Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

New Member - Quick Intro

4 posts in this topic

Hi everyone,

I've been lurking since March 2010. I think I've read just about every post on the forum and I'm grateful for all the information that has been posted. So I guess it's my turn to contribute as best I can. I'll try to keep it short.

First, I have no diagnosis. I have not taken any tests. And I don't plan to. There were two symptoms that originally brought me to this forum.

1) A distended abdomen that seemed to get worse as the day went on.

2) Unreasonably horrible hangovers from a few beers.

Although the horrible hangovers didn't happen every time I drank beer, it seems like it was the majority. It was so bad I thought for a long time I was just getting food poisoning somehow, but none of my friends ever got sick. The hangovers usually lasted 2 days, complete with vomit, diarrhea, and super sensitive skin that hurt at the slightest touch.

After reading many posts here and identifying with many other symptoms I went gluten free in March. I don't know if I'm Celiac or gluten intolerant or it's all in my head. I do know I feel better. At four months gluten free, everything is better. Not perfect, but better. And I haven't had any more hangovers.

Here are a list of symptoms I have had that have improved in the last four months.

1) pencil thin, broken up, pasty/greasy stool

2) frequent bowel movements ( 6 times a day )

3) frequent urination

4) acne - face and back

5) sweaty palms and feet

6) irritability, anxiety

7) stuffed up nose

8) puffy/swollen face in morning

9) occasional light swelling in ankles

10) swollen knees

11) occasional numbness in fingertips

12) symptoms of reactive hypoglycemia

13) heart palpatations, skipping beats, and ensuing adrenaline rush

14) having a full stomach and still feeling starved - strange cravings which can't be satisfied

15) reoccuring lower back pain

16) muscle twitches - legs and arms mostly

17) muscle cramps - legs and feet

18) unsteady muscles ( for example - my whole left leg shaking when my foot is on the clutch )

19) arms going numb while sleeping

20) awakening with severe vertigo

21) painless bruise like spots which show up on the upper legs and hips after exercise

I do attribute the improvements in these symptoms to my change in diet, but I'm not absolutely convinced gluten is the problem. It could be the reduction in carbs or dairy or something else. ( I am nearly dairy-free, simply because I don't like much dairy )

I follow the diet fairly well. I read labels and I never intentionally ingest gluten. However, I am not extremely careful with cross contamination. I order fries when I'm hungry and there is nothing else on the menu to eat. I haven't worried about cutting boards or shampoos or anything like that. I figure I must have accidentally gotten some gluten many times, but I've never had a reaction. But then again, I never had the day in day out GI pain most celiacs get.

That's it for now.



Share this post

Link to post
Share on other sites

Ads by Google:

Welcome, you do sound like you belong here. I can really identify with the horrible hangovers. The most puzzling thing for me about them was that I drank nonalcoholic beer. I couldn't understand how in the world I would have hangovers when I never got drunk.

Most of us do need to drop dairy or limit it at first. IMHO though it is not the limiting dairy or carbs that is resulting in the great improvement you are seeing. You do have the option of going back on a full gluten diet for a couple months for testing, but you do risk false negative results even then. There is also the option of going with Enterolab testing. As long as you have been gluten free for less than a year they would still be able to pick up the antibodies. Enterolab does not diagnose though, they simply tell you if you are making antibodies but you body doesn't produce antibodies to something it doesn't want.

Do ask any questions you need to and I hope you continue to improve.


Share this post

Link to post
Share on other sites

:lol: Beer always wrecked me too.

If you feel better eating gluten-free it's not in your head. I'm glad to hear you figured out something that helps you feel better.

The full stomach/cravings and feeling starved is thought to be your body wanting particular nutrients it can't get because of malabsorption. You might feel even better on a good vitamin/mineral supplement. B12 is particularly helpful for folks with gluten intolerance.


Share this post

Link to post
Share on other sites

Thanks for the suggestions. I will look into some B12 supplements. On a related note, 15 or so years ago I followed a vegan diet. That lasted about a year. I know B12 must often be supplemented, but I never worried about it. I guess I just ate a lot of bread and tofu. Anyway, this is when I had my first ( of two ) really severe depressive episode. Not fun. I guess we could draw some conclusions.

It's interesting to hear that beer, even nonalcoholic beer, wreaked such havoc on others. I wonder if there is something unique about the way gluten in beer is absorbed. Beer really does seem to be the crack cocaine of gluten for me.

As far as testing goes, I don't really feel like I need it to stay on the diet. And I have no desire to challenge gluten.

Thanks again.


Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Forum Statistics

    • Total Topics
    • Total Posts
  • Topics

  • Posts

    • Eeek confused! Positive biopsy, negative blood test???
      Thank you! My PA said that she still thinks it's celiac....but I don't feel like she's fully explained why. Some people are hard to get a solid answer out of! I think I'm gonna get a second opinion somewhere else.....appreciate the feedback. Makes me feel a little less crazy
    • Potato Crusted Quiche Breakfast Casserole (Gluten-Free)
      Here is the Potato Crusted Quiche Breakfast Casserole that my Significant Other came up with. View the full article
    • I'm actually scared to go to the doctor and could use some advice
      Hello Elle Among this online community you are not alone in either your symptoms or how you feel about visiting the doctor.  I for one understand the anxiety that you are going through, my own weird nerve stuff and other puzzling symptoms have had me really scared at times.   So much you are going through could very well be gluten related, it really could.   But if it isn't, in the end it is worth trying to find out what it is going on so you can get the treatment you deserve. After all, it could have a really simple, treatable explanation, once the doctors know what it is. I remember reading on another website something that has helped me with my own health anxiety - if one can summon up the courage to go and see the doctor, one should pat oneself on the back and be proud of oneself for doing the right thing.  I'm not terribly keen on the idea of being a proud person - but I think it was meant in the best sense, and it is always good to do the right thing, even if one does it afraid!  It always makes me feel that bit stronger when I'm in the waiting room at the doctors! There is lots of great advice above.  Do take it and make sure you come back if you need further support. There are some fantastic people here to help.        
    • I'm actually scared to go to the doctor and could use some advice
      Hi you think you would have better luck obtaining a full Celiac panel from your GP or a gastro doc?  You really need to be tested for Celiac because of all your symptoms.  Many other people probably thought they were dying of some horrible disease because they had so many symptoms that docs ignored.  Very common problem for us.  Plus, your Mom has had "IBS" all her life.  I should add that IBS is not a diagnosis.  No one needs to be told their bowel is irritated......they already know that.  This is where the medical establishment, no matter where you live in this world, fail us.  They need to find the root cause and there always is one.  You also do not need to have any gastro issues to be a Celiac but you do have some, along with all your symptoms mentioned.  Anxiety is a huge problem with Celiac Disease and for many, it goes away just fine on the gluten-free diet, without need of meds...which should always be a last resort measure.  I have never had an anxiety problem in my entire life until after I was diagnosed with Celiac.  I may have had it but with all the other numerous symptoms I had, the anxiety may have gotten buried somewhere.  But guess what? On the extremely rare occasion when I am glutened or cc'd, I get major anxiety for about 4 days and then its gone. B12 is a water soluble vitamin so whatever you don't use, it exits the body in your urine.  It is pretty damn hard to overdose on the stuff.  I take a B vitamin everyday, very high quality ones and my B12 is usually in the high 600 range.  Optimally, it should be between 650-800 so yours was abysmal pre-supplementation.  Absorption can also be affected by PPI's.  You did notice improvement with the tingling sensation and fatigue once your levels were way up so take notice of that. My biggest advice is to get your mother and you tested for celiac, with a FULL PANEL. Then you'll have to wait and see what that shows. You could always trial a gluten-free diet if all testing is complete and the results were either negative or inconclusive. That sometimes happens with people, especially if they have Celiac's other cousin......non-celiac gluten intolerance.  This would be the best route to go with regards to your anxiety, unless it becomes disabling and you need meds, short term. Make sure you tell them that anxiety is a HUGE symptom of Celiac and it is not normal for younger people to have extreme anxiety like that, for no reason. Good luck to you and please call and make the appointment. I understand your fear....I hate doctors and it's pure mistrust. But sometimes you have to address a problem head on.    
    • newbie diagnosed mom - testing 8 yr old now
      good to know. I am not going for a biopsy. I do not have health insurance, i know i know please no political comments. My children do. My husband and I don't right now. If we lived in another state, we would have coverage. I just made an appt to do a full blood panel for my daughter this week. I would rather find some confirmation for her through a blood test, i feel a scope is too invasive for a child. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      Kind Regards,
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it. Thank You,
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
    • Most Online

    Newest Member