Support & Help

No. There is no damage done to the gut lining with NCGS.

Hi Trents, Thanks for the feedback. Yes, I do have concerns about NCGS. Would this show up if I did the endoscopy testing?

@MagsM, It concerns me that your physicians seem to be preoccupied with the concept of "classic celiac disease".  That suggests to me their knowledge of celiac disease may be dated and they don't have a concept yet for the "silent celiac" who doesn't manifest with classic GI symptoms.

I have copied in a summary of my latest bloodwork from ChatGPT below. My GP will not refer for any further investigation and given that I do not have gastric distress symptoms it doe seem that I do not have classic Celiac but may have some malabsorption issues. I am now considering just going forward with a gluten free regimen and tracking symptoms. I will see the Consultant Otolaryngologist tomorrow and will share these results. I have already ordered the B-Complex and Benfotiamine and will start that regimen soon. Any feedback and your amazing expertise truly appreciated... Key Immunological and Nutritional Findings Test Result Normal Range Interpretation Tissue Transglutaminase IgA.   <0.2 U/mL.      <7.0 =            Negative   Strongly negative — rules out celiac disease Endomysial Antibodies (IgA).    <10                                         Negative   Supports absence of celiac disease Total IgA                                       1.94 g/L            0.65–4.21.   Normal IgG / IgM                                      8.47 / 2.04 g/L                      Normal.      Normal immune status ✅ These results do not indicate immunodeficiency. IgA is sufficient to make celiac testing valid, and IgG/IgM are in normal range. ⚠️ Nutritional / Absorption Concerns TestResultNormal RangeInterpretation Folate (B9)        3.1 ng/mL.          3.1–20.5.       Low-normal — borderline deficient Total Protein.    63 g/L.                 64–83          Slightly low Ferritin.              33 ng/mL.           15–150.        Normal, but low-normal; could reflect depleted stores 📌 This constellation of results suggests possible subtle malabsorption, suboptimal nutrient intake, or a functional GI issue — even in the absence of celiac disease. 🔄 Implications for Ménière’s and Autoimmunity While there's no evidence of classic autoimmune disease or celiac, subtle immune dysregulation and non-celiac gluten sensitivity (NCGS) cannot be ruled out. Your symptoms and lab pattern could still fit with an immune-mediated or inflammatory trigger for Ménière’s flares. Borderline nutrient deficiencies (folate, protein) may affect inner ear function or neuronal stability, indirectly exacerbating symptoms. Nutrient absorption issues might stem from subclinical GI inflammation, dysbiosis, or food sensitivities. 💬 Suggested Talking Points for Consultant Could a functional immune or inflammatory mechanism be driving Ménière’s in the absence of overt autoimmunity? Does a trial of immunomodulatory therapy (e.g., steroids, antihistamines) make sense if flares persist despite dietary changes? Would referral to a GI specialist or dietitian be appropriate, given borderline folate, protein, and symptom profile? Continue gluten-free diet trial for 4–6 weeks to assess symptomatic improvement, even in absence of celiac serology. Explore possibility of non-IgE food sensitivities or mast cell activation, especially if symptoms are episodic and food-triggered.      

It seems the "fad" diet is working for you.