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Enterolab Results Are In, Gene Testing? Candida, Chest, Throat Pain Many Other Issues.
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2 posts in this topic

Well after several months of major sickness, I received my Enterolab results today, stating I am Gluten intolerant. I have been MAJOR sick, please see below. I am wondering if I should do the DNA testing now, especially worried about possiblity for my 3 year old.

Gluten Sensitivity Stool Test

Fecal Anti-gliadin IgA 53 Units (Normal Range is less than 10 Units) Talking with Enterolab they felt this could even potentially be higher for me but since I am having so many immune type problems they said the immune stops with the IGA, or they feel someone with all of my symptoms could be up in the 200+ range.

I have had a 25 lb weight loss in the past 2 months

Endoscopy showed inflammation of stomach and erosive gastritis

I had my Gallbladder removed 2.5 weeks ago, it wasn't functioning, upon removal they found it had been chronically inflammed

I have had a constant feeling something is stuck in my throat (they don't have a clue what's causing this) Along with this comes major chest pain in the middle of my chest (again no clue why)

Continunous high white blood count for the past 2+ years, (they don't know why)

My C-Reactive Protein was 3x higher than it should be on my last test

My fecal lactoferrin showed positive for inflammation

I keep getting tonsil stones in my throat and have bad breath

They just found a Yeast/Fungal overgrowth in my intestine for the second time and have me on a 2 week does of antifungals

Dizziness/Passing Out/Vertigo/Ear Ringing

TMJ

Anxiety/Depression

Nausea/Vomiting

Diaherra/Constipation

Bloating

Vitamin D Deficient

Major back pain - feeling like my spine is starting to curve. I am only 34!

Migraine history

Positive IGE Skin Prick testing to Soy, Corn, Chicken

I have been on PPI's for stomach acid

I have also been exposed to Toxic Mold in my house, which I believe is now all remidiatied....however I am wondering if this brought all of these symptoms out.

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Are you still eating gluten? I know you stopped at one point prior to a blood testing for a couple of weeks but was that your only gluten free trial?

About all I can suggest at this point is to do the diet, if you are not doing it already. Your list of symptoms sounds like a celiac/gluten intolerant shopping list for sure. My personal feeling is it's time to stop shopping around for a diagnosis and see if gluten free works. And a good diet trial is 3-6 months.

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    • I had a negative biopsy and was still diagnosed with Celiac. My GI ran a bunch of tests looking for the cause of my 15+ years of diarrhea and the only thing that came back positive was the entire Celiac panel. All very high. So he performed an endoscopy with biopsy. The biopsy was negative. So he ordered a genetic test. When that came back as "high risk" he decided a trial gluten free diet was in order. After 8 weeks my symptoms resolved and my antibodies were back to normal. Since then, follow up testing had shown I have osteoporosis. I am a 40 year old male.  So yes, you can definitely still have it and have significant damage with a negative biopsy. 
    • Annual celiac antibody testing is, in my opinion (and based on what celiac researchers have published), is critical, especially for a 12 year old.  Life is going to get harder for her.  Peer pressure is huge (I have a 15 year old daughter), and remaining diet compliant can be tough.   In Dr. Fasano's, Gluten Freedom, he discusses a young patient who became ill in high school after being gluten free for years.  His parents were perplexed.  Dr. Fasano took the young man aside and he confessed that while on a date, he didn't want to bring up his celiac disease.  So, he ate pizza.  He was too embarrassed to tell his parents.   My daughter does not have celiac disease.  She was first tested two years ago.  Since she is symptom free, is not anemic and her other lab work is fine, we'll wait to test her in another year.  It all depends on the patient, but every few years, testing is recommended for all undiagnosed first-degree relatives.   It certainly sounds like your younger children should be screened.   I wish you both well!      
    • Perhaps you should consider asking for a GI referral.  You might just skip the blood tests and go directly to an endoscopy/biopsies while you are still consuming gluten.  It is the "gold" standard for a celiac diagnosis anyway!   Here's the deal with going gluten free.  You can do it.  It costs nothing, but you must give it six months or longer.  You'd need to think like a celiac, but it can be done!  I'll tell you my tale.  My hubby went gluten-free 15 years ago per the very poor advice of his GP/PCP and my allergist.  After a year of mistakes and learning, he got well.  It worked!  Thirteen years later, I was formally diagnosed.  (It was a shock as I was only anemic at the time.)  Hubby would be the first to say that I have had way more support from family, friends and medical.  I must say, it's nice to see those lab results.  It really helped me adhere to the diet in the beginning too.   So, you know your medical situation.  You must do what's best for you!   I hope you feel better soon!  
    • I'm sure going to have a long talk with my doctor.  Then I'll find a new one that will support me and make sure that my daughter and I both have the proper testing done yearly.  
    • also:  glutendude - i don't get it.  shouldn't it be glutenfreedude?  lolz i eat out few and far between.  most of the times i've been glutened it's been eating out.  this weekend i'm getting my bacon cheeseburger on at red robin  i always get my 'good' waitress - lucky, i guess, paula takes good care of me   and i will eat at bonefish but they have a limited 'safe' menu.  look for places that have the 'GiG'  training they know their stuff.  mellow mushroom, melting pot, california pizza kitchen, pf changs are all supposed to be trained that way.  they know to avoid cc and change their gloves, etc.  
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