Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Undiagnosed And Looking For Natural Help And Healing


Shurrie

Recommended Posts

Shurrie Newbie

I have had issues with my colon since I was in my 20's (I am 43). I have had test like Barriem(msp), Colonoscopy, blood work ups etc.. always being told they can find nothing- Even to the point of having surgery for a suspected cyst on my left ovary because of the lump that was felt by the Gyno. (turns out that was a good thing as I had a tumor inside my uterus that was twice the size of my uterus). About 8yrs ago I went to a 95% organic diet, including hormone and steroid free meats. But I moved about 3yrs ago and can not find a local organic store (and the regular stores are extremely limited). Recently I have had serious pain in my left lower abdomen again, now I have constant gas, heartburn, and upper abdominal pain as well, and now my left eye is twitching. My bowels movements are unpredictable and sometimes days will pass without anything but gas. Exercise is not a problem, as I sling steel 12hrs a day, 4 to 5 days a week and walk over a kazzilion miles(lol). I have tried everything to ease this pain from drinking tomato juice to papaya and sea salt. This has been a horrid 3 days. I am starving but eating food makes it worse and the smell of food makes me nauseous and I lose my appetite. Yesterday I started craving nothing but sugars( I am not big on candy at all). Today, if I do not move to much there is little pain, but when I do get up I cramp, pass an immense amount of gas, feel better for a few then bam feel sick again. I do not have time to feel this crappy. Can't stand going to the d*** dr and be patted on the poopoo and told everything is in 'normal' range yadda yadda. I am going to make another appt. with the Dr., because as I said, the last 3 days have been hell. I can not afford to miss work. I want to know if anyone is using 'organic'-'Natural' methods...I refuse to put man-made drugs in my body...this is enough to deal with, without worrying about side effects that are worse then the existing problem.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

So, you have uterine fibroids?

Have you ever read Dr. John Lee's book on progesterone cream?

If you suspect you have gluten issues, try the gluten-free diet. If you want to be tested for Celiac, get testing first before proceeding with the diet since gluten withdrawal negates the tests.

kareng Grand Master

Nothing more natural than a gluten free diet if you have Celiac. No need for medications.

jswog Contributor

Nothing more natural than a gluten free diet if you have Celiac. No need for medications.

And if for no other reason than that, I'm very thankful that, of all of the auto-immune disorders I could have, I ended up with Celiac!

Shurrie Newbie

So, you have uterine fibroids?

Have you ever read Dr. John Lee's book on progesterone cream?

If you suspect you have gluten issues, try the gluten-free diet. If you want to be tested for Celiac, get testing first before proceeding with the diet since gluten withdrawal negates the tests.

I do not have uterine fibroids that I know of...they found the tumor because I went in thinking my left ovary was going to explode, as the area was swollen and extremely painful to touch. Turned out my ovary was perfect and found the tumor in the uterus.... That was 4yrs ago. in my 20's they thought endometriosis...did a laproscopy told me they could find nothing...went to another dr. and they did a barrium test. Upper and lower test and said I was normal and they had no idea why I was having the problems I was having...In my 30's a Dr said his best guess was IBS and to cut out fatty foods and nuts. I hardly ate/eat fatty foods as they seem to make me vomit a lot. I am making another appoint to the Dr., because celiac keeps popping up in my internet research. I need to make it through this week until I can get in. and nothing I am finding is helping relieve the pain I am in. The only downside of this is that if I do have celiac, my options for obtaining food at the store has dramaticly decreased. I live in BF nowhere. The most I have seen on the shelves is gluten free crackers and cookies... and outside of no gluten what else will need to go/be replaced??

I do not trust dr's to give an honest diagnosis unless they can push a man-made drug on you to cure it.

pricklypear1971 Community Regular

Ok, I know I'm hammering at this...but what kind of tumor was it? Was it a benign mass?

Most unprocessed food is gluten free - fruits, veggies, meats, herbs, spices. There are quite a few processed foods that are gluten-free but not labeled so. It's easier than you think. Read through the posts here about "newbies". You'll get a lot of ideas.

Shurrie Newbie

Ok, I know I'm hammering at this...but what kind of tumor was it? Was it a benign mass?

Most unprocessed food is gluten free - fruits, veggies, meats, herbs, spices. There are quite a few processed foods that are gluten-free but not labeled so. It's easier than you think. Read through the posts here about "newbies". You'll get a lot of ideas.

yes it was benign and 95% removed using thermal-ablation (hot water in the uterus). I say 95% because there is still a part of it and uterine lining inside my uterus. I have an appt. with the Gyn on it as my periods are a flippen mess again..lol---I would say I am falling apart at this point. but the colon issues started in my 20's. diarriah to constipation...bloating and gas...nausea to vomiting..and every dr. telling me it was nothing to just ibs and quit eating fried foods.. When I went organic, it seemed that I felt great, makes me wish I hadn't moved because I was quit spoiled in being able to go down the road and get all the fresh organic and natural foods my heart desired and now I am scouring the internet to find food.

I do want to say thank you all for being here to help..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Get a copy of Dr. Lee's book - I have What Your Doctor May Not Tell You About Menopause. Read it. Consider trying natural progesterone cream to help with your cycles and the mass.

When you go to the doctor, ask for a full celiac panel. See what the results are and go from there.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    2. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      31

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,413
    • Most Online (within 30 mins)
      7,748

    EBeloved
    Newest Member
    EBeloved
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
    • Wheatwacked
      Here is a link to the spreadsheet I kept to track my nutrition intakes.  Maybe it will give you ideas. It is not https so browsers may flag a security warning. There is nothing to send or receive. http://doodlesnotes.net/index3.html I tracked everything I ate, used the National Nutrition Database https://www.foodrisk.org/resources/display/41 to add up my daily intake and supplemented appropriately.  It tracks about 30 nutrients at once.
    • Wheatwacked
      Hello @catnapt, That's so true.  Every person with Celiac Disease has different symptoms.  There are over 200 that it mimics.  Too many still believe that it is only a childhood disease you outgrow.  Or it's psychosomatic or simply a fad.  Idiots.  It's easy to get angry at all of them.   You just have to pick at the answers until you find the ones that work for you.  I too suffer from not being able to take the drugs that work for "everyone else".  SSRIs make me twitch ane feel like toothpicks are holding my eye open, ARBs cripple me.  Statins cause me intestinal Psuedo Obstruction.  Espresso puts me to sleep.  I counted 19 different symptoms that improved from GFD and dealing with my nutritional defecits.  I couldn't breath through my mouth until I started GFD at 64 years old.   My son was born with celiac disease, biopsy diagnosed at weaning.   So why are we the one-percenters.  Why, after being silent for so long, does it suddenly flare? There is the possibility that you have both Celiac Disease and Non Celiac Gluten Sensitivity.  NCGS was not established as a diagnosis until 1980.  NCGS is diagnost by first elimating Celiac Disease as the cause, and showing improvement on GFD.  Nothing says you can't have symptoms from both.  Wheatbelly: Total Nutrition by Dr. Davis was helpful to me. We come to the forum to share what we've learned in dealing with our own symptoms.  Maybe this will help someone. Speaking of which if you don't mind; what is your 25(OH)D vitamin D blood level?  You mentioned a mysterious Calcium issue. Vitamin D, Calcium and Iodine are closely interactive. It is not uncommon for postmenopausal women to have insufficient intake of Iodine.   (RDA): Average daily level of intake sufficient to meet the nutrient requirements of nearly all (97%–98%) healthy individuals; often used to plan nutritionally adequate diets for individuals You are a one-percenter.  You may need higher intake of some essential nutrient supplements to speed up repairing the damages.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.