Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"tasting" Gluten


Brrrandy

Recommended Posts

Brrrandy Rookie

I noticed something really interesting lately-- if I eat something that contains gluten now, I can often tell while chewing it. It does not have a particular metallic or bitter taste to me, but (this is weird) it almost feels "dead" in my mouth. Does anyone else have this, or have other gluten "tasting" experiences? It's such a weird thing to say, but if I eat a gluten free cookie, it's as if the flavors come alive in my mouth while chewing, but if I eat a cookie with gluten, I can definitely tell because the flavors don't come alive, and it's like they just sit there in my mouth, dead.

That sounds so bizarre when I actually say it.

I had this experience again today with a free kielbasa sample at my local deli. I had no idea it would have gluten, but after putting it into my mouth I swallowed a tiny bit but then spit it out because I'm beginning to completely trust the "dead" sensation. A few minutes later, my stomach started to gurgle. Looking it up at home, I learned that many kielbasas do indeed contain gluten.

So weird.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

I haven't noticed this, but I have to be super careful because I get so sick, so I don't think I HAVE had any major gluten cc, you know?

However, one thing I remember reading about a few months back was a study where they swabbed a little gluten inside the check and checked for anti-bodies at certain intervals. Within a few minutes, celiacs were already producing antibodies in response to the gluten. I could totally believe the body would have a reaction to gluten in a way you could detect.

Brrrandy Rookie

I occurred to me after I posted that maybe it has something to do with saliva enzymes breaking down the food, so I looked it up.

Apparently researchers at Boston University and Harvard might be one step ahead of me? They've found some enzymes in saliva that seem to break down gluten as you chew.

Could what I'm experiencing be the lack of an enzyme to break down a major component in the food, i.e. gluten? Maybe that would create the sensation that the food is just "sitting there" in my mouth-- it's not being broken down by my saliva.

It's crazy to think about, but it's definitely the coolest explanation I've encountered :)

Brrrandy Rookie

A newspaper summary of the findings can be found here:

Open Original Shared Link

And the actual journal article is here: Open Original Shared Link

if anyone is interested

  • 1 month later...
mamabear272 Explorer

I have noticed the funny taste too. I can also smell it too though. There is a distinct smell I smell when my son has just eaten something with gluten in it. I also tasted it this weekend when I was eating something that was supposedly gluten-free that I don't think was. I think it had gluten cau I'm sicker than a dog right now and an emotional wreck (all my symptoms from beforenI went gluten-free). I suppose I sound looney that I can smell and taste it. Lol

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,859
    • Most Online (within 30 mins)
      7,748

    Santa Don
    Newest Member
    Santa Don
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.