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Enterolab Results Are In, Gene Testing? Candida, Chest, Throat Pain Many Other Issues.
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2 posts in this topic

Well after several months of major sickness, I received my Enterolab results today, stating I am Gluten intolerant. I have been MAJOR sick, please see below. I am wondering if I should do the DNA testing now, especially worried about possiblity for my 3 year old.

Gluten Sensitivity Stool Test

Fecal Anti-gliadin IgA 53 Units (Normal Range is less than 10 Units) Talking with Enterolab they felt this could even potentially be higher for me but since I am having so many immune type problems they said the immune stops with the IGA, or they feel someone with all of my symptoms could be up in the 200+ range.

I have had a 25 lb weight loss in the past 2 months

Endoscopy showed inflammation of stomach and erosive gastritis

I had my Gallbladder removed 2.5 weeks ago, it wasn't functioning, upon removal they found it had been chronically inflammed

I have had a constant feeling something is stuck in my throat (they don't have a clue what's causing this) Along with this comes major chest pain in the middle of my chest (again no clue why)

Continunous high white blood count for the past 2+ years, (they don't know why)

My C-Reactive Protein was 3x higher than it should be on my last test

My fecal lactoferrin showed positive for inflammation

I keep getting tonsil stones in my throat and have bad breath

They just found a Yeast/Fungal overgrowth in my intestine for the second time and have me on a 2 week does of antifungals

Dizziness/Passing Out/Vertigo/Ear Ringing

TMJ

Anxiety/Depression

Nausea/Vomiting

Diaherra/Constipation

Bloating

Vitamin D Deficient

Major back pain - feeling like my spine is starting to curve. I am only 34!

Migraine history

Positive IGE Skin Prick testing to Soy, Corn, Chicken

I have been on PPI's for stomach acid

I have also been exposed to Toxic Mold in my house, which I believe is now all remidiatied....however I am wondering if this brought all of these symptoms out.

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Are you still eating gluten? I know you stopped at one point prior to a blood testing for a couple of weeks but was that your only gluten free trial?

About all I can suggest at this point is to do the diet, if you are not doing it already. Your list of symptoms sounds like a celiac/gluten intolerant shopping list for sure. My personal feeling is it's time to stop shopping around for a diagnosis and see if gluten free works. And a good diet trial is 3-6 months.

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    • Today was the big day when I went to the GI and this is the first time I have felt heard and taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a disc with records to me, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten. He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • Celiacs got better gluten-free. Post-war, grains became available again and the same patients got sick again. 1952 the Gluten-Free Diet is officially ... View the full article
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