this helps, I wish you the best of luck in your search for answers..

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,517
    • Most Online (within 30 mins)
      7,748

    Lizie
    Newest Member
    Lizie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.