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New To This Board. Have ?'s Endoscopy Friday

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Hi Everyone :-)

I am new to this board & on the very frustrated. Basically this is my history. Have always battled severe iron deficiency anemia (we think it is because of severe endometriosis, but now I wonder). Fatigue. GERD. Joint pain. Fibromyalgia. IBS (with constipation) Chronic allergies. Some food allergies but we haven't figured out what I am allergic to yet(I sneeze many times after every meal, if that makes sense). Had a hysterectomy back in January of this year. Diagnosed with an ileus on the 18th of January. It resolved, but nause & vomiting did not. Hospitalized for nausea & vomiting from the 18th - 31st of January. Lost 20 pounds during hospital stay. Only gained back about 3 pounds. Still having problems with the nausea & vomiting. Only thing I can keep down are bland foods such as crackers, macoroni & cheese, Slim-Fast, Boosts, toast, etc (even though I do sneeze after eating these foods indicating that I am allergic to something in them). Saw G.I. Dr last week. Immediately ordered an Endoscopy & flex sig for this Friday. What does all this sound like to you? Hubby & I have questioned ourselves in the past about the possibility of it being Celiac disease. Also for those of you who have had an endoscopy, can you please shed some light on it? Dr is going to do it under twilight sedation. Any information would be greatly appreciated.




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Hi Tara, welcome.

I am sorry you have had all those health problems. It sounds like you have been through a lot.

I have had an endoscopy, it's not bad at all. Yes they put you in a twilight, my doc used "versed" via IV. As soon as he gave me the meds I do not remember anything. Some docs spray your throat I guess to numb it and keep you from gagging but my doc said the taste of the spray was a lot worse than gagging so he did not use it and I did not feel a thing. I woke up and was fine, a little sleepy but felt good.

I hope you get some answers soon, you will be in my thoughts and prayers :)


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My endoscopy was also done under twilight sedation. No problems. Don't remember a thing! Very grogy when I woke up and for several hours after, but otherwise, felt fine. I would consent to having another one done tommorrow without hesitation.

While there are no hard and fast symptoms for every Celiac, I would have to question your case - I would be surprised if you are diagnosed with Celiac. Have you had the Celiac panel (blood tests) done? That would be a good first step prior to the endoscopy.

Although, for me, it was backwards. My doctor did not begin suspecting Celiac until he was performing the endoscopy and seen the tell tale inflamation. Fortunately, his suspicions were strong enough that he took biopsies right away. Before he even got the biopsy results, he asked me to get the Celiac panel done. I failed both and have been gluten free ever since!

Have you discussed the possiblity of Celiac with your Dr.? You should prior to the endoscopy. At least plant the seed in his/her brain so that when they are doing the procedure, the thought will be with them. You can also request biopsies to be taken during the procedure. However, if your doctor does not feel they are justified, your insurance may not cover that part of it.

Best wishes!


Marion, IA


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Hi Tara,

I'm sorry that you are so ill, I know how you must be feeling.

I have an allergy to wheat. For 3 years I had red, sore, itchy

eyes. My allergist insisted it was "environmentally" caused

by trees, grass, and mold. I had allergy shots, antibiotics,

but nothing helped. In March of 03 I began having GI

problems, nausea, diarrhea, bloating all occuring after eating.

I had gb scans,colonoscopy, and endoscopy. My GI doc

came up w/diagnosis of GERD, IBS, and I had one tiny polyp

in my colon. He gave me fiber pills (they help both constipation

and diarrhea) and a small dose of an antidepressent then

told me to eat a high fiber diet. I improved a little but in Oct 03

I went back and told him I was still sick and having right-sided pain

so hr suggested a Celiac Panel be done, it came back neg for

celiac disease but slight positive for wheat. He told me to avoid wheat,

rye, barley, and distilled vinegar, never told me anything

about gluten or this diet. Fortunately I have been An RN all

of my life so I began to do research, found this site and

learned a lot.

As far as the Endoscopy, the only part I didn't like was

the solution they sprayed in my throat, it had a strong

banana taste. I didn't go completely out, I had Versed,

which he said would wipe out my memory of the procedure,

it didn't but it wasn't unpleasant, the nurses were very

kind and I got colored pictures of my problem areas.

I had to stay in recovery for 30 min., then got up,

went home and slept all day.

I never sneezed around wheat but both my mother and

Grandmother would sneeze about 15 times in a row.

They both had GI problems but not allergies as I have known them.

I hope this helps, I wish you the best of luck in your search for answers..


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    • I understand. Poor thing, made doubly rough because 13 is a really hard age even in the best of times. OK, at 13 she should show the damage in the biopsies. I didn't know if she was 2 or 3 yrs. old & in those cases sometimes they just plain haven't lived long enough to be damaged where the biopsies pick it up - it can be so patchy then.  Gosh, I'm really feeling for her & you both and I so want to say take her off gluten the moment the endoscopy is over but I'm afraid to say that b/c I've seen some pretty weird things go on that you would never expect. Docs can be so uninformed! Please let us know how things turn out & send your daughter some hugs from me and tell her I believe her. Please let her know that most of us had been told by doctors they think it's all in our heads, didn't believe us, blew us off so we know exactly how she feels. Remind her her pedi believes her & he's been more helpful than the GI has.  Press the GI for 6-8 biopsies but a bare minimum of 6.  {{{{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}
    • I have seen articles linking celiac to Barretts and esophagitis.  I've actually been subtly hinting to my boyfriend to get tested for celiac as well because he has some strange Autoimmune arthritis as well as Barrett's  and some white spots on brain MRI Not MS). One of the articles I read on Celiac and Barrett's actually suggested that most of the patient did not have actual acid reflux symptoms. Not sure if you ever did antibody testing for celiac, but sounds like you certainly want to avoid gluten. 
    • Ahh good point! She is 13 and has been miserable for over two years. It started with chronic hives. We have been to a dermatologist, and a allergist and they brushed it off to her seasonal allergies and now she has joint pain,bloating,constipation,fatigue,headaches just all around miserable. I just want answers quick. she is getting depressed and says she hates her life cause she doesn't think anyone believes her. It's heart breaking . I hope we get answer soon. Thanks for the advice I will keep her on gluten. She is just miserable and I figured the sooner she is off gluten the sooner she will feel better. 
    • Welllllllll, in this particular case it would be best to keep her on gluten until the results come back. The reason I say this is b/c this GI seems whacky. There's a chance you may need to go to a different GI & have the endoscopy redone. I was going to say get a new GI but since the endoscopy is on Monday then I would go forth with it rather than waiting the time it would take to get a new GI & schedule an endoscopy. This GI seems set that it's not celiac & when they get that in their brain it's usually pretty darn hard for them to admit they were wrong. My concern is that she won't take enough biopsies from the right places b/c she's either dumb about how many & where or letting her personal (already formed) opinion influence what she will do. The problem is that you can't be there in the OR with them standing on the GI's shoulders making her do the right thing. Not knowing your daughters age, the other concern is that there may not be "enough" damage just yet, it may be patchy, etc..... that with the mindset this doc has, she will poo poo the dx.  Let me say that it would be a travesty & wholly awful IF you had to put your daughter through another endoscopy but we know how very important it is for her to have an official, dyed in the wool dx. So I'm just trying to think down the line & prevent problems before they come up. I mean, this doc may not even take any biopsies. That sounds insane I realize, but really, it happens more often than you would think. I can't tell you the number of times we've had people come on here after having an endoscopy for celiac where the doc didn't take any biopsies b/c the doc is so stupid as to think they can see the damage & doesn't realize there MUST be biopsies! If you take her off gluten & heaven forbid, you have to end up putting her back on it to get further testing then chances are she's going to get much, much sicker when she's put back on gluten. That most often happens with us and I'm talking about radically sick. See, I'm basing all my thinking on the fact that despite ALL the positive celiac blood work, this dimwit doc doesn't think it's celiac & instead it's all related to the constipation. That is just so far out there, it's NUTS! She's flying in the face of hard evidence! Every test you listed was positive. I can't even begin to understand how this GI comes to her insane conclusion. THAT'S why I am so concerned. 
    • Thanks for your reply. That's what my husband and I thought too. She has a ton of symptoms that's fit celiac. Also I was going to start her gluten free diet after her biopsy on Monday cause the dr said the results take two weeks. Is there a reason I should keep her eating gluten until we get the results? Thanks for your help.
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