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Beware B Vitamin Toxicity!


SGRhapsodos

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Bubba's Mom Enthusiast

It still makes me mad that I suffered with really bad gallbladder pain/nausea before I was DXed Celiac. I got an ultrasound which showed no stones, and from then on my comlaints fell on deaf ears. My Dr. actually yelled at me "there's absolutely nothing wrong with your gallbladder!"

It's shocking to me how many Dr.s don't think to order the HIDA scan! When I got my test results back I wanted to go back to that stupid Dr. and smack him over the head with the results. :angry:

I'm glad you knew what test to ask for. We can't just rely on the Dr.s to have all of the answers. It's good that we share here. :D

  • 4 weeks later...

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GladGirl Rookie

Although this thread is a little old, I was glad it was here! I just came back from my new Dr's office and found out that I have over-supplemented Vitamin B12. I have some "toxic" side-effects, mainly "joint pain" popping up in my extremities. The Dr. and I both think because excess Vit B12 can be stored in the liver, and my major issue with Celiac has been my liver enzymes, this may be causing the problem. At any rate my liver enzymes are almost normal now!! They were well over 100 and now to 40 on AST and 42 on ALT. Whew!

So, on this information provided, please do make sure as you supplement that the Dr. is testing appropriately and you let them know any possible side-effects you are experiencing. (I thought somehow, I had been glutened, thankfully not the case)

As my body is still continuing to heal, my glucose is good, my cholesterol keeps jumping around...lol! This time my LDL was lower, my HDL higher, but also my triglycerides were higher...ugh.. In the meantime, I sure have been sleeping better and no pain in my right side anymore!! (last night I slept for 7 hours straight!) It has been over 12 years since that has happened.

Oh, and the many recipes here are so helpful, I even have my neighbor, who loves to cook making some of the special treats for me!! :)

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    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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