Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stomach Swells

ChristenDG

By ChristenDG
in Coping with Celiac Disease

Recommended Posts

ChristenDG Rookie
ChristenDG
Posted

Hello!

I've been dealing with celiac disease for about eight months now. I find that I still have severe stomach swells. It just comes and goes randomly and doesn't seem related to anything specific. For example, this morning I was getting ready for work and my stomach was so swollen that I could hardly wear my jeans. About five hours later the swelling had gone down, and I was literally holding my jeans to keep them from falling down! I also get asked "Awww, when are you due?" And that's no fun (thank goodness no one has tried to touch my belly, lest they be back-handed for invading my bubble!). I have this issue so frequently and it's very annoying. I started taking Probaclac Extra-Strength Probiotics around June and for a couple of months the swelling was nearly gone! Now it's back though.

Does anyone experience this? Is there anything you have found that works well?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ncdave Apprentice
ncdave
Posted

I know you said "It just comes and goes randomly and doesn't seem related to anything specific". Is it possably you just haven"t figured out what causes it yet? Have you given up dairy yet, thats what it took for me to get over the bloated stomach. After that it got fairly easy to pin point exactly which foods were doing it. All it takes for me is a trace amount of dairy. I"ve also tried 4 differant probotics, none of which i could tolerate.

Persei V. Enthusiast
Persei V.
Posted

Like Dave, I think you didn't pinpoint what's causing it yet... Is very common for people to have troubles with other foods and gluten. The first suggestion is dairy, of course, but then, if the problem doesn't go away, maybe you should keep a food log and also note down when you bloat.

Good luck

ChristenDG Rookie
ChristenDG
Posted
  • Author

I may have to keep a food log, but I eat a lot of the same foods and haven't been able to detect anything. I'm lactose intolerant so I generally avoid dairy or take a supplement.

I do also have diverticulosis, and I'm starting to think it may be related to that... I'll have to get more serious with it and see if I can't narrow down a food or something.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748
    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.