Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back At Work...

Rachel--24

By Rachel--24
in Coping with Celiac Disease

Recommended Posts

Rachel--24 Collaborator
Rachel--24
Posted

Well...I'm back at work. This is my second week and everything is going great! :)

I'm not doing my old job that was *right* next to the bakery. Instead I'm doing various jobs throughout the store (I work in a grocery store). They are waiting to see if I stay healthy and if I do they'll figure out what to do with me. I may be moved to another store...which coincidently has no bakery.

I was thinking the whole bakery thing is no longer an issue cuz I've been feeling ok so far. Today I noticed after being in an area very near the bakery for an extended period of time I started getting some symptoms. Pressure in my head and burning eyes mostly and a tiny bit of nausea. This is the second time it happened. The first time I didnt even think of the bakery...I thought I had gotten glutened at home from cross-contamination or something. Now that it happened again today while working in the same area I'm starting to wonder.

Anyways, both times the reactions didnt last long and when I moved to a different area I was better.

Now my question is...if the smell of the bakery stuff is somehow affecting me could it just be an irritation or could there still be some damage occuring inside? Does a gluten reaction *always* mean something is going on inside? Could I be just bothered by the smell or does this mean there is flour in the air and I'm breathing it? They are actively baking breads and donuts and all that yummy stuff at that time of the morning.

I also have to say that its really *hard* not to think about all that I can't eat when its in front of my face ALL day. Cupcakes with halloween decorations and of course now they've started with the pumpkin pie...one of my favorites. I find myself just staring at this stuff sometimes. :ph34r:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

I feel your pain, I really do! I was walking through the grocery store yesterday and I smelled all of the yummy smelling fresh baked goodies and my mouth started drooling... then I got dizzy and light headed and a little nauseas. It passed as soon as I left the store... I don't know why it happens, I just know it does.

Claire Collaborator
Claire
Posted
Now my question is...if the smell of the bakery stuff is somehow affecting me could it just be an irritation or could there still be some damage occuring inside? Does a gluten reaction *always* mean something is going on inside? Could I be just bothered by the smell or does this mean there is flour in the air and I'm breathing it? They are actively baking breads and donuts and all that yummy stuff at that time of the morning.

I also have to say that its really *hard* not to think about all that I can't eat when its in front of my face ALL day. Cupcakes with halloween decorations and of course now they've started with the pumpkin pie...one of my favorites. I find myself just staring at this stuff sometimes.  :ph34r:

<{POST_SNAPBACK}>

Here is a pumpkin pie recipe for you:

Pumpkin Pie - No Dairy*

3 Eggs or egg sub

1 can Libby's Solid Pack Pumpkin

3/4 cup brown sugar

1/2 teaspoon Salt

1/2 teaspoon cinnamon

1/2 teaspoon ginger

1/4 teaspoon nutmeg

1 teaspoon vanilla (optional - I like to add it)

13 ounces coconut milk

1 (9 inch) gluten-free pie shell (unbaked)

Preheat oven to 350degrees F.

Beat the eggs till blended, add the pumpkin and beat; add the brown sugar and beat until smooth. Add the salt, spices and vanilla. Add the coconut milk and blend well. Pour the custard filling into a gluten-free pie shell. Bake at 350F for 40-45 minutes or until set, and a toothpick inserted into center of the pie filling comes out clean. Cool on a wire rack.

I drive on a road that goes buy a huge commercial bakery. The smell makes me queasy and makes my head feel funny. I am in a car with the windows closed so it doesn't seem that I am inhaling particles - just getting 'waves' of the odor. Strange. Claire

Nicolette Rookie
Nicolette
Posted

You can get affected by breathing in or consuming flour products that contain wheat, so yes, it is probably in the air and is making you feel sick. I get my information from Coeliac UK and it states quite clearly that those that suffer from celiac disease or wheat intolerance SHOULD NOT consume or breathe in flour.

Nikki :)

Merika Contributor
Merika
Posted
Here is a pumpkin pie recipe for you:

<{POST_SNAPBACK}>

thanks!!!

Kasey'sMom Enthusiast
Kasey'sMom
Posted

I usually shop in the evenings but I went to get groceries the other morning and I thought the smell of cinnamon buns was going to over take the store. I felt a little nausea but I wasn't sure if it was because I was breathing in flour or if I was thinking about how I would feel after eating one!! :lol:

Thanks for sharing the pumpkin pie recipe. My mom & I have been looking for one....:)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I feel your pain, I really do! I was walking through the grocery store yesterday and I smelled all of the yummy smelling fresh baked goodies and my mouth started drooling... then I got dizzy and light headed and a little nauseas. It passed as soon as I left the store... I don't know why it happens, I just know it does.

<{POST_SNAPBACK}>

Nini,

Do you think we can get these reactions w/out any damage occuring? The reaction is no big deal to me if I know its not hurting me. I'm still in the begining stage and don't want to have a setback everyday. :unsure: I'm still trying to gain my weight back.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted
Nini,

Do you think we can get these reactions w/out any damage occuring? The reaction is no big deal to me if I know its not hurting me. I'm still in the begining stage and don't want to have a setback everyday.  :unsure:  I'm still trying to gain my weight back.

<{POST_SNAPBACK}>

I honestly don't know. I think there is a possibility if a molecule or more of the dust was to get into our mouth and get swallowed then I suppose it could happen... gosh I hope not. Just be careful :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go! I'm certain you'll feel much better. Yes, supplementation is a good idea even if you're healing and gluten free. The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities...
    2. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...
    3. knitty kitty
      - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms. The tTg IgA antibodies are made in the intestines. While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten...
    4. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

      Thanks, that's a great addition that I hadn't thought of.
    5. trents
      - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,362
    • Most Online (within 30 mins)
      7,748
    Nannynet
    Newest Member
    Nannynet
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.