Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hand Weakness And Reduced Dexterity


Jacky

Recommended Posts

Jacky Rookie

Over the last few months I have noticed my right hand (I am an ambidexterous lefty) has become weaker and less dexterous. I have trouble picking up small objects, turning pages in the newspaper all dexterity issues) and I have a loss of hand/finger strength. It seems to be in my fingers. I have a small spray bottle and I can no longer depress the sprayer with my right index finger. I've read about neurological symptoms associated with celiac disease, but I can't find any descriptions or specific manifestations. Please help!! I became symptomatic in January 2010 and have been trying to maintain a gluten free diet since March 2010.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emaegf Newbie

It's called Celiac Neuropathy it's similar to Diabetic Neuropathy with most if not all of the same symptoms. But like any other symptoms one may have to gluten they vary with each person.

Jacky Rookie

It's called Celiac Neuropathy it's similar to Diabetic Neuropathy with most if not all of the same symptoms. But like any other symptoms one may have to gluten they vary with each person.

Thanks so much! I googled that last night and learned so much about celiac disease neuropathy! My family doctor is running tests right now to rule out MS and I've been pretty freaked out the last few days!! I'm feel a lot better now about the whole thing. Over the last 11 months since I became an "active" celiac I have had symptoms like crazy....the rash, mouth sores, now lactose intolerant, 2 sinus infections, a virus infection that relapsed (don't know if these things are related) and now over the last 3 or more months this hand weakness.

Here's my NEXT question: I've been trying to maintain a gluten free diet for the last 9 months (hiccups from gluten containing prescriptions, can't consumed distilled alcohol such as vodka, scotch) but these symptoms have all occurred AFTER I went gluten free. Why is that? Am I going to continue to get other celiac related problems even though I'm gluten free?

This whole thing is scary and I worry if it's ever going to stabilize or if I'm going to end up really disabled from this thing. I see that you said symptoms vary from one person to another, so maybe there's no knowing...but do you know if this will eventually stabilize?

  • 4 weeks later...
Lily127 Rookie

I wanted to chime in and say I'm sorry for your pain. I get severe joint/tendon issues of late and I know how scary it is to not be able to turn a faucet or press the lotion bottle thingy down or open a bottle. That being said I have fibromyalgia. I'm never sure if it's gluten or fibro but the odd thing is that since I've been trying to go gluten free in April of 2010 all my symptoms have gotten much worse. It's almost unreal to me how much I'm eating better and suffering more. I don't know if there is a reason for that like maybe it's pulling it out of my tissues. I don't know. I'm just rambling here as I limp along trying to type!!

I know aspirin and celebrex (not together of course) help me feel better with the stiffness/pain but they upset my stomach. So if I take 200mg of celebrex I can be normal and open the bottles and use the lotion so I also wonder if it is gluten causing it why would celebrex help in that I don't think it's just masking the pain because the redness from the hot joint goes away too. anyway just thought you might like to know that maybe celebrex might help your discomfort if you wanted to try that path. Just an option for you :)

Skylark Collaborator

Have you talked to a doctor about carpal tunnel syndrome? An anti-inflammatory and a wrist brace might really help. It's especially important to sleep with your wrist in a brace if it's carpal tunnel. Celiacs do have a slightly higher incidence of carpal tunnel problems. Mine have always gone away if I take good care of my hands and wrists.

mushroom Proficient

Celebrex is an anti-inflammatory as well as a pain reliever - it relieves the pain by taking away the inflammation. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      how much gluten do I need to eat before blood tests?

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    Hidden Peacock
    Newest Member
    Hidden Peacock
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.