Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thanks For The "duh" Moment

luvs2eat

By luvs2eat
in Coping with Celiac Disease

Recommended Posts

luvs2eat Collaborator
luvs2eat
Posted

I wasn't thinking... that's what. Of course you're all right. I was such a dolt to think that picking croutons off my salad was okay. I really was thinking that if I'm not having symptoms, I'm okay.

DUH... that's why I come here. For the good advice I always get.

Thanks for the wake-up call!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Well whats done is done...now you just have to make sure it doesn't happen so you don't do any more damage. Glad we all could help. :D

Guest Viola
Guest Viola
Posted

Good for you for taking this as a learning experience .. a lot of people would have got deffensive. We really are here to help each other out :D

luvs2eat Collaborator
luvs2eat
Posted
  • Author

Viola... have you been peeking into my brain?? Cause I totally got defensive!! But lucky for ME... I thought it through and realized that I'm not always as smart as I like to think I am... and it turned into a valuable learning experience.

Thanks for the support!

debbiewil Rookie
debbiewil
Posted

I read one study where they found MEASURABLE reactions to glutens in celiacs (ie. increased antibodies, etc.) with .1g of gluten. A slice of bread has about 4.8 grams of gluten, which means it's got 48 times the amount of gluten necessary to cause a celiac to have a measurable reaction. And with the size of the average crouton, one probably has at least 4 or 5 times the amount of gluten to cause a reaction. So even a few of those crumbs..... well, you get the picture.

Also, this is a good visual for people who try to tell you "Oh, a little won't hurt." Cut a piece of bread up into 48 pieces, and show them just how small an amount can cause a reaction.

Debbie

Claire Collaborator
Claire
Posted
Viola... have you been peeking into my brain?? Cause I totally got defensive!! But lucky for ME... I thought it through and realized that I'm not always as smart as I like to think I am... and it turned into a valuable learning experience.

Thanks for the support!

<{POST_SNAPBACK}>

Really glad you didn't get bent out of shape by the remarks. My own experience prompted my strong response. I live In PA and a few years back we had the nuclear accident at Three Mile Island. People actually went out there and stood around - just looking - not giving any thought to what radioactivity could be in the air they were breathing. They couldn't see it - so for all practical purposes it wasn't there. The gluten thing is a lot like that. Some people get very sick when exposed to even a small amount. Others do not, I personally can tolerate a small account - could eat a couple of cookies or a piece of pie without having any symptoms. But there is the unseen activity at the cell level that is doing the damage all the same. I am gluten free now. It is too soon to tell if "better late than never" holds true in this case.

Guest Viola
Guest Viola
Posted

Debbie, what a wonderful visual! And that would be for the average Celiac. A real sensitive one would react at less than that. Our big problems are very often caused by what we can't see. Such as a spice that has had starch added as a filler, and you certainly can't see the starch on Dry roasted peanuts, but it wil cause big damage. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted
  • Author

And I forgot my own favorite analogy... I might as well have said... "I can take off the big pieces of rat poison and blow any dust off."

Would I really eat that salad then??

debbiewil Rookie
debbiewil
Posted

Yes, it's all the small "hidden' gluten that I hate. I have no problem whatsoever staying away from bread, pasta, cookies, etc. But it's when you order the salad with grilled chicken breast, and make sure no croutons, you check or go without salad dressing, clean grill, etc. etc. then have a reaction anyway, because they used a commercial frozen chicken breast that has wheat actually in the chicken. Arggh!

And it's not just gluten. A co-worker who is allergic to tree nuts wanted a piece of cheesecake. I sat there and heard her ask the server about what was in it, telling the server she was allergic to nuts, asking that she check and make sure that there were no nuts on it or that it wasn't flavored with a nut extract, like almond, etc. After being assured several times that there weren't any nuts, she got a piece. One bite, and she said -"It's got nuts!" She ended up spending the afternoon in the hospital - there were almonds in the crust, and all the server could come up with was "you didn't ask about the crust, you asked about the filling and the topping!"

And nut allergies are quite common!

Debbie

Merika Contributor
Merika
Posted
And I forgot my own favorite analogy... I might as well have said... "I can take off the big pieces of rat poison and blow any dust off."

<{POST_SNAPBACK}>

LOL! that is funny :P

Merika

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748
    Estee
    Newest Member
    Estee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...