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Toes Burn At Night

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Every once in a while I get woken up by a feeling of burning in my right toes. It only lasts for 30-60 minutes. I thought maybe it is from eating a food that I may be sensitive to but not sure why I get that. Does anyone get this and could it be from getting some gluten by accident?


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I have what I and doctors have assumed (never been tested) to be peripheral neuropathy. I have no reason to believe that's not it, plus I took some medication that's supposed to help nerve pain, and it did help a lot. B vitamin deficiency or overdose can cause it, and I figured that's why I have it. However, if that's the case, then I'd expect it to have gotten better, but it hasn't. It was better for a little bit, but then got as bad as it was when I found out I had celiac disease.

Other things cause peripheral neuropathy too, like diabetes or (I think) any other problem that makes your blood thick.

Usually I get tingling, not really burning, that's pretty much constant. But then when it's bad I'll get almost shooting/stabbing that comes and goes in, the vast majority of the time, spurts that last less than a minute. (Thankfully)

I think it might be caused by gluten ingestion but it's too hard to say, especially since once you get nerve damage, there's no saying it will ever get better. Nerves aren't like the rest of our body that seems to automatically heal itself once damged. I may be getting CC from eating at relatives homes or simply eating too many products that are labelled gluten free but in fact have trace amounts of gluten...I'm still eating a ton of food.

You may also simply be experiencing some sort of physical nerve pinching. You may notice when you wake up and the burning's there, that you tend to be sleeping one way but other mornings when it doesn't burn, you're sleeping differently. Carpal tunnel is far from the only place where physical pressure causes nerve damage; I've got issues in both ankles, my elbows, and my shoulders. My husband, if he sleeps on his back, can get burning in his thigh from a pressure point on his back, despite no other nerve problems. If I'm not careful how I sleep, I'll wake up multiple times at night with extremities totally numb.


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    • It really can be anywhere or any random source, Few tips, as mentioned eat whole foods only nothing processed, Use Freezer paper on your prep surfaces to fix your foods, perhaps gloves in case your touching something else (door to fridge, pantry, computer keyboard, etc) that might have trace gluten residue. Have dedicated gluten-free cooking utensils, pots, and pans. Check your soaps, shampoos, make up and other hygiene products, these might also contain gluten that could be cross contaminating.  I personally had this exact issue and broke down sold everything I had and started new in a new apartment, new appliances, new everything since I was getting sick at least twice a week and could not hold a job. I will link you to the list of gluten ingredients to look out for. Hopefully you can find the cause and not have to go as radical as I did to get relief. It might be something as simple as a spice, or a random product in you house.
    • Thanks for your replies...!  Thanks for all the tips, I am indeed on a caveman diet and trying to figure out what works best. I had rice on Friday and unfortunately did get a reaction (bloating/nervousness), which for now makes carbs a thing of the past. I do indeed do very well on protein and am becoming picky about the ingredients in foods as well. For example I had asparagus the other day but they were packed in citric acid. Little did I know citric acid had sugar. Suffered a severe reaction. All-natural indeed is the only way to go when it comes to curing this thing..  Well, it's a valuable lesson. I never drank enough during my childhood but I'm trying to drink at least a bottle nowadays. It probably contributed to my gut issues.  I'll do my best and see how it goes.  Thanks again, Ken
    • I was in Zambia, Zimbabwe, Botswana & South Africa this summer, with very few problems.  I brought a ton of Kind bars, Justin's peanut butter packets and Costco beef jerky just in case!  I get the Kind Bars and Justin's on Amazon Prime.  Africans eat a lot of meat (try the Kudu, it's awesome!) and veggies.  Stay away from sauces.  I don't recommend eating the Mopane tree worms, even though they are gluten-free.  I tried to get out of it, but my tour leader said they were gluten-free and I had to try it as part of the experience....ewwwww!  lol  gluten-free is quite popular in South Africa...they call in the Banting diet.  Maybe they know it up north as well?  I would definitely stay away from chips because you have no idea what else has been in the same fryer oil.  One chicken nugget and you're toast.  I've never had a problem with rice.  Have a great trip...Africa is amazing!  
    • Hi Jan, Have you had any allergy testing? Could be you are allergic to something else. My daughter is Celiac and was still getting ill & feeling awful after going gluten-free. Found out through several blood tests that she is allergic to shrimp, wheat, yeast & sesame seeds. Many GlutenFree foods contain the things she is allergic too so her food choices just had to change. But she was recently diagnosed with EoE from her lastest endoscopy after being  sick with horrible acid.  Go have more testing with a GI doctor that is current with celiac disease and it's many different symptoms. Knowledge is a powerful weapon and you need to try and stay positive. You have many people who you can turn to and a big Celiac family that is always ready to listen & help where they can! Welcome to the forum 👍🏻
    • Hi Janst, It might help to simplify your diet.  Eliminate possibilities of gluten sneaking into your diet.  It's pretty easy to make mistakes with your diet when transitioning to gluten-free eating.  I suggest eating only whole foods for a 6 month period until you get used to things.  Cross contamination is another thing to look out for.  Shared peanut butter, butter, or other condiments can spread gluten in small amounts and make us sick.  Sometimes medicines or vitamins can have gluten, even teas and spices are possibilities.  Kissing a person who has eaten gluten recently can cause problems too. Keep trying because every time you make a mistake you learn something. You might want to try stopping all dairy for a while to see if that helps also. And welcome to the forum
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