Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This Board. Have ?'s Endoscopy Friday


taranallan

Recommended Posts

taranallan Newbie

Hi Everyone :-)

I am new to this board & on the very frustrated. Basically this is my history. Have always battled severe iron deficiency anemia (we think it is because of severe endometriosis, but now I wonder). Fatigue. GERD. Joint pain. Fibromyalgia. IBS (with constipation) Chronic allergies. Some food allergies but we haven't figured out what I am allergic to yet(I sneeze many times after every meal, if that makes sense). Had a hysterectomy back in January of this year. Diagnosed with an ileus on the 18th of January. It resolved, but nause & vomiting did not. Hospitalized for nausea & vomiting from the 18th - 31st of January. Lost 20 pounds during hospital stay. Only gained back about 3 pounds. Still having problems with the nausea & vomiting. Only thing I can keep down are bland foods such as crackers, macoroni & cheese, Slim-Fast, Boosts, toast, etc (even though I do sneeze after eating these foods indicating that I am allergic to something in them). Saw G.I. Dr last week. Immediately ordered an Endoscopy & flex sig for this Friday. What does all this sound like to you? Hubby & I have questioned ourselves in the past about the possibility of it being Celiac disease. Also for those of you who have had an endoscopy, can you please shed some light on it? Dr is going to do it under twilight sedation. Any information would be greatly appreciated.

Thanks,

Tara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi Tara, welcome.

I am sorry you have had all those health problems. It sounds like you have been through a lot.

I have had an endoscopy, it's not bad at all. Yes they put you in a twilight, my doc used "versed" via IV. As soon as he gave me the meds I do not remember anything. Some docs spray your throat I guess to numb it and keep you from gagging but my doc said the taste of the spray was a lot worse than gagging so he did not use it and I did not feel a thing. I woke up and was fine, a little sleepy but felt good.

I hope you get some answers soon, you will be in my thoughts and prayers :)

Dwight Senne Rookie

My endoscopy was also done under twilight sedation. No problems. Don't remember a thing! Very grogy when I woke up and for several hours after, but otherwise, felt fine. I would consent to having another one done tommorrow without hesitation.

While there are no hard and fast symptoms for every Celiac, I would have to question your case - I would be surprised if you are diagnosed with Celiac. Have you had the Celiac panel (blood tests) done? That would be a good first step prior to the endoscopy.

Although, for me, it was backwards. My doctor did not begin suspecting Celiac until he was performing the endoscopy and seen the tell tale inflamation. Fortunately, his suspicions were strong enough that he took biopsies right away. Before he even got the biopsy results, he asked me to get the Celiac panel done. I failed both and have been gluten free ever since!

Have you discussed the possiblity of Celiac with your Dr.? You should prior to the endoscopy. At least plant the seed in his/her brain so that when they are doing the procedure, the thought will be with them. You can also request biopsies to be taken during the procedure. However, if your doctor does not feel they are justified, your insurance may not cover that part of it.

Best wishes!

Dewey

Marion, IA

judy04 Rookie

Hi Tara,

I'm sorry that you are so ill, I know how you must be feeling.

I have an allergy to wheat. For 3 years I had red, sore, itchy

eyes. My allergist insisted it was "environmentally" caused

by trees, grass, and mold. I had allergy shots, antibiotics,

but nothing helped. In March of 03 I began having GI

problems, nausea, diarrhea, bloating all occuring after eating.

I had gb scans,colonoscopy, and endoscopy. My GI doc

came up w/diagnosis of GERD, IBS, and I had one tiny polyp

in my colon. He gave me fiber pills (they help both constipation

and diarrhea) and a small dose of an antidepressent then

told me to eat a high fiber diet. I improved a little but in Oct 03

I went back and told him I was still sick and having right-sided pain

so hr suggested a Celiac Panel be done, it came back neg for

celiac disease but slight positive for wheat. He told me to avoid wheat,

rye, barley, and distilled vinegar, never told me anything

about gluten or this diet. Fortunately I have been An RN all

of my life so I began to do research, found this site and

learned a lot.

As far as the Endoscopy, the only part I didn't like was

the solution they sprayed in my throat, it had a strong

banana taste. I didn't go completely out, I had Versed,

which he said would wipe out my memory of the procedure,

it didn't but it wasn't unpleasant, the nurses were very

kind and I got colored pictures of my problem areas.

I had to stay in recovery for 30 min., then got up,

went home and slept all day.

I never sneezed around wheat but both my mother and

Grandmother would sneeze about 15 times in a row.

They both had GI problems but not allergies as I have known them.

I hope this helps, I wish you the best of luck in your search for answers..

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,876
    • Most Online (within 30 mins)
      7,748

    pilber309
    Newest Member
    pilber309
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.