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Cholesterol


lucky28

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lucky28 Explorer

I was wondering if anyone with dx of celiac has ever had high cholesterol? from my research it shows that cholesterol is alway low in celiacs-Just out of curiosity Thanks


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plantime Contributor

Mine is moderately high. My celiac symptoms are mainly atypical, though. My body is just weird for almost everything!

cdford Contributor

Mine is very high and also my triglycerides. I cannot take most of the meds for it either. I now use Welchol, fiber, and have had to start drinking a small glass of red wine regularly. This teetotaler is not used to that! At lest the numbers are looking better.

Apparently the celiac disease can cause problems with the liver and the cholesterol does not get handled properly in our bodies. That was the explanation that was given to me by the docs. My family history also has high cholesterol in it.

skbird Contributor

I am non-Celiac gluten intolerant and have had high cholesterol. When I have taken supplements that benefit my liver (licorice, turmeric, milk thistle, artichoke, bitters) I have improved my cholesterol levels. I was 240 total and my doc wanted me to start on a statin but I didn't like how it made me feel so I started taking supplements for my liver. I was already taking a good amount of fiber (psylliam, flax). 6 weeks after I started taking liver supplements, I got my cholesterol tested again and the total was 200.

I'm curious as to what it is now but have other, more pressing things to spend my health care dollars on so will probably wait until next year when my insurance budget is better.

Stephanie

PS my triglycerides, however, were awesome, under 70 each time.

celiac3270 Collaborator

Moderately high cholesterol...but nothing that needs to be medicated.

terryjean Rookie

:o

My cholestrol was 259.................... and my triglycerides where triple what the norm is. My medical docor did put me on Zetia 10 mg daily and now it's down to 200 6 months later.

Terry Dumon, NJ

KaitiUSA Enthusiast

I've always had low cholesterol...my dad has high cholesterol but he is working on bringing that down and is doing well with that(he is not a celiac)


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    • knitty kitty
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    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
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