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Dermatitis herpetiformis?

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whaltom

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I was diagnosed w/ celiacs a year and a half ago. I have so many symptoms possibly related to other autoimmune diseases and other possible medical issues. That it has been so hard for me to recognize that they are most likely related to my celiac's disease.

10 months ago I started having skin issues. First it was dry itchy skin. Figured related to my thyroid. They I started breaking out on my face. I thought "I have acne for the first time in my life?". They a small skin lession under my breast. I it was a burn scar from hot oil.

7 months ago my skin issues on my face started spreading and getting worse. My PCP diagnosed me with eczema. Treated me with hydrocortison. 4 months ago my skin issues got worse. Darkening of skin areas affected. Dry flaking skin. Very sore and itchy.

2 months ago my PCP gave me triamcinolone to treat eczema. Within 2 days my skin issues were gone. Only this cream is very strong and you can not use it for more than 7 days, or it will thin your skin. I stopped it after 7 days, and within 24 hours my rash that looked like acne started coming back. The next day I noticed my neck was hot and itchy. Looked it the mirror, and it was red and swollen. Looked like hives. Took a benedryl, and it went away.

Yesterday, my PCP told me Dermatitis Herpetiformis, or Duhring's Disease might be causing this. This is caused by an abnormal immune system response to gluten. Diagnosed by having a skin biopsy. Treated with Dapsone, an antibiotic, and gluten free diet. 

My symptoms are not exactly as I have read about, and pictures my doctor showed me are a little different.

Also, I have been using coconut oil to treat dry itchy skin. If allergic to it, it can cause contact dermatitis. I guess this is also a possibility.

Has anyone else had Dematitis Herpetiformis?

If so, what were your symptoms? What helped? Did you have a biopsy? How long did it take to go away? Did it come back?

 

 

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Instead of writing a blog, maybe you would want to post these questions on the Forum?  Might get more answers that way.

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