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Beware B Vitamin Toxicity!

SGRhapsodos

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Bubba's Mom Enthusiast
Bubba's Mom
Posted

It still makes me mad that I suffered with really bad gallbladder pain/nausea before I was DXed Celiac. I got an ultrasound which showed no stones, and from then on my comlaints fell on deaf ears. My Dr. actually yelled at me "there's absolutely nothing wrong with your gallbladder!"

It's shocking to me how many Dr.s don't think to order the HIDA scan! When I got my test results back I wanted to go back to that stupid Dr. and smack him over the head with the results. :angry:

I'm glad you knew what test to ask for. We can't just rely on the Dr.s to have all of the answers. It's good that we share here. :D

  • 4 weeks later...
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GladGirl Rookie
GladGirl
Posted

Although this thread is a little old, I was glad it was here! I just came back from my new Dr's office and found out that I have over-supplemented Vitamin B12. I have some "toxic" side-effects, mainly "joint pain" popping up in my extremities. The Dr. and I both think because excess Vit B12 can be stored in the liver, and my major issue with Celiac has been my liver enzymes, this may be causing the problem. At any rate my liver enzymes are almost normal now!! They were well over 100 and now to 40 on AST and 42 on ALT. Whew!

So, on this information provided, please do make sure as you supplement that the Dr. is testing appropriately and you let them know any possible side-effects you are experiencing. (I thought somehow, I had been glutened, thankfully not the case)

As my body is still continuing to heal, my glucose is good, my cholesterol keeps jumping around...lol! This time my LDL was lower, my HDL higher, but also my triglycerides were higher...ugh.. In the meantime, I sure have been sleeping better and no pain in my right side anymore!! (last night I slept for 7 hours straight!) It has been over 12 years since that has happened.

Oh, and the many recipes here are so helpful, I even have my neighbor, who loves to cook making some of the special treats for me!! :)

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    • trents
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By trents · Posted

      Welcome to the the celiac.com community @colinukcoeliac! I am in the USA but I don't think it is any different here in my experience. In some large cities there are dedicated gluten free restaurants where only gluten free ingredients are found. However, there are a growing number of mainstream eatery chains that advertise gluten free menu items but they are likely cooked and prepared along with gluten containing foods. They are just not set up to offer a dedicated gluten free cooking, preparation and handling environment. There simply isn't space for it and it would not be cost effective. And I think you probably realize that restaurants operate on a thin margin of profit. As the food industry has become more aware of celiac disease and the issue of cross contamination I have noticed that some eateries that used to offer "gluten free" menu items not have changed their terminology to "low gluten" to reflect the possibility of cross contamination.  I would have to say that I appreciate the openness and honesty of the response you got from your email inquiry. It also needs to be said that the degree of cross contamination happening in that eatery may still allow the food they advertise as gluten free to meet the regulatory standards of gluten free advertising which, in the USA is not more than 20ppm of gluten. And that is acceptable for most celiacs and those who are gluten sensitive. Perhaps you might suggest to the eatery that they add a disclaimer about cross contamination to the menu itself.
    • Scott Adams
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

      By Scott Adams · Posted

      This is a very common source of frustration within the celiac community. Many restaurants, including large chain restaurants, now offer a "gluten-free" menu, or mark items on their menu as gluten-free. Some of them then include a standard CYA disclaimer like what you experienced--that they can't guarantee your food will be gluten-free. Should they even bother at all? This is a good question, and if they can't actually deliver gluten-free food, should they even be legally allowed to make any claims around it?  Personally I view a gluten-free menu as a basic guide that can help me order, but I still explain that I really have celiac disease and need my food to be gluten-free. Then I take some AN-PEP enzymes when my food arrives just in case there may be contamination. So far this has worked for me, and for others here. It is frustrating that ordering off a gluten-free menu doesn't mean it's actually safe, however, I do feel somewhat thankful that it does at least signal an awareness on their part, and an attempt to provide safe food. For legal reasons they likely need to add the disclaimer, but it may also be necessary because on a busy night, who knows what could happen?
    • Scott Adams
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      By Scott Adams · Posted

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    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

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    • Wheatwacked
      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

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      Welcome to the forum @colinukcoeliac. Letting them know that they lost a customer because they could not satisfy cross contamination needs may incline them to fix that problem.  It was good of tnem to alert you.  The more they know...
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