No popular authors found.


Get Celiac.com's E-Newsletter

Categories

No categories found.







Ads by Google:


Questions? Join Our Forum:
~1 Million Posts
& Over 66,000 Members!



SHARE THIS PAGE:
Celiac.com Sponsors:

Prick a Finger and Save a Life: How YOU Can Make a Difference in Celiac Disease Research

Journal of Gluten Sensitivity Autumn 2012 Issue


Image: CC--PROIntel Free Press

Celiac.com 11/11/2017 - (NOTE: This article is from 2012 and is being made available as Celiac.com rolls our past issues of Journal of Gluten Sensitivity) It's just like being a little kid with a super sore throat and your mom taking you to the doctor to get a test for strep throat. The doctor swabs your throat with two sticks to find out what nasty bacteria is camping out. In just moments you've got a diagnosis of strep throat and can start antibiotics to miraculously make the pain go away. You go home with a prescription, get in bed and eat mom's homemade chicken rice soup until you feel better in a couple of days. How cool would it be if getting diagnosed with celiac disease was this easy?

The wonderful news is that we're getting closer to having a test that will diagnose celiac disease with just a simple prick of a finger and a 10-minute wait. The CeliacSure Test Kit measures (anti-tTG) IGA antibodies from a fingertip blood sample. It works by taking a small drop of blood, mixing it with a buffer and applying the mixture onto a test cartridge. Within moments two red lines appear if the test is positive, while only one line appears if the result is negative. And, you can take the test at home without ever getting out of your pajamas!

"The test kit is a point-of-care, at-home test that's very similar to reading results of a pregnancy test," said Dr. Daniel Leffler of the Celiac Disease Center at Beth Israel Deaconess Medical Center in Boston. Dr. Leffler, a gastroenterologist by training with a background in nutrition, has a long-standing interest in celiac disease. Several years ago he teamed up with Dr. Ciaran Kelly and Dietitian Melinda Dennis to found the Celiac Disease Center at Beth Israel Deaconess Medical Center where they focus not only on providing top notch patient care, but also on high level disease research. The latest project: studying the efficacy of the CeliacSure test for celiac disease diagnosis.

Dr. Leffler said his team got involved with the finger prick test study because they feel it's important to take down barriers to patients getting diagnosed with celiac disease. "We do a lot with educating other medical providers about offering in-clinic testing, but I think it's really important to put a tool in the hands of the people."

"We've teamed up with the [marketers] of the test kit at GlutenPro/Biocard CeliacSure Test to see how effective this test is in the USA. We're providing 2 kits per family to use on first-degree relatives of people with celiac disease. To qualify, participants in the study must not be on a gluten-free diet. We send them the test kit to take as well as a survey about their ability to use and understand the test. The goal is that this small study comes out favorable [sic] so we can move on to large scale studies that will compare the finger prick test to the gold standard laboratory serology testing."

Ads by Google:

Dr. Leffler says he's really excited about the potential of this point-of-care test because it will "allow us to reach a population that might not otherwise come in to get tested, mainly first degree relatives of patients already diagnosed with celiac disease."

It's important to note that right now the CeliacSure test is only for research purposes, not actual diagnosis. It is available in Canada and other countries, but it's still under evaluation here in the United States. And, while the strep throat analogy is a great way to think about how this test will work, it's extremely important to understand that if you get a positive result with the CeliacSure test, do not start a gluten-free diet until you have followed up with a doctor to confirm the diagnosis.

As with all medical studies there's some fine print you need to know about. Participants in the study must meet all of the following criteria:

1. Over the age of 18
2. A first or second degree relative with celiac disease
3. Not previously diagnosed with celiac disease
4. Not on a gluten-free diet or low-gluten diet within the past 3 months
5. Able and willing to self administer the test, complete a short survey form and return both in the envelope provided
6. Willingness to have follow up medical evaluation in the event of a positive test
7. A resident of the United States

Listen to a full interview with Dr. Leffler about the CeliacSure study on the Hold the Gluten Podcast (http://traffic.libsyn.com/holdthegluten/050_HoldTheGluten-05Apr2012.mp3) with Vanessa Maltin Weisbrod and Maureen Stanley now! And, if you would like to participate in the study, please contact Dr. Toufic Kabbani at celiac@bidmc.harvard.edu or by phone at 617-667-0528.

Celiac.com welcomes your comments below (registration is NOT required).












Comments




Rate this article and leave a comment:
Rating: * Poor Excellent
Your Name *: Email (private) *:




In Celiac.com's Forum Now:


I'm probably the most annoying person on this forum. Lately I've been posting everyday? ok wondering a few brand options for products just need a list.... Pickles: Green olives: Banana peppers: Lunchmeat: turkey/salami/pepperoni Hard/block cheese (cheddar or colby): (was...

Hi Your tests indicates that you are positive for Celiac. I have a problem with the diagnose too. I have recently started to research about gluten intolerance and I have so many symptoms... It's like all the health issues I had all my life have an answer now. I think my mother had ...

Yeah mine was the constipation really bad, it clears up some but my constipation was partially trigger by the damage causing malabsoprtion of magnesium leading to the constipation along with other things and complications. All sore layers up into a big compounding issue, example the tiredness is ...

For me, the DH rash was what lead my Dr. to have me tested for celiac. Since I have IBS, I was thinking that was what was causing my stomach issues- and I was so bloated that I looked pregnant. It is still my DH that lets me know, I have somehow encountered gluten/cross contamination. My skin ...

Hi, this is my first post. I am wondering how to proceed. I tried going off gluten because I was diagnosed with Morphea and I read it might help. To my surprise, it cleared up a bunch of other symptoms big time. Then I read about celiac and found out I should not have stopped eating gluten if I w...