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Doc Only Did A Stool Test, It Was Negative

Aly1

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Aly1 Contributor
Aly1
Posted

I have been gluten-free for 5 months and was under the impression I'd been tested fully for celiac and tested negative. (I get really ill now from gluten so it's a given I have an issue regardless of testing). I discovered at my latest doc appt that he only did a stool test (I know he checked for malabsorption issues and I was ok; not sure if there are any other stool tests he might have done to check for celiac) so based on that he decided I do not have celiac.

Do you all consider this testing valid? I confess diagnosis is important for me but I guess that ship has sailed bc I'm not able to tolerate gluten long enough for a challenge. I'm just frustrated bc I thought I was totally tested.

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ravenwoodglass Mentor
ravenwoodglass
Posted

There are many different stool tests. Who knows, other than your doctor what he exactly ordered. If you are in the US you have a legal right to copies of all tests that are done. You may want to get copies of all stool and blood tests and if a celiac panel is not in the blood work fire the doctor.

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