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Newby From Uk


flowerqueen

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flowerqueen Community Regular

Hi everyone! I was diagnosed as Coeliac in November last year by having biopsies at hospital after a L--O--N--G drawn out and exasperating time. I also have Diabetes, and an under-active thyroid, nerve pain due to spine degeneration, IBS and dairy intolerant. I have managed quite well since going gluten free, but recently my internal 'shakiness' and muscle weakness have returned. (last time the doctor I saw said it was due to very low ferritin levels and given iron to take). I went to see a different doctor this morning who said that low ferritin levels should not have caused this shakiness and asked if I suffered from anxiety :angry: I felt patronised as I know this isn't what caused the problem. She has arranged for me to have blood tests on Wednesday to re-check thyroid, ferritin and vitamin D levels etc.

What I would like to know ... is it normal to have these 'blips' in the first year of being diagnosed? Also have others had problem with muscle weakness? I am very careful what I eat (in UK they do not think inhaling wheat dust or using lipstick products containing wheat should cause a problem, and finding alternatives is very difficult). I feel medicine is more advanced in this field in USA and wondered what others' on the forum's views are?


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    • trents
      @N00dnutt, been there, done that! Cheers!
    • N00dnutt
      @trents You're right, thanks for pointing that out. On @somethinglikeolivia comment regarding potential ingesting or cross contamination; there is a product marketed in Australia as "GluteGuard" which is designed for just this scenario. It is not a defence for and is not recommended for use by full-blown celiac disease but, it helps those with GI. I'll be reading slower in future so I don't skim over the subject matter. Cheers.
    • N00dnutt
      @Knitty_Kitty Noted with appreciation.
    • trents
      @N00dnutt, as OP explained earlier, she had a gastroscopy done earlier while she had been eating plenty of gluten for months. It was negative despite strong positive antibody scores.
    • N00dnutt
      The best way to determine positively is to undergo a Gastroscope. Your Endocrinologist will assess the condition of your "Villi". These tenticles are what extract the nutrient from what we ingest. The Protein in Gluten is like acid to these tenticles.
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