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Start Gluten Free Diet?


avas-mommy

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avas-mommy Newbie

Last week my 2 yr old daughter had her WIC appointment and her iron levels read up as 10.4 (normal range is 12-14). Her diet seems pretty good but she doesn't eat too much meat for me, but she always eats cereal. I took her to the doctor yesterday to double check the levels, because WIC usually exagerates. Her levels read at 9.3 and now she has to see her primary doctor next week. My aunt has Celiac disease and her 2 daughters also have iron deficiencies (some other disorders), and my mother also has an iron deficiency but not diagnosed with celiac disease. My daughter has had loose stools regularly since she has been a baby, but when she doesnt have loose stools she gets constipated. She is also very gassy at times when she eats pastas. My question is does this sound like it could be Celiac disease? She eats plenty of iron-rich foods but her body doesnt seem to absorb it like it should, and recently her stools are green. She's also tired during the day even though she sleeps 10 hours a night plus a 2 hour nap during the day! She goes to her primary doctor monday and will most likely just be put on an iron supplement, so should i just start her on a gluten-free diet and see how it goes?


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StephanieL Enthusiast

If you suspect Celiac, you need to get her tested BEFORE you change her diet IF you want an official diagnosis! You CAN NOT get good results after you take her off of gluten. With the family history, I would test.

Good luck!

pricklypear1971 Community Regular

What are the other disorders? Are they iron-related blood disorders? Thalassemia minor/beta/trait?

I ask because that could be giving a low iron count, but she doesn't need iron. There's a battery of tests that indicate thalassemia trait. And "trait" people can have funny bloodwork in other areas too.

That's all I have to add, other than if celiac runs in the family and she's having issues ask to have her tested.

jebby Enthusiast

I would not put your 2 year daughter on a gluten free diet until she has been tested for celiac, or at least seen and evaluated by a peds GI specialist. A LOT of toddlers have loose stools (most do not have celiac disease), and there are tons of reasons why a child could have low iron levels (the most common reason is actually drinking too much cow's milk).

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    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    • Trish G
      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
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