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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- Ginger38 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Confused About Results
Thank you 😊 Yes this whole process has been very frustrating! I didn’t think NCGS caused positive TTG-IGA antibodies? I thought NCGS was just a sensitivity but doesn’t cause ab autoimmune reaction which is what raises the antibody levels, correct? A formal diagnosis would have been so much easier for me as far as dealing with family and functions and fo... -
- trents replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms19
Help Understanding Test Results
So, if you know from experience that gluten causes you issues because when you eliminate it you definitely feel better, then in light of your negative biopsy results it looks like you have NCGS (Non Celiac Gluten Sensitivity). NCGS still calls for gluten free eating and some experts believe it can transition into celiac disease. -
- lizzie42 replied to lizzie42's topic in Parents, Friends and Loved Ones of Celiacs2
Second child with Celiac
Well, the problem is we kind of did proceed with dietary changes. Until his ASK study test he was eating school lunch 3x a week (high on the gluten) plus occasionally a weekend treat with gluten. Since the test I went to packing his lunch and everything he eats at home is gluten-free due to his sister. I would say 1-2x a week for the last 3 weeks he had a... -
- Brown42186 replied to Brown42186's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms19
Help Understanding Test Results
Hi again! The biopsies from my endoscopy didn't show anything abnormal. The GI said I have EPI like I already said, acid reflux that I didn't know I have, and probably a gluten intolerance since it's showed up on allergy testing. -
- cristiana replied to CJF's topic in Traveling with Celiac Disease2
European travel with Celiac Disease
@Scott Adams has done an amazing job at explaining the situation. Shop at Asda, Morrisons, Tesco's, Sainsbury's, Marks & Spencers and Waitrose which have great gluten free sections and you won't go hungry. Even small Co-op corner shops tend to have a dedicated gluten free area. I haven't had much luck with the German store, LIdl. Can't speak for Aldi...
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