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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.

If Looks Could Kill

5 posts in this topic

I'd be dead. My husband had an appointment today with his endocrinologist today and I always tag along so I know firsthand what I need to know. Over the last few years he has been having increasing trouble controlling his blood sugar. During this time he has also had increasing bowel issues. Last fall he was told he has IBS. His mother is constantly weak, tired and has been battling lymphoma for many years.

So, unable to keep my mouth shut as the doctor offered suggestions I asked if it was possible that celiac could contribute to his increasing troubles with his spikes and lows. The doctor filled out the paperwork for blood work while my husband glared at me. Now I wouldn't wish celiac on anyone, but I also don't want to spend a decade watching my husband die of cancer while losing his feet a toe at a time and counting the days til he ends up on dialysis. (Okay, morbid but I this sort of thing just pops in my head.)

As an extremely picky eater, he would have significantly more trouble adjusting to a gluten free diet than I did. The doctor did suggest that even if the blood tests are negative that it wouldn't hurt to go gluten free and see if symptoms improve and if they do to try a little gluten again and if he gets sick again that it's obviously celiac. He mentioned that it's far easier today than it would have been a decade ago, although I doubt my husband finds that encouraging. (I could have kissed him, I didn't imagine I'd ever talk to a doctor who knows half as much as my limited knowledge of celiac.) All that's left for me to do is convince my husband, regardless of the test results, to go through with at least trying a gluten free diet.


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I would have done the same in your shoes. Those symptoms are just too closely related to gluten intolerance/celiac.

Kisses to that endo!! :lol:

However, since you are already gluten-free, converting the two of them will not be more work for you, in fact it will be less. (As I recall, MIL lives with you guys?)

Ask him to give it a go (no cheating!) for one month. That's it.

Make some special treats and he'll be hooked on gluten-free foods.

Bet him his blood sugars and bowel issues start to resolve.

and I bet....You will win this bet. :)


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I wish she lived with us, but no, it's her house. She wouldn't entertain the idea of making these changes in her life and frankly we don't have the kind of relationship where I would be even remotely comfortable talking to her about it. She's still convinced that all of my health problems are because of my bunny.

Right now I'm just hoping the test results come back positive. If they don't my husband will probably spout off about how I'm wrong (even though I'm not) and that will be the end of that. I did make Rice Krispie treats tonight which are one of his favorite snacks, hopefully I'll convert him one way or another. The logistics will be much easier but it'll be like trying to feed a picky toddler. :lol:


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Good for you Adalaide, I don't know why some people wnat to close their ears but you are opening to options, options which are all good to investigate. My husband's health is not as good as it could be, has had a life-long issue with allergies and just keeps taking meds. I have repeated aske him if her thought about actually finding out what is causing hime issues and he repeatedly drgas his feet.

If the results don't come back positive and he starts with the "I told you so," at least you now know and there is no longer the guessing game.


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Have they looked at possible gastroparesis? I have it. It can make blood sugar very hard to control. Mine started out with bowel troubles and then progressed to throwing up.


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    • How do you know what's causing what?
      I am in same boat, yesterday my stomach was churning and bloated and I don't know what the cause was.  How about keeping a food diary? Just note what you ate and how you feel. A few days may be sufficient to discern a pattern, either some rogue product or a previously unknown intolerance. I have read that after gluten is removed further intolerances which were hidden can become apparent.  I don't know whether you could cut yourself some slack from a full vegan approach whilst your body heals? If not, maybe you could substitute say milk with coconut milk or similar to give your body a break whilst keeping calcium levels high? If you join coeliac uk you can check your sauces etc on their gluten-free database, they'll also send you a book which became my bible until I got a hang of which brands I could eat safely. Finally, have you excluded cross contamination from pots and pans, toasters, shared condiments etc?  Good luck!
    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels.
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum! theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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