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Back From Ct
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2 posts in this topic

We were in Danbury, CT all last week visiting my FIL. Overall the trip was really good and we had a nice visit with my FIL and his wife. We went to Mystic Seaport and had a great time and we couldn't have asked for better weather that day. It was beautiful out. My hubby had misunderstood his dad's directions and we were headed to Boston before we realized we had missed our exit. Hubby was ticked but later we laughed about it. The rest of the time we spent visiting, swimming and hanging out in the hot tub. Friday morning we had to move rooms abruptly because water started pouring out of the celing over our bed. Someone above us plugged the toilet and it was overflowing. When we checked out on Sunday we noticed we didn't get charged for the last two days! On the way home we got side swiped by another car on the interstate. It scared the kids and myself, but everyone was fine. The other car pulled off behind us after the accident. They were nice people and were concerned. There was hardly any damage to our car(some scuffed paint), so my husband told the other people he didn't want to report the accident. They were happy with that and we went on our way.

Whenever we travel we always pack food and a cooler. We also stayed in a suite with a kitchenette so that was a huge plus. I couldn't believe the availability of products in that area. If you can imagine it, you almost certainly can find it. I went to the local Trader Joes. Honestly, I wasn't all that impressed. What I did find to be the most awesome place was a store called Stew Leonards!! OMG, I could spend all day in that place!

The boys and I survived my inlaws place without getting glutened. However, all three of us got zapped at a restaurant in Mystic on Wed. night. It wasn't to bad of a reaction for us luckily. Nothing a few zantac and gas ex didn't help. I'm still not quite right but at least I didn't get hit with major D. Youngest boy had a belly ache and oldest boy was had a lot of gas pain and bloating. Friday night my oldest boy broke out in hives head to toe. We battled the hives till we got home last night. I broke down and took him to the ED because he was so miserable. He got an epi shot and steriods and was sent home with a RX for steroids to take for the next 4 days. I checked with the allergist this morning and said there wasn't anymore he could do at this point, but to check in next Monday and we would go from there. I'm not sure if it is one of his diagnosed allergies causing a flare or something he ate. To our knowledge he doesn't have any food allergies.

So overall we had a great time even with all the mishaps. They make for a more memorable time. :lol: :lol:

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Hi,

I'm heading to Mystic next week - can you tell me where you got glutened?? Thanks!

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    • If you are one of the approximately 2-3 million Americans with celiac disease, ZyGluten™ may be taken before you eat out at a restaurant or a friend\'s house, as it may help break down any gluten cross-contamination that you might encounter. View the full article
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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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      St Johns Wort daily.
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      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
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