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Newby From Uk

flowerqueen

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flowerqueen Community Regular
flowerqueen
Posted

Hi everyone! I was diagnosed as Coeliac in November last year by having biopsies at hospital after a L--O--N--G drawn out and exasperating time. I also have Diabetes, and an under-active thyroid, nerve pain due to spine degeneration, IBS and dairy intolerant. I have managed quite well since going gluten free, but recently my internal 'shakiness' and muscle weakness have returned. (last time the doctor I saw said it was due to very low ferritin levels and given iron to take). I went to see a different doctor this morning who said that low ferritin levels should not have caused this shakiness and asked if I suffered from anxiety :angry: I felt patronised as I know this isn't what caused the problem. She has arranged for me to have blood tests on Wednesday to re-check thyroid, ferritin and vitamin D levels etc.

What I would like to know ... is it normal to have these 'blips' in the first year of being diagnosed? Also have others had problem with muscle weakness? I am very careful what I eat (in UK they do not think inhaling wheat dust or using lipstick products containing wheat should cause a problem, and finding alternatives is very difficult). I feel medicine is more advanced in this field in USA and wondered what others' on the forum's views are?

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      Celiac disease symptoms

      By Churro · Posted

      No I haven't had one since 2021. I rarely have more than 1 per week. 
    • trents
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      By trents · Posted

      Sorry, I see that now as I reread your original post. You say you have hemorrhoids "only once a week" now. When I develop hemorrhoids, which is once every few years now, it generally takes 3-4 days for healing to take place. So, it doesn't seem like you could have much relief time between episodes if you have them weekly. Have you had a lower GI scoping done recently?
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      Celiac disease symptoms

      By Churro · Posted

      Everyday I eat a medium to large apple in the morning and a large banana at night. I eat a cup of oatmeal in the evening. The ezekiel wheat bread I eat has a good amount of fiber. I haven't dealt with constipation for at least a year. Most of the time my feces are soft. 
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      It's not uncommon to experience some bleeding with hemorrhoids but I doubt enough to materially effect your iron levels. About your constipation. Are you getting enough fiber in your diet? 25-30 grams per day is the adult recommendation. Eggs and chicken have zero fiber. One medium apple or one average banana will have about 3 g. of fiber. A serving of oatmeal will have 3-4 g. Just to give you an idea. It's harder than you think to get 25-30 g of fiber. You have to plan for it and work at it. Getting plenty of hydration is important as well.
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      Someone said this could be due to my hemorrhoids. On March 17, 2024 my ferritin level was 23.
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