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Start Gluten Free Diet?


avas-mommy

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avas-mommy Newbie

Last week my 2 yr old daughter had her WIC appointment and her iron levels read up as 10.4 (normal range is 12-14). Her diet seems pretty good but she doesn't eat too much meat for me, but she always eats cereal. I took her to the doctor yesterday to double check the levels, because WIC usually exagerates. Her levels read at 9.3 and now she has to see her primary doctor next week. My aunt has Celiac disease and her 2 daughters also have iron deficiencies (some other disorders), and my mother also has an iron deficiency but not diagnosed with celiac disease. My daughter has had loose stools regularly since she has been a baby, but when she doesnt have loose stools she gets constipated. She is also very gassy at times when she eats pastas. My question is does this sound like it could be Celiac disease? She eats plenty of iron-rich foods but her body doesnt seem to absorb it like it should, and recently her stools are green. She's also tired during the day even though she sleeps 10 hours a night plus a 2 hour nap during the day! She goes to her primary doctor monday and will most likely just be put on an iron supplement, so should i just start her on a gluten-free diet and see how it goes?


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StephanieL Enthusiast

If you suspect Celiac, you need to get her tested BEFORE you change her diet IF you want an official diagnosis! You CAN NOT get good results after you take her off of gluten. With the family history, I would test.

Good luck!

pricklypear1971 Community Regular

What are the other disorders? Are they iron-related blood disorders? Thalassemia minor/beta/trait?

I ask because that could be giving a low iron count, but she doesn't need iron. There's a battery of tests that indicate thalassemia trait. And "trait" people can have funny bloodwork in other areas too.

That's all I have to add, other than if celiac runs in the family and she's having issues ask to have her tested.

jebby Enthusiast

I would not put your 2 year daughter on a gluten free diet until she has been tested for celiac, or at least seen and evaluated by a peds GI specialist. A LOT of toddlers have loose stools (most do not have celiac disease), and there are tons of reasons why a child could have low iron levels (the most common reason is actually drinking too much cow's milk).

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    • trents
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      Will definitely keep you posted. We live in Japan and will fly to Australia for the endoscopy end of April so until then, for the next ten weeks, we will just start adding gluten daily. 2 slices of white bread a day is what the guidelines seem to say.    But I welcome advice from members here who have done successful gluten challenges. I know they are not always successful.    I have also read I should monitor his growth. Is that really a concern for 10 weeks of gluten consumption? He is growing and has always followed his curve but he’s no basketball player at 20-25th centile. 
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      @melthebell, keep us posted. We are learning more and more about gluten disorders as time goes on. One of the things that has become apparent to me is that gluten disorders don't always like to fit into the neat little pigeon hole symptomatic and diagnostic paradigms we have created for them. There seems to be a lot more atypical stuff going on than we once realized.
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      Thanks very much for taking the time to write. I have been reading a lot about this and it definitely is not straight forward. My first port of call is the gene test - probably should have had it done before we left Australia because they don’t run the test in Japan. So I’ve ordered a third party test kit and just swabbed his cheek. Then we start the gluten challenge and see how it goes. 
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