Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are The Extent Of Food Intolerances?


jbunds

Recommended Posts

jbunds Newbie

i am not able to eat wheat rice corn soy dairy or eggs, and maybe something else im not sure? i have been off of wheat for almost 5 years (except for beer cause it never bothered me before) and the last ones ive phased out over the last year. the last week or two i have been getting gut pains again! and i am starting to get a little worried. how deep do these intolerances go? for instance if i cant eat soy can i eat soy lecithin? or corn syrup? or soy oil? corn starch? or maltodextrin? is there gluten remaining in these products? or is it just that they are hard to break down? i feel like i am at a huge loss here i cant afford insurance or a doctor, ive been feeling great since cutting all of these things out of my diet but im wondering if even eating something that is derived from one of those things is setting me back? help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

The beer is full of gluten.

That could be enough to keep your intestines from being able to digest or absorb all of those other things.

Even if you only drink it once in a while.

Millions of villi are destroyed by ingesting gluten even in tiny amounts.

It means your antibodies are always reacting.

I don't think you will be able to resolve those other intolerances until you get rid of gluten.

The damage continues until you eliminate all trace gluten and it doesn't sound like you have.

mushroom Proficient

Sometimes a substance in one form is not tolerated while in another it is. It is a matter of experimentation. Be very strict on eliminating it all at first, and then you can experiment around the edges. I have discovered recently that while all other forms of soy still bother me, I can now tolerate soy lecithin which has brought lots of new foods back into play (like chocolate :D ). Also with corn, for me the more highly refined it is the better it is tolerated, so that while anything that retains any part of the skin of the kernel is poison, highly refined corn starch in baked products is tolerated and a little corn syrup sweetener is now okay. But you have to get rid of them all at first, in my experience, to give your body a chance to forget the bad experiences. Another thing I have discovered is that while potato starch used to really bother me, I can now have a couple of slices of Udi's bread without paying the price (this after a couple of years of eliminating ALL potato)

So pay your penalties up front, be very strict in getting rid of offending foods at first and who knows, after a year or two you may be able to tolerate limited quantities in some form..

jbunds Newbie

thanks a bunch! i have already cut out beer, i did in december. i was pretty much just in denial i think ha. potatoes i dont have a problem with i would absolutely die if i couldnt eat potatoes! i am just going to cut back and be even more strict like you said, avoiding ANYTHING that has any of those words in front of it, and go from there. is eating things like soy lecithin causing more actual damage to the villi? or just hurts cause its hard to break down? i hate to think that i have been causing more damage without knowing! all this is so hard without a seeing a doctor, but from the sounds of it, it might not be much help anyways. this site has really helped me figure things out!! i had no idea that so many other people have the same intolerances i do! thanks again :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.