Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Capsule


Mgyoung77

Recommended Posts

Mgyoung77 Apprentice

My doctor wants me to do a capsule. He didn't even tell me what it was let alone why he wanted me to do it. I have researched and now know what it is. I also know it is to see what damage has already been done. What is he going to do with this information. Is it worth the money and time that it will take?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Most damage, to my knowledge is microscopic, however in some cases "scalloping" of the intestines can be seen.

LauraB0927 Apprentice

I recently had the capsule test done in November and I definitely think it was worth it - but my insurance did cover it. My endoscopy only showed "curling" of my villi, but the capsule test showed that I actually had much more significant damage than we had all thought - more than half of my small intestine has no villi whatsoever. Its a more comprehensive picture (literally) of where the damage is located and how severe it is, because the endoscopy cant get far enough and only takes about 4-8 biopsies, which isnt a lot given that you're small intestine is about 20 feet long. They printed out pictures for me and you can CLEARLY see the areas that have lots of beautiful little villi and the ones that dont, are scalloped, and have a cobblestone/mosaic pattern. It also rules out bleeding and masses. The capsule is about the size of a multi-vitamin so its not incredibly large. The only inconvenience is the fasting before the procedure, but the rest is fine, you only have the leads (wires) on for 8 hours. I have to get another done in about 3 months to see if I made any progress.

If your insurance covers it, I'd definitely say go for it - you'll get a TON of more information of whats going on inside.

Mgyoung77 Apprentice

Thank you for the information. Is there anything the doctor can do about the damage he sees? I have it schedule for the 28. We already met our deductible so I want to squeeze it in this year. My other concern is my iron. A couple days before I found out I was celiac, I found out my hemoglobin was 5.4. This past Monday it was up to 9, which is still low but a huge improvement. It's only been the last couple days that I've felt like I had enough energy to get anything accomplished. I don't want to go back to being so tired. I have a lot that needs to be accomplished right now.

mushroom Proficient

Thank you for the information. Is there anything the doctor can do about the damage he sees?

Not with the camera which only passes through. It helps him make a more accurate diagnosis and a better treatment plan, depending on what he finds.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pilber309's topic in Related Issues & Disorders
      10

      Burning Sensation in the small intestine

    2. - pilber309 replied to pilber309's topic in Related Issues & Disorders
      10

      Burning Sensation in the small intestine

    3. - Threecents commented on Scott Adams's article in Winter 2026 Issue
      4

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

    4. - trents replied to pilber309's topic in Related Issues & Disorders
      10

      Burning Sensation in the small intestine

    5. - Avi Salmon posted a topic in Introduce Yourself / Share Stuff
      0

      Introduction

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,879
    • Most Online (within 30 mins)
      7,748

    carol Whitney
    Newest Member
    carol Whitney
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No, I meant two years ago when you had your most recent upper GI scope.
    • pilber309
      yes it was very notable during the pre diagnosis of coeliacs in fact it was all the time.
    • trents
      And you were experiencing this burning sensation back then?
    • Avi Salmon
      Hello everyone, I am a young adult living with both Celiac disease and achalasia. I am looking for some inspiration to start raising awareness for people with Celiac disease on instagram. Please reach out to me if you have any tips and ideas on what is important to share to the world. 
    • pilber309
      Last one was about 2 yrs ago nothing untoward was seen  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.