Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did You Experience Symptoms? What Are You Dealing With Now?


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

How long did you experience symptoms?

 

My answer atleast 30 years, but the more I sit back and consider the more I think it was before then.

 

How long have you been gluten free?

 

Could it be 10 months.?

 

What are you dealing with now:?

 

leaky gut

more severe reactions to gluten mistakes.

bloating

food intolerances

mal absorption

super sensitivity/cross contamination

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lisa74 Newbie

How long did you experience symptoms?

2 years

 


How long have you been gluten free?

4 weeks

 

What are you dealing with now:?

amost all of my symptoms have gone away except for joint and muscle pain, occasional numbness, and slight dizziness, but it has all lessened considerably

nvsmom Community Regular

How long did you experience symptoms?

Most of my life (39 years).

 

How long have you been gluten free?

Only 8 months.
 

What are you dealing with now:?

Still have some fatigue. "C" is still with me but less. Joint pain is greatly reduced; I am now mostly stiff and weaker than before. I still get back pain but I don't think it's gluten related. My thinking is still not as clear as it once was; I'm not sure how much that will improve. I do react badly to cc or accidental glutening but I alwaus did. I still have dairy issues.

 

I do have other autoimmune issues that aren't fully resolved though, so they could be causing the above symptoms.

 

the things that resolved are the stomach aches, bloating, hypoglycemia, hairloss, migraines, some fatigue, muscle cramps, most of my joint pain, and my skin is improving slightly (less acne).

1desperateladysaved Proficient

How long did you experience symptoms?

Most of my life (39 years).

 

How long have you been gluten free?

Only 8 months.

 

What are you dealing with now:?

Still have some fatigue. "C" is still with me but less. Joint pain is greatly reduced; I am now mostly stiff and weaker than before. I still get back pain but I don't think it's gluten related. My thinking is still not as clear as it once was; I'm not sure how much that will improve. I do react badly to cc or accidental glutening but I alwaus did. I still have dairy issues.

 

I do have other autoimmune issues that aren't fully resolved though, so they could be causing the above symptoms.

 

the things that resolved are the stomach aches, bloating, hypoglycemia, hairloss, migraines, some fatigue, muscle cramps, most of my joint pain, and my skin is improving slightly (less acne

I am hoping you will get well.

Diana

1desperateladysaved Proficient

How long did you experience symptoms?

2 years

 

How long have you been gluten free?

4 weeks

 

What are you dealing with now:?

amost all of my symptoms have gone away except for joint and muscle pain, occasional numbness, and slight dizziness, but it has all lessened considerably

That's great news, keep up the good work.

shorebird Apprentice

How long did you experience symptoms?

 

10+ years

 

How long have you been gluten free?

 

5 years

 

What are you dealing with now:?

 

Symptoms returning after 5 years of gluten-free. Diarrhea, constipation, bloating, gas, abdominal pain. Gallbladder pain seems to be coming back as well.

JohanJohan Rookie

How long did you experience symptoms?

 

Most of my life (30 years). Although i didnt know it was caused by glutened. 95% of symptoms came in the last 5 years.

 

How long have you been gluten free?

 

3 weeks.

 

What are you dealing with now:?

 

Anxiety i didnt have before, vitiligo, leaky gut (probably), understanding where gluten is hiding, understanding what i can eat, other food intolerances i didnt know i had, bloating, stomach pain i didnt have before.

 

 

What has been resolved?

 

I added this question to make it bit more positive to read :)

 

Brain fog gone, drowsiness gone, ridges and white spots on nails are gone, hair better, skin better, irritability gone, much more nice/understanding to people, stress gone (!), couple of kilos gone, arm pit sweat gone (wtf?), feelings of anger gone.

 

Im pretty sure my fatigue is gone too. I only say "pretty sure" cause it feels it will get even better soon. But im actually already happy with my energy levels after 3 weeks off. And few more other things are gone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,063
    • Most Online (within 30 mins)
      7,748

    JTL1976
    Newest Member
    JTL1976
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.