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How Long Does It Take?

Peppa-minto

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Peppa-minto Apprentice
Peppa-minto
Posted

I know it is different for everyone but I kind of wanted to know how long it took people to have more energy and feel less fatigue after going gluten free? I just got a negative bloodwork back but I was only eating gluten for ten days... My doctor wants to do an endoscopy but I just started a new job and I need to be healthy. I need energy!!!

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rosetapper23 Explorer
rosetapper23
Posted

Generally, fatigue means that you're deficient in certain vitamins, minerals, and/or hormones. Your doctor should be testing you (at a minimum) for the levels of your B vitamins (particularly B12 and folic acid), Vitamin D, iron, and thyroid. Your fatigue will subside once you're able to absorb vitamins, minerals, and hormones again. For me, I continued to be deficient in iron for 18 months--that's how long it took for that part of the intestinal lining to repair itself. It always depends on how severe and extensive the damage is. It's possible that you may need sublingual Vitamin B12 (or injections) and/or intravenous iron infusions until your body is able to absorb these nutrients.

Unless you want an "official" diagnosis, there's no reason for an endoscopy. If you suspect celiac or gluten sensitivity, simply follow a gluten-free diet and continue to get blood work to check on your absorption or nutrients.

nvsmom Community Regular
nvsmom
Posted

Rosetapper gave you great advice. Before I was diagnosed I was taking a huge amount of vitamins and supplements because of my lack of energy. I had all those vitamin tests done, and it turns out my thyroid isn't working well. as a result, my energy isn't up yet since my meds aren't spot on yet but my gut feels much much better.

Hope you feel well soon.

ChristineWas Rookie
ChristineWas
Posted

It has been 8 months for me and I'm still not there (though there was a dramatic difference when I first went gluten free... I'm still not close to 100%). A new aquaintance at work recently told us it took her about a year. This actually encourage me, renewing hope that things still will get even better than they currently are.

By the way, my endoscopy was misleading. A waste of time and money.

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      Recovery from gluten challenge

      By Kirita · Posted

      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
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      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
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