Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"tasting" Gluten


Brrrandy

Recommended Posts

Brrrandy Rookie

I noticed something really interesting lately-- if I eat something that contains gluten now, I can often tell while chewing it. It does not have a particular metallic or bitter taste to me, but (this is weird) it almost feels "dead" in my mouth. Does anyone else have this, or have other gluten "tasting" experiences? It's such a weird thing to say, but if I eat a gluten free cookie, it's as if the flavors come alive in my mouth while chewing, but if I eat a cookie with gluten, I can definitely tell because the flavors don't come alive, and it's like they just sit there in my mouth, dead.

That sounds so bizarre when I actually say it.

I had this experience again today with a free kielbasa sample at my local deli. I had no idea it would have gluten, but after putting it into my mouth I swallowed a tiny bit but then spit it out because I'm beginning to completely trust the "dead" sensation. A few minutes later, my stomach started to gurgle. Looking it up at home, I learned that many kielbasas do indeed contain gluten.

So weird.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

I haven't noticed this, but I have to be super careful because I get so sick, so I don't think I HAVE had any major gluten cc, you know?

However, one thing I remember reading about a few months back was a study where they swabbed a little gluten inside the check and checked for anti-bodies at certain intervals. Within a few minutes, celiacs were already producing antibodies in response to the gluten. I could totally believe the body would have a reaction to gluten in a way you could detect.

Brrrandy Rookie

I occurred to me after I posted that maybe it has something to do with saliva enzymes breaking down the food, so I looked it up.

Apparently researchers at Boston University and Harvard might be one step ahead of me? They've found some enzymes in saliva that seem to break down gluten as you chew.

Could what I'm experiencing be the lack of an enzyme to break down a major component in the food, i.e. gluten? Maybe that would create the sensation that the food is just "sitting there" in my mouth-- it's not being broken down by my saliva.

It's crazy to think about, but it's definitely the coolest explanation I've encountered :)

Brrrandy Rookie

A newspaper summary of the findings can be found here:

Open Original Shared Link

And the actual journal article is here: Open Original Shared Link

if anyone is interested

  • 1 month later...
mamabear272 Explorer

I have noticed the funny taste too. I can also smell it too though. There is a distinct smell I smell when my son has just eaten something with gluten in it. I also tasted it this weekend when I was eating something that was supposedly gluten-free that I don't think was. I think it had gluten cau I'm sicker than a dog right now and an emotional wreck (all my symptoms from beforenI went gluten-free). I suppose I sound looney that I can smell and taste it. Lol

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      12

      gluten free cookie recipes

    2. - Florence Lillian replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fermented foods, Kefir, Kombucha?

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      13

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      13

      Severe severe mouth pain

    5. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      12

      gluten free cookie recipes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,909
    • Most Online (within 30 mins)
      7,748

    probinson3870
    Newest Member
    probinson3870
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
    • Charlie1946
      @cristiana Hi, thank you so much, I will look into those books for sure! And get bloodwork at my next appointment. I have never been told I have TMJ, but I have seen information on it and the nerve issue while googling this devil plague in my mouth. Thank you so much for the advice!
    • Charlie1946
      @trents Thank you so much, I will try that 
    • Florence Lillian
      Peanut Butter cookies - on the crisp side.   approx 20 smallish cookies  1 C  plus 2 tblsp rounded. 'natural' peanut butter ( the kind you have to stir to blend the PB & oils)....  I know, it's a pain!! 1/2 c granulated sugar ....plus 2 tblsp dark brown sugar 1/4 c olive oil... plus 1 tblsp 1 large egg .....and 1 tsp vanilla 2 tsp cinnamon - optional but is yummy with the PB mix the above.  In another bowl mix the following dry ingredients: 1 cup brown rice flour  ( I use this  flour as it leaves no yucky after taste in my cookies & lb cakes..... and coffee cake, I buy it at the "Bulk Barn" here in Canada....... states side try health food stores??? I'm not sure where you can buy bulk food that also carries gluten free flours. 1/2 tsp baking soda.....1/4 tsp salt   (I use the pink sea salt) Mix well or sift, then mix with wet ingredients. heat oven to 350f, line baking sheet with parchment paper. Roll about 2 tblsp dough between your hands, place on cookie sheet and press down  with a fork.   The flatter the cookie the crispier it is.     Bake 13-14 min  When done leave on baking sheet till cool. Cheers, Florence   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.