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Enterolab Results Are In, Gene Testing? Candida, Chest, Throat Pain Many Other Issues.
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2 posts in this topic

Well after several months of major sickness, I received my Enterolab results today, stating I am Gluten intolerant. I have been MAJOR sick, please see below. I am wondering if I should do the DNA testing now, especially worried about possiblity for my 3 year old.

Gluten Sensitivity Stool Test

Fecal Anti-gliadin IgA 53 Units (Normal Range is less than 10 Units) Talking with Enterolab they felt this could even potentially be higher for me but since I am having so many immune type problems they said the immune stops with the IGA, or they feel someone with all of my symptoms could be up in the 200+ range.

I have had a 25 lb weight loss in the past 2 months

Endoscopy showed inflammation of stomach and erosive gastritis

I had my Gallbladder removed 2.5 weeks ago, it wasn't functioning, upon removal they found it had been chronically inflammed

I have had a constant feeling something is stuck in my throat (they don't have a clue what's causing this) Along with this comes major chest pain in the middle of my chest (again no clue why)

Continunous high white blood count for the past 2+ years, (they don't know why)

My C-Reactive Protein was 3x higher than it should be on my last test

My fecal lactoferrin showed positive for inflammation

I keep getting tonsil stones in my throat and have bad breath

They just found a Yeast/Fungal overgrowth in my intestine for the second time and have me on a 2 week does of antifungals

Dizziness/Passing Out/Vertigo/Ear Ringing

TMJ

Anxiety/Depression

Nausea/Vomiting

Diaherra/Constipation

Bloating

Vitamin D Deficient

Major back pain - feeling like my spine is starting to curve. I am only 34!

Migraine history

Positive IGE Skin Prick testing to Soy, Corn, Chicken

I have been on PPI's for stomach acid

I have also been exposed to Toxic Mold in my house, which I believe is now all remidiatied....however I am wondering if this brought all of these symptoms out.

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Are you still eating gluten? I know you stopped at one point prior to a blood testing for a couple of weeks but was that your only gluten free trial?

About all I can suggest at this point is to do the diet, if you are not doing it already. Your list of symptoms sounds like a celiac/gluten intolerant shopping list for sure. My personal feeling is it's time to stop shopping around for a diagnosis and see if gluten free works. And a good diet trial is 3-6 months.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
    • I like your plan Cara, I may have to include it in my sons.    Poor little guy is still very very sick. I think he is resisting and cheating, despite having the support of two other siblings and a 100% gluten-free home. 
    • Despite it being a nightmare, I did wait for my kids to get biopsies. At one point I had one severely ill child gluten-free and two more waiting having to eat it. It was worth the wait though and I think long term a biopsy may be worthwhile, especially for school. I have already had issues with schools and camps so having a firm diagnosis has been helpful. 
    • Knowing that the reaction to gluten in celiacs is an uncalled for immune system reaction, I was thinking of how a cure would be possible. Maybe a medicine that somehow turns off the immune system. The only thing that i've heard do that... HIV.  obviously that's way worse than celiac. Just some food for thought.
    • Well, you can probably get an apple or something.  You might be able to get someone to boil you some eggs.  But be careful of things like nuts that should be naturally gluten free.  They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives.  If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables.  But even so, you must monitor it carefully.  The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added.  To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it.  Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful.  Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.  
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