Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For A Friend Who Understands


freedomseek00

Recommended Posts

freedomseek00 Rookie

Hi,

I'm 23 years old and was recently diagnosed with celiac and a host of other food allergies and health conditions. I was wondering if there is anyone in the Bay Area, California who can relate and would like to be buddies (email, text, chat online, face-to-face). You don't even really have to be from the Bay Area, I just would like someone to talk to (that's what's so great about the internet). Right now I only have my dad (who is sensitive to gluten but no other food allergies) and my boyfriend (who has no food allergies) and they try to help as much as they can but it's not the same as having someone who can directly relate and who will understand my story. Otherwise, I have no other friends because I've been so sick for the past 5 years until they finally figured out it was food allergies a couple months ago. I'd love having more friends I can talk to and we could support each other Admittingly, I need a lot of support right now, I'm really struggling with accepting that this is my new life.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

I live in Martinez in Contra Costa County--whereabouts are you located? There are a number of gluten-free folks in the S.F. Bay Area, and we used to meet up every few months at Mariposa Bakery in Oakland....but it's been a while. If you register at Open Original Shared Link, you'll get invited to local gluten-free meetups. You just missed a one-day gluten-free conference in Palo Alto, but one-day events are fairly common in the Bay Area--lots of new people to meet. Please send me a PM if you'd like to meet up sometime at a restaurant that has a reputable gluten-free menu. If you actually live in S.F., there are some great gluten-free restaurants (even one that serves sandwiches!).

Also, there are some great celiac organizations in the U.S. that hold annual conferences. I'm a member of the Gluten Intolerance Group of North America (GIGNA), and I attend their conferences all over the U.S. I have friends that I've kept in touch with through this organization, and it helps me not to feel so lonely and isolated. There is a local chapter: GIG of North Marin, I believe. They hold monthly meetings in Novato, but because their meetings are in the evening and I have night blindness (from celiac), I haven't yet attended one of their meetings. There are also several forum posters here who live in the Bay Area, though I've never met them personally. Perhaps they'll chime in...

Please feel free to contact me--I remember all too well how overwhelmed and lonely I felt at first. It's been almost nine years for me, so it's gotten a lot better. Hope to hear from you!

BeckyW Contributor

Hi,

I'm 23 years old and was recently diagnosed with celiac and a host of other food allergies and health conditions. I was wondering if there is anyone in the Bay Area, California who can relate and would like to be buddies (email, text, chat online, face-to-face). You don't even really have to be from the Bay Area, I just would like someone to talk to (that's what's so great about the internet). Right now I only have my dad (who is sensitive to gluten but no other food allergies) and my boyfriend (who has no food allergies) and they try to help as much as they can but it's not the same as having someone who can directly relate and who will understand my story. Otherwise, I have no other friends because I've been so sick for the past 5 years until they finally figured out it was food allergies a couple months ago. I'd love having more friends I can talk to and we could support each other Admittingly, I need a lot of support right now, I'm really struggling with accepting that this is my new life.

I don't live in the CA area but I totally understand how you feel. Besides not being able to eat gluten, I have multiple food issues. The main ones are soy and dairy. I also can't eat alot of vegetables or fruits. It sure can be frustrating and helps to have someone to talk to about all this. I am always willing to talk to you!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - trents replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    3. - Wheatwacked replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      34

      Blood results

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,414
    • Most Online (within 30 mins)
      7,748

    Donna Shields
    Newest Member
    Donna Shields
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
    • trents
      @Known1, I submitted the following comment along with my contact information: "I have noticed that many food companies voluntarily include information in their ingredient/allergen label section when the product is made in an environment where cross contamination with any of the nine major allergens recognized by the FDA may also be likely. Even though celiac disease and gluten sensitivity are, technically speaking, not allergic responses, it would seem, nonetheless, appropriate to include "gluten" in that list for the present purpose. That would insure that food companies would be consistent with including this information in labeling. Best estimates are that 1% of the general population, many undiagnosed of course, have celiac disease and more than that are gluten sensitive."
    • Wheatwacked
    • Wheatwacked
      Celiac Disease causes more vitamin D deficiency than the general population because of limited UV sunlight in the winter and the little available from food is not absorbed well in the damaged small intestine.  Taking 10,000 IU a day (250 mcg) a day broke my depression. Taking it for eleven years.  Doctor recently said to not stop.  My 25(OH)D is around 200 nmol/L (80 ng/ml) but it took about six years to get there.  Increasing vitamin D also increases absorption of Calcium. A good start is 100-gram (3.5-ounce) serving of salmon,  vitamin D from 7.5 to 25 mcg (300 to 1,000 IU) but it is going to take additional vitamin D supplement to be effective.  More importantly salmon has an omega-6 to omega-3 ratio 1:10 anti-inflammatory compared to the 15:1 infammatory ratio of the typical Western diet. Vitamin D and Depression: Where is all the Sunshine?
    • Known1
      Thank you for sharing your thoughts.  I respectfully disagree.  You cherry picked a small section from the page.  I will do the same below: The agency is seeking information on adverse reactions due to “ingredients of interest” (i.e., non-wheat gluten containing grains (GCGs) which are rye and barley, and oats due to cross-contact with GCGs) and on labeling issues or concerns with identifying these “ingredients of interest” on packaged food products in the U.S. “People with celiac disease or gluten sensitives have had to tiptoe around food, and are often forced to guess about their food options,” said FDA Commissioner Marty Makary, M.D., M.P.H. “We encourage all stakeholders to share their experiences and data to help us develop policies that will better protect Americans and support healthy food choices.” --- end quote Anyone with celiac disease is clearly a stakeholder.  The FDA is encouraging us to share our experiences along with any data to help develop future "policies that will better protect Americans and support healthy food choices".  I see this as our chance to speak up or forever hold our peace.  Like those that do not participate in elections, they are not allowed to complain.  The way I see it, if we do not participate in this request for public comment/feedback, then we should also not complain when we get ill from something labeled gluten-free. Have a blessed day ahead, Known1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.