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The Gurgles Are Back...:0(

Judy3

By Judy3
in Coping with Celiac Disease

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Judy3 Contributor
Judy3
Posted

Wow what an experience the last month has been. Started getting what felt like a cold in late August and just dealt with it no biggie. Labor Day weekend, had the worst bloody nose ever (out in public of course for added drama) and when I saw my ENT doctor on Tuesday after they asked how long I'd been stuffed up.. just a couple weeks I said. Well I had a sinus infection and they gave me antibiotics.. Boom, 4 days into them I'm getting Celiac symptoms and Fibromyalgia symptoms (that I haven't had in a few years) so I stopped them after day 5. Whew thought I headed that one off at the pass.. Not so! Two weeks later I am scheduled for a colonoscopy and they give me two, yes two bottles of the 'stuff' to drink. The pharmacist was concerned but said 'good luck with that'.. So being the obedient patient that I am, I drink the two bottles of stuff (ackkk may I say) and went in the next afternoon for my test. That was a Friday. Ever since then I have had the most sickening diarrhea, stomach pain, abdominal cramps and low grade fever that comes back at night. Talked to nurses all week last week, called the manufacturer of said 'stuff' to be sure it was gluten free and it is but they said and I quote "NO ONE SHOULD DRINK TWO GALLONS OF THAT TYPE" So then I was terribly pissed and demanded to talk to the doctor and he finally called me back on Friday morning.. A combination of the antibiotics killing my stomach and then too much of the 'wrong' medicine (there are two kinds from the same manufacturer and they gave me the 'powerwash' kind) has destroyed my GI track... yay after 11 months gluten free and so much progress the GI doctor's office put me back to square one! Grrr so now I'm taking probiotics and eating yogurt and progressing back to my high fiber diet. Why am I telling you all this? So that you all can BEWARE of prescription drugs ESPECIALLY if they are generic. Have your pharmacist double or triple check if need be because this just isn't right. So yes the gurgle is back!! Sigh

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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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