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Constipation


shery

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shery Newbie

I was diagnosed with inability to tolerate gluten (as well as dairy, eggs and yeast) from entero lab last week. I have been misdiagnosed for 58 years. Yes, it would have been very helpful if a doctor had caught it earlier and I might not have had so many years of health problems as well as frustrations at being told that I was hypochondriac or needed stress management meds or something. However, blaming the doctors doesn't really help. To be fair, the symptoms are vague, and with the brain fog that often goes with it, I can understand the doctors confusion. Over the years, I was aware that something I was eating was causing me a problem, and with an elimination diet many years ago I knew that wheat was a problem and tried to limit it. Eliminating wheat and most gluten has helped, but the entero lab test showed that I am still getting gluten and I have malabsorption.

I have been being very careful for the past week (since getting the diagnosis) and am avoiding all gluten, and also egg, dairy and yeast. The strange thing to me is that instead of the constipation I used to be plagued with, I now have almost the opposite! Has anyone else has this experience?

Shery


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YankeeDB Contributor

Are you saying you now have constipation which is opposite from before or the other way around?

If you are constipated, adding fiber should help you. Look into fiber supplements. I especially like FOS as it is supposedly a "prebiotic" in that it encourages helpful bacteria in the intestine.

Good luck!

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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